RE: [lifelineforrsders] Welcome/Trip

2007-09-30 13:43:22

Carrie,

i am so sorry, I didn't know that your husband died, but hen there is a lot that we don't know about each other. That the "name of the game here, get to know each other and hold each other up when thing are not going well.

Welcome to our group, throught the good, the bad and the ugly! (I guess that includers new grandbabies (the good), lousy news ( the bad) and posted photos of ourselves (the ugly?)! [INLINE]

Trying to figure out about the trip, did Betty mention "The Titanic". That a big fancy cruise ship, isn't it! Gosh, I get seasick, hope I have a state room that will prevent that!

Trying to make my list for the trip. Let me see........Irish Cream (homemade), clean underwear.................Dry Idea.............panty liners/depends..............hummmmmmmmm going to take some thought.

More later!
[INLINE] , [INLINE] [INLINE] ,& [INLINE] [INLINE] ,
Lynn

When You Thought I wasn't Looking....

2007-09-30 12:44:11

This goes for grandparents as well as parents, aunts, uncles, brothers,
sisters, everyone.
When you thought I wasn't looking, by a Child . . .
A message every parent should read, because your children are watching
you and doing as you do, not as you say...
"When you thought I wasn't looking, I saw you hang my first painting on
the refrigerator, and I immediately wanted to paint another one.
When you thought I wasn't looking I saw you feed a stray cat, and I
learned that it was good to be kind to animals.
When you thought I wasn't looking, I saw you make my
favorite cake for me and I learned that little things
can be the special things in life.
When you thought I wasn't looking I heard you say a
prayer, and I knew there is a God I could always talk
to and I learned to trust in God.
When you thought I wasn't looking, I saw you make a
meal and take it to a friend who was sick, and I
learned that we all have to help take care of each
other.
When you thought I wasn't looking, I saw you give of
your time and money to help people who had nothing and
I learned that those who have something should give to
those who don't.
When you thought I wasn't looking, I felt you kiss me
good night and I felt loved and safe.
When you thought I wasn't looking, I saw you take care
of our house and everyone in it and I learned we have
to take care of what we are given.
When you thought I wasn't looking, I saw how you
handled your responsibilities, even when you didn't
feel good and I learned that I would have to be
responsible when I grow up.
When you thought I wasn't looking, I saw tears come
from your eyes and I learned that sometimes things
hurt, but it's all right to cry.
When you thought I wasn't looking, I saw that you
cared and I wanted to be everything that I could be.
When you thought I wasn't looking, I learned most of
life's lessons that I need to know to be a good and
productive person when I grow up.
When you thought I wasn't looking, I looked at you and
wanted to say, Thanks for all the things I saw when
you thought I wasn't looking.'"
Each of us, parent or friend, influence the life of a child.

Re: spinal injections

2007-09-30 03:51:42

I had one epidural black and it didn't help. Doc said if one
doesn't help a lot they don't do a second one. The steroids are
hard on your kidneys.

I've Learned

2007-09-29 23:07:07

I've Learned
I've learned-
that you can do something in an instant
that will give you heartache for life.
I've learned-
that it's taking me a long time
to become the person I want to be.
I've learned-
that you should always leave loved ones
with loving words. It may be the last
time you see them.
I've learned-
that you can keep going
long after you can't.
I've learned-
that we are responsible for what we do,
no matter how we feel.
I've learned-
that either you control your attitude
or it controls you.
I've learned-
that regardless of how hot and
steamy a relationship is at first,
the passion fades and there had
better be something else to take
its place.
I've learned-
that heroes are the people
who do what has to be done
when it needs to be done,
regardless of the consequences.
I've learned-
that money is a lousy way of keeping score.
I've learned-
that my best friend and I can do anything
or nothing and have the best time.
I've learned-
that sometimes the people you expect
to kick you when you're down
will be the ones to help you get back up.
I've learned-
that sometimes when I'm angry
I have the right to be angry,
but that doesn't give me
the right to be cruel.
I've learned-
that true friendship continues to grow,
even over the longest distance.
Same goes for true love.
I've learned-
that just because someone doesn't love
you the way you want them to doesn't
mean they don't love you with all they have.
I've learned-
that maturity has more to do with
what types of experiences you've had
and what you've learned from them
and less to do with how many
birthdays you've celebrated.
I've learned-
that your family won't always be
there for you. It may seem funny,
but people you aren't related to
can take care of you and love you
and teach you to trust people again.
Families aren't biological.
I've learned-
that no matter how good a friend is,
they're going to hurt you every
once in a while and you must forgive
them for that.
I've learned-
that it isn't always enough to be
forgiven by others. Sometimes you
have to learn to forgive yourself.
I've learned-
that no matter how bad your heart is broken
the world doesn't stop for your grief.
I've learned-
that our background and circumstances
may have influenced who we are,
but we are responsible for who we become.
I've learned-
that just because two people argue,
it doesn't mean they don't love each other
And just because they don't argue,
it doesn't mean they do.
I've learned-
that we don't have to change friends
if we understand that friends change.
I've learned-
that you shouldn't be so eager to find out a
secret. It could change your life forever.
I've learned-
that two people can look at the exact
same thing and see something totally different.
I've learned-
that your life can be changed in a matter of
hours by people who don't even know you.
I've learned-
that even when you think you have no more
to give, when a friend cries out to you,
you will find the strength to help.
I've learned-
that credentials on the wall
do not make you a decent human being.
I've learned-
that the people you care about most in life
are taken from you too soon.

Re: ThornsonMyRoses Hi

2007-09-29 11:58:11

In a message dated 07/24/2000 10:44:11 Mountain Daylight Time,
deanna@... writes:
<<
I am new and am finally going to introduce myself.
My name is Deanna and I am single, 42, and live alone. No kids
either but I love children so I get to be "aunt" to my friend's
kids. I also help out with a couple from church who have one year
old quadruplet sons. Very fun but very tiring! I have fibromyalgia,
asthma, depression and probably some form of inflammatory arthritis
(the doctors can't decide). I am on disability but have been a
teacher and librarian.
Living alone can get pretty lonely but I pray God does have a purpose
for my life. I love books, plants, )chocolate!) and laughter and
friends.
I'm very glad to join all of you.
Deanna
Welcome, Deanna.
I can imagine that living alone can be hard at times, especially when
you are also burdened with disease and pain. You came to the right group
though. I hope that you will find friendship and comfort in this group and
hopefully we will make your time alone much nicer. I pray that God will let
you know your purpose soon, as he does have one for you. I have found that
when you thank God for your miseries too, he blesses you in ways that you
could never imagine. I know in my case, my heart was so opened up from
losing all my muscles at one time due to medication that I was on, and seeing
what physically challenged people went through. Through my depression and
this happening, he opened my heart to so many things, and now I just want to
share his love and glory with others. I also learned that I was not in
control and when I gave him the control, so much peace came into my heart.
I don't have the muscle problem now, praise the Lord, but I will never forget
what I went through. I have some muscle pain everyday, but don't know yet
what it is from and still fight depression with medication, but he has given
me a purpose in life and I draw my strength from that. He has helped me
comfort others in many ways, and has given me the gift of crafting and
designing. I had no artistic talent what so ever until he showed my that I
can pursue my dream and design craft things. That is my focus now and he
gives me sayings to use in my designs. It is awesome in the way he works.
Bless you and welcome again to this group. Please find peace and comfort
here.
In His Love,
Dorothy in Colorado

Re: Trouble healing

2007-09-29 08:17:12

If I lean ovcer slightly my unit pokes out. You can feel and see
the upper corners. They tell me sometimes they anchor them. My
shifts upward a lot causing severe pain from inflamation..
Mary-Anne

Dear Lord

2007-09-29 05:13:41

Subject: Dear_Lord_100405[1]

[INLINE]

Dear Lord,

So far today, am I doing all right?

I have not gossiped, lost my temper, been greedy, grumpy, nasty, selfish, or self-indulgent. I have not wined, complained, cursed, or eaten any chocolate. I have charged nothing on my credit card.

BUT, I will be getting out of bed in a minute, and I think that I will really need your help then.

Hi

2007-09-28 17:05:48

Hello to everyone,
I am new and am finally going to introduce myself.
My name is Deanna and I am single, 42, and live alone. No kids
either but I love children so I get to be "aunt" to my friend's
kids. I also help out with a couple from church who have one year
old quadruplet sons. Very fun but very tiring! I have fibromyalgia,
asthma, depression and probably some form of inflammatory arthritis
(the doctors can't decide). I am on disability but have been a
teacher and librarian.
Living alone can get pretty lonely but I pray God does have a purpose
for my life. I love books, plants, )chocolate!) and laughter and
friends.
I'm very glad to join all of you.
Deanna

Hello to all:

2007-09-28 15:41:48

JC:
Thanks for your message and support.
I hope your doctors appointment went well. I do agree that this does cause such
mental strain on a person. It's frustrating.
Unfortunately, the new medication I am on doesn't seem to be doing anything for
me. I have to get in touch with my doctor to see what next.
On the other side of things -- a happier note -- I went for my two year check up
for my spinal fusion (with hardware) and I have a clean bill of health as far as
that goes. I just have to keep an eye on the disc above the fusion in case it
does move or do anything. I have to go back to see him in THREE years. I
really loved this doctor. I wish he did stimulators. He did feel that the new
medication wouldn't work. He said that the stimulator is probably the only way
to go since nothing else has worked. I have to keep him informed.
Well I hope everyone is enjoying summer and is feeling as well as can be
expected.
Thanks for your support!
Denise

Re: Hello to all:

2007-09-28 08:50:31

Denise, Im sorry the nerve root block didnt take. It
sure takes a toll on a persons mental state to get
hopeful, then to just be disappointed. Keep your head
up. Ill keep my fingers crossed that this new med
gives you some relief. The med doesnt sound familiar.
I see my doc on monday. I havent seen him for a few
months. Ive been seeing the shrink that wont green
light the stim. surgery because Im angry & depressed.
Go figure! Ive been on crutches since the 20th & have
3 weeks left from knee surgery which isnt helping
either! Ive only been outta my house about 6 times
since. I cant wait to be able to come& go as I please.
HUGS & POSITIVE THOUGHTS TO ALL. =)

Good Morning Sisters!

2007-09-28 05:46:15

I just wanted to take a moment to say hello, we have been so very
busy around here that I haven't had much time to post or check my
email. Last Wednesday my dh and I met our foster/preadoptive baby
for the first time. It was so exciting, yet such an anxious time!
Her current foster mom is having a hard time with saying goodbye to
her; and it was so easy to see why. She is a beautiful 7 month old
little girl who has already had much trauma in her very young life.
We anticipate her coming home next Monday and I am so excited,
nervous, anxious, happy, etc. all at the same time!! (Must be the
hormones of an "expectant" mother, hum? hehehe) Please keep us in
your prayers as this will be a stressful adjustment for myself, my
dh, and my children. I also pray that my lupus and fibro. don't
flare up. I am finally feeling well after thast last very long flare
up. I have been able to wean off the prednisone for the time being
and the plaquenil is kicking in. (Praise the Lord!).
It has been quiet around here with Christy on vacation! Christy
we miss you so much! I have been praying that you and your family
are enjoying your vacation; I pray you are relatively comfortable!
It has been a pretty nice week here in New England with low humidity,
perhaps it is that way for you in Kansas as well?
Zachary is completely better and is at baseball camp as I write.
Ny daughter slept over a friends house last night so it is so quiet
around here! (I know I should enjoy it...it won't last for long!).
I think I will go and spend some time with the Lord. I have been
reading Isaiah and find it so difficult. What are you ladies doing
for Bible study over the summer? Any recommendations? I just
finished the Excellent Wife, a WONDERFUL study for any one desiring
to become that Proverbs 31 wife. (An eye opener for me!)
Take care all, I pray that my sisters are comfortable today, In
His love and service, Diane

The Stethoscope

2007-09-27 15:59:46

The Stethoscope
A nurse on the pediatric ward before listening to the
little ones' chests would plug the stethoscope into
the
children's ears and let them listen to their own
hearts. Their eyes would always light up with awe.
But she never got a response to equal four year old
David's. Gently he tucked the stethoscope in his ears
and place the disk over his heart. "Listen," she
said, "What do you suppose that is?" He drew his
eyebrows together in a puzzle line and looked up
as if lost in the mystery of the strange
tap-tap-tapping deep in his chest. Then his face
broke out in a wondrous grin. Is that Jesus
knocking?" he asked.

Re: [lifelineforrsders] Welcome Carrie, TY Girls for your Love &amp; Support

2007-09-27 15:52:20

Hi Carrie,

I know that you will enjoy it here, its a great group. My name is Pat and I have had RSD for 8yrs from a neck surgery.

Hugs Pat CA

Hello to all -

2007-09-27 08:14:01

Hi,
Sorry I haven't been on lately. I was able to get to see another surgeon to
inquire about the stimulator. Talk about frustrating... having a surgery all
planned and mentally prepared for it and the surgeon leaves the state. My new
surgeon is really considerate and understands my situation. He does not want to
rush me into the stimulator. He tried a nerve root block in June which did not
help. In fact, I have been in worse pain since it.
I went to see him again yesterday to discuss the how the block worked or didn't.
He would like to have me start on pain meds and see if that helps instead of
rushing to do the implants. Has anyone heard of Tramadol? It's nothing I have
heard of, I just started it today.
Well, I will keep everyone informed as to my progress. I truly hope those that
have under gone treatment or will be that it improves your quality of life.
Hugs to all. Thanks for the support.
Denise - Massachusetts.
Make it a GREAT Day!
Denise

Welcome Carrie, TY Girls for your Love &amp; Support

2007-09-27 01:20:29

First off, this has been a very difficult week already. TY Girls for
all your love, caring and support. It means the world to me. I have
been very stressed and more sad than anything else. We all come here to
lift our spirits, not to be depressed and saddened. As Lynn said we
will get through this, we have gone through much worse.A warm welcome
to you Carrie we are so happy to have you in our little family, please
feel free to jump right in with both feet, we love to have fun, tell
about our famlies, mature jokes for the immuture.I think once you get
to know us you will love it here. Lynn I love your points to ponder.
What a wonderful idea. We can exercise those brain muscles. I love it,
ty for doing that. My hubby, Mike is going on business travel with the
Laboratory and I am going with him. We will be gome for a couple weeks.
I will join the trip when I return. Girls, don't get too crazy without
me on your trip, wait for me, I left the pies at Betty's house and I am
calling her now to tell her the change in plans. Be safe and have fun,
fun,fun. Love to all my Sisters. Lynda

Re: [Stimulator] it's been a while since I have been on here

2007-09-26 18:19:27

Holly,
Sorry to hear of all your troubles of late. I hope your Grandfather and mother
are improving!
Congratulations on your anniversary with the stimulator.
I have to say that I agree and would also like to extend gratitude to Jeff for
all that he has done. He has been a big help to me with all my questions and so
forth.
Best wishes to you Holly and all that are here in the group!!!
Denise - Massachusetts

new pages to see, I really like the second one, not the first one

2007-09-26 10:31:58

Bugged!
http://www.justsaywow.com/bugged.htm
<A HREF="http://www.justsaywow.com/bugged.htm"
Moving Thoughts
http://www.justsaywow.com/movingthoughts.htm
<A HREF="http://www.justsaywow.com/movingthoughts.htm"

Re: [lifelineforrsders] Point To Ponder 10-5-05

2007-09-26 09:19:30

WOW!! thought it was just me....LOL
Thanks Lynn,these are neat! Keep 'em coming....
luv ya
Sandy

cartoon for especially for cat lovers

2007-09-26 02:06:25

http://www.arcamax.com/ezines/hc/07/nc000720.htm
For AOL Members:
<A HREF="http://www.arcamax.com/ezines/hc/07/nc000720.htm"
20th_2000</A

it's been a while since I have been on here

2007-09-25 23:33:18

Dear Stimulator Group,
Hi I hope that all of you are having success with your stimulators and
pumps. I am going on a year and three months still working great.
However I would recommend being careful with the exercising I had torn
some scar tissue from doing sit ups on an exercise ball that pain
isn't great but getting better than it was a few weeks ago.
I am sorry that I haven't been on I will try to get on and read more I
do care about all of you. I have been taking care of my grandpa since
his heart surgeries this summer and found out that my mom has cancer
so life has been crazy. Though I am starting school in the fall so I
am excited and have been dating which all of those things seemed
impossible without the stimulator. I am thankful for having it every
day. I still battle with shoulder's having problems and avoiding
surgery as much as possible on one of them.
Please let me know if there is anything that I can do for you all. I
know how much this support group has helped me as well as others. If

[lifelineforrsders] Welcome

2007-09-25 12:58:55

Hi Carrie
<and Lynn
NY <well teen yrs anyhow,earlier I was on Long Island.
luv
Sandy

getting tired

2007-09-25 04:45:01

There is nothing that makes me more tired than "doing
nothing" - my husband thinks that having a manual job
is more tiring than a desk job - but is learning
otherwise.
Just rest and trust in God. I know it is easy to say,
and I know the kind of headache that strikes from
"doing nothing" - hang in there - Jesus is at the
other end of the rope!
=====
Joanne P. Eva \0/\0/\0/ <
YOUR VISION IS YOUR ONLY LIMITATION
"Preach the gospel at all times - If necessary use words." -St. Francis of
Assissi
Alt. e-mail address: jeva_nehemiah@...
Website: http://www.heartwarmers4u.com/members?christiangirl

spinal injections

2007-09-24 22:21:51

Hi, I am going to be getting an injection end of August for my back pain and
was wanting to know if anyone else has had that done and can you tell me
anything about it if so. I will be going to Pittsburgh to get it done.
Nothing else seems to help the pain. All I know is that it is a spinal
injection.
Thanks for any help.
Pam 34 w/SB and tethered cord
_ptshadow@..._ (mailto:ptshadow@...)

Re: ThornsonMyRoses you need to check this out

2007-09-24 16:13:11

I really loved this, it's so cute.
Love in Christ,
Jayne

Defination of a teenager

2007-09-24 10:54:08

Subject: Definition of a teenager
This is hilarious!!!
Teenager (noun)

Point To Ponder 10-5-05

2007-09-24 07:30:54

Today's PTP:
Is it any wonder that "time flies" when you can't even remember what
day it is?
Love, hugs and kisses,
Lynn

Re: [Stimulator] Digest Number 220

2007-09-24 07:01:24

Denise, Wow It Seems You Have Been Thru The Ringer.
When Your Dr Said He(or She) Would Dictate A Letter.
What He/she Meant Was Basically What He/she Will Do Is
Get A Review Of Your Appt To Your Pain Doc To Let Him
Know What He Thinks. As For My Injury, The Summer I
Graduated From High School I Was Working For A Nursing
Home. I Was A CNA-certified Nursing As.basically I Had
A Work Related Injury That Was Treated As A Deep
Muscle Strain. Total BS. But I Will Get Into That
Later When I Have More Time. In 2000 I Had A Lami
L4-5. Over The Last 7years Ive Had So Many Epis&blocks
That I Cant Have Anymore. This Feb. I Hound The Best
Doc! The Next Day I Went & Had A Facet Injection. It
Didnt Take But I Was So Impressed With My Doc. He
Wasnt Just Telling Me To Deal & Loading Me Up On
Oxycontin. This Is My Last Option. Ive Also Been Dxed
With Aracnoiditis(sp),failed Back Surg Syndrome,as
Well As A Few Others. I Can Write More When I Can Sit
A Bit Longer. Having A Bad Pain Day Today. J =)

Re: [Stimulator] Question about Phsyc eval.

2007-09-23 19:21:12

J.
I just had my pysc eval yesterday. I also had a nerve root block. The
psychiatrist wasn't very clear as to his conclusion. All he kept saying was
that he will dictate a note... whatever that means. Personally, I don't
understand why they need to ask the questions that they do. DUH to the
doctors... of course we are depressed because of the back issues. They would be
too. I would talk more with your surgeon to see why it matters what the
psychiatrist says.
What is your problem? Meaning that you said it was an accident, what have you
had done so far.
I have had my issues for almost 3 years now. I have permanent nerve damage from
my first surgery (disectomy). I had a spinal fusion a year later with screws,
rods and a stabilizer. I am still struggling with the decision about the
stimulator.
Take care and I hope you can feel even a little better (even if it is
temporary).
Denise - from Mass.

RE: [lifelineforrsders] Welcome

2007-09-23 13:34:07

Carrie,

This is Lynn Scoville, from outside of St. Louis, MO.

I, Too grew up in upstate NY. Corning. Where is your hubby from?

Just got homeand am exhausted so will tell you more about myself later.
[INLINE] , [INLINE] [INLINE] ,& [INLINE] [INLINE] ,
Lynn

you need to check this out

2007-09-23 05:52:59

http://www.amused.com/puppy/

Welcome

2007-09-22 22:48:11

Betty,
I forgot to say I grew up in Phoenix, Az but I now live in Knoxville,
Tn. I have been here for 13 years. My husband, Alan, grew tired of no
trees in Arizona. He grew up in Upstate New York and missed the trees
terribly. So I agreed to move where there were some. I figured he
lived there with me 15 years I could do the same for him. Its nice
here, I liked it enough and agreed to stay. Carrie

Re: [Stimulator] Introduce myself

2007-09-22 19:10:04

Hello Heather and welcome! Your situation sounds a lot like mine. I have had
two surgeries (disectomy and fusion w/hardware). I am still considering the
implants. It's a huge decision that only you can make. I have found the people
in this group are fantastic for information. I learned a lot here. It made me
better prepared with questions for my surgeon.
I just had a nerve root block yesterday. It will take about a week to know if it
worked. I had one in 2003 and it didn't do anything. So we will see.
My concerns about the stimulator is what is the quality of life going to be.
Understanding, there will be restricts to a point... will I be able to do what
I do now without having pain and or will it restrict me. That was the biggest
question. Everyone is different some it works for and some it doesn't. They
can't tell you. One of the ways to find out is to go through the trial.
However, I was told that sometimes the trial goes great and then they put the
unit in and it is not as effective. It's hard to say.
How old are you and what are your symptoms now? When did this start for your?
Take Care and welcome!
Denise - Mass

question

2007-09-22 15:39:21

I am a member of this group. At least that is what it
tells me when I log on to the group site. I have
written two "letters" each time it says it has to be
approved first. I have not seen my "letters" on the
daily digest or the message page. Guess Im wondering
if my approval ever went thru.
Thanks for any help.
J

funny cartoon

2007-09-22 08:26:56

This one reminds me of kids, especially when you are overwhelmed with things
to do.
Dorothy
http://www.arcamax.com/ezines/hc/07/mc000719.htm
For AOL Members:
<A HREF="http://www.arcamax.com/ezines/hc/07/mc000719.htm"
19th_2000</A

fun pages

2007-09-22 08:18:05

Undersea Adventure
http://www.justsaywow.com/undersea/1.htm
<A HREF="http://www.justsaywow.com/undersea/1.htm"
Loved
http://www.justsaywow.com/loved.htm
<A HREF="http://www.justsaywow.com/loved.htm"
I Want You!
http://www.justsaywow.com/iwantyou.htm
<A HREF="http://www.justsaywow.com/iwantyou.htm"
I Resign
http://www.justsaywow.com/resign.htm
<A HREF="http://www.justsaywow.com/resign.htm"
A Cheery Note
http://www.justsaywow.com/cheerynote.htm
<A HREF="http://www.justsaywow.com/cheerynote.htm"
--------

Re: [Stimulator] Trouble healing

2007-09-21 19:53:22

Dave, My husband is also about 12 weeks post op..he didn't
have staples but he seems to be healing poorly also. His is very
close to the skin. Sticks out and he is still very sore. He had to
go get it programmed several times. Then the Medtronics rep tells
us that the leads are probalbly off some because of where the coverage is
He is very disappointed in this. Also we as you just missed the rechargeable
transformer it lasts nine years..So I guess he will have to wait till this
battery runs out and get the other, maybe he is so disgusted with the
surgeon. He put the thing in and wants nothing more to do with us,
he says go to pain management, of course it is nothing that he did..
We are hearing mor and more bad reports of this surgeon, one of the nurses at
my P.C. doc had her neck done by him and she wishes she had not done
it and she said he has the worst bed side manners. He was all I can
help you before the surgery he was great willing to help then he turned
into one big A--hole excuse the language.
I am sorry to hear about your problems..I can't believe the burn from the
staples that is just awful.. Clint didn't have any staples.
I am not sure if he would do it again..
We live in Erie PA...where are you
Sandy
Dave <imdabro@...
Hi all
I am about 12 weeks post-op, and have had a very hard time with my
incision healing. My Dr. gave me post-op instructions to use heat
on my incision, and being rather numb yet, the staples conducted the
heat and I ended up with a 3rd degree burn without feeling a thing.
I may need to have my stimulator repositioned.
The stimulator is very close to my skin. I would have thought it
would have been deeper. With MS I am very unstable on my feet. I
worry about a fall, and a broken devise. I would hope that if it
broke there would be no harmful spillage from it.
Has anyone had this sort of problem?
Also, I got my copy of the insurance payment yesterday. I was
totally shocked at the price. Even though my insurance covered it,
if I would have
known the cost I may have reconsidered. I know I'm only 12 weeks in
to this, and still sore in the rump with my wound. Maybe I'll feel
more positive down the road.
Dave
In Central PA

Carrie

2007-09-21 19:52:50

Hi Carrie,
Welcome to our little family! I'm sooo glad you came. We know each
other from another group but some of the other girls don't know you so
I'm glad that you introduced yourself so well. As it happens, we were
getting ready to go on a trip when the hurricanes hit and it sort of
got postponed a bit so you're in luck! You will get to go on this trip
with us. I'm fixin to get us goin again here real soon. Again, welcome
to the group and get ready to start our trip. They are a little unusual
you know.
Love ya,
Betty

Re: Just thinking

2007-09-21 12:34:42

In a message dated 7/19/00 3:45:56 AM Pacific Daylight Time,
ThankYouJesusforThornsOnMyRoses@egroups.com writes:
<< Funny thing is you wouldn't think I would get tired sitting in a wheelchair
all day.
Jayne,
I usually do try to at least be laying down by 8 or 9 and your right it does
help even if I am not sleeping. I can see how you would still get tired
though since I can sit and crochet all afternoon and be just as exhausted as
if I ran a marathon (like that would ever happen LOL) and dh even will say at
times if I say I am tired even though I did pretty much nothing all day "yea
doing nothing is tiring" he is just kidding but I had to tell him not to joke
like that because I am overly sensitive about my fatigue.
Melanie

Question about Phsyc eval.

2007-09-21 00:44:04

Hi everyone. My name is J.(at least that is what I go by) I have been
a member of this group since April of this year. I have only posted
once, but I am finding I have more and more questions about the whole
SCS. I had my phsyc eval a few weeks ago. Filled out this test on the
computer that I found very boring 500+ questions! So I go back to the
dr to find out what this test says about me. To make a long story
short the questions that I answered got maybe 50% at best correct for
me. I admitted out right to the dr that I am depressed. Hello 7 years
of my life has gone down the tubes all from my injury. Im only 25!
Anyway, this dr "for now" wont reffer me to go ahead with the implant.
He wants me to start therapy and relaxation therapy. I dont understand
this. I do not think I am anymore depressed than anyone else would be
if they were in my shoes.
Has anyone else gone for the phsyc eval and not had the ok for the
implant right away? And if so how long did you have to wait for the
green light to implant.
Thanks,
J

If A Dog Were Your Teacher...

2007-09-20 16:59:56

IF A DOG WERE YOUR TEACHER You would learn stuff like.....
When loved ones come home, always run to greet them.
Never pass up the opportunity to go for a joyride.
Allow the experience of fresh air and the wind in
your face to be pure ecstasy.
When it's in your best interest -- practice obedience.
Let others know when they've invaded your territory.
Take naps and stretch before rising.
Run, romp, and play daily.
Thrive on attention and let people touch you.
Avoid biting, when a simple growl will do.
On warm days, stop to lie on your back on the grass.
On hot days, drink lots of water and lay under a
shady tree.
When you're happy, dance around and wag your entire
body.
No matter how often you're scolded, don't buy into
the guilt thing and pout... run right back and make
friends.
Delight in the simple joy of a long walk.
Eat with gusto and enthusiasm. Stop when you have
had enough.
Be loyal.
Never pretend to be something you're not.
If what you want lies buried, dig until you find it.
When someone is having a bad day, be silent, sit
close by and nuzzle them gently.

Today's Point To Ponder

2007-09-20 13:43:11

Hi All,
If no one minds I thought I would post a "Point to Ponder" each day.
They are never intended to hurt anyones feelings. They will be just
as the name implies, something to think about.....for those times when
our minds go blank.
PTP for October 4th
Some people welcome advice as long as it doesn't interfere with their
plans.
Love, hugs and kisses,
Lynn

Trouble healing

2007-09-20 11:45:23

Hi all
I am about 12 weeks post-op, and have had a very hard time with my
incision healing. My Dr. gave me post-op instructions to use heat
on my incision, and being rather numb yet, the staples conducted the
heat and I ended up with a 3rd degree burn without feeling a thing.
I may need to have my stimulator repositioned.
The stimulator is very close to my skin. I would have thought it
would have been deeper. With MS I am very unstable on my feet. I
worry about a fall, and a broken devise. I would hope that if it
broke there would be no harmful spillage from it.
Has anyone had this sort of problem?
Also, I got my copy of the insurance payment yesterday. I was
totally shocked at the price. Even though my insurance covered it,
if I would have
known the cost I may have reconsidered. I know I'm only 12 weeks in
to this, and still sore in the rump with my wound. Maybe I'll feel
more positive down the road.
Dave
In Central PA

Introduce myself

2007-09-20 07:03:58

Hello all! My name is Heather and I just joined.A little bit of
background:I hurt my back several years agon tripping over one of my
sons toys.Since then I have had a laminectomy and a 2 level
fusion.Plus I dont know how many injections, steriods and
stuff.Nothing has worked for any length of time.Well,I went to the dr
last week and he suggested the spine stimulator thingy.Says I have
nerve damage in my back,poss due to all the surgeries,and that nothing
else can be done for me.He sent me home with a whole bunch of info and
told me to think about it.So,here I am.I would love any info or input
from anyone.Im prob gonna go ahead and schedule it,but I would love to
learn all I can.

poor little Rocky

2007-09-20 00:56:43

We need some prayers today for my little Rocky. He woke up this morning with
a swollen cheek and he looks like a little chipmonk gathering nuts for the
winter. That is how bad he looks. His little eye is even narrowed by this
swelling. I took him into the vet and he took one look at him and said it
was most likely an abcessed tooth.
He checked him all out and sure enough that is what is wrong with him. He
looks so pathetic.
I have to give him a weeks worth of antibiotics to get the swelling down, and
then next Tuesday, he goes in to get his tooth pulled and the rest of his
teeth cleaned. The poor little guy. He must be in pain, but how can they
tell us? He also has a fever and its 90 degrees out to top it off. He is
miserable.
Anyways, please say some prayers for him.
thanks,
dorothy
PS. For those who don't know, Rocky is my little Pekingese dog.

Re: [Stimulator] Nerve Block

2007-09-19 15:09:57

Hi Denise,
I had 2 nerve block in the back of my neck........did nothing for me. Then I
had 2 sympathectic blocks....1 lasted 2 days, 2nd lasted 6 days and that's why
they ended up cutting the sypathecic nerve......which made my RSD worse and I'm
dealing with some unpleasant after effects to this day (done 1/04).
The psych evaluation I had was overwhelming. They were count from 100
backwards, recall what you saw, stuff like that. And since I was on meds that
interfere with you memory, it was a nightmare. I was so embarrassed. Then
when he play the "deck of cards of hands" I didn't catch on to things until he
showed a picture of what my hands do and I just cried. Never realized how much
anger and frustration I had built up throughout my inital treatments to the
present.
I saw a new neurosurgeon, who hasn't left me with any good options. I think I'm
going for the removal of the stimulator and hope that it isn't as painful as it
was going in!!! I'm back to square one.....this doctor did tell me that he's
the troubleshooter of the group and feels he can get to the problem that's
causing the RSD. But, since it's gone on for so long, pain is going to be an
every day thing for me from now on, they can only try to make me comfortable.
Good LUCK!!! And I hope and pray things go your way!!!! Keep us posted!
Claudia
Denise Plant <purplebutterfly1@...
I hope everyone is doing well today.
I am scheduled to have a nerve root block tomorrow, I am wondering if anyone was
ever successful with one? If so, what did it do for you and how long did it
last? How do you feel after and what are the side effects.
I had one done in 2003 but it didn't do anything.
Also, can anyone tell me about the Psyche evaluation we have to have prior to
getting the stimulator.
Thanks for your help.
Denise - Mass
Make it a GREAT Day!
Denise

Re: [lifelineforrsders] BETTY/Sandy

2007-09-19 09:58:51

Betty
Oh yeah,done the managing of a resturaunt before,somehow thought the truck stop
would be better....easier somehow....NOT!! I have to bite my tongue many many
times over during one shift,but yes there are times I just let it fly-you can
only take so much abuse....and as ya know,when pain levels are high,tolerance is
lower anyhow.I am trying to hold on at least 4 to 6 more weeks so I can move,and
have some fall back money.
I have been fortunate w/ medical insurance and they are covering pain meds for
legs,altho the right leg is getting worse and seems the knee replacement cant be
held off much more,and if worse comes to worse they have promised to hold my job
while I have surgery and recoup<barring I dont end up letting it go and find
another
well off and running as usual,love and prayers to you and Jim!
Luv ya
Sandy

Re: ThornsonMyRoses neat poem

2007-09-18 21:20:32

In a message dated 7/14/00 1:50:35 PM Central Daylight Time, CraftyDr@...
writes:
<< tt
<A HREF="http://cybergreetings.bla-bla.com/beautiful.htm"
gs.bla-bla.com/beautiful.htm</A
I consider all of my online Buds to be my friends and do not know what i
would do without them. God Bless ya'll.
Jan

Re: ThornsonMyRoses this is so neat, a letter from Jesus

2007-09-18 18:49:05

This is a beautiful site. T^hanks and God Bless ya'll.
Jan

Nerve Block

2007-09-18 18:37:18

Hi Group.
I hope everyone is doing well today.
I am scheduled to have a nerve root block tomorrow, I am wondering if anyone was
ever successful with one? If so, what did it do for you and how long did it
last? How do you feel after and what are the side effects.
I had one done in 2003 but it didn't do anything.
Also, can anyone tell me about the Psyche evaluation we have to have prior to
getting the stimulator.
Thanks for your help.
Denise - Mass
Make it a GREAT Day!
Denise

Re: [lifelineforrsders] Read This, It Will Get You Started

2007-09-18 09:24:16

AMEN!! Thanks Lynda....needed that today....getting really close to walking off
my job thanks to fools attacking me like I created fuel shortage or make the
price raise etc...and really,leg is not holding up well now that its getting
cooler.....so anthing to keep me inspired helps....I almost have enough money to
move now....goal is to be in new house by Christmas....God willing...
luv ya sis
Sandy

a sympathectomy

2007-09-18 07:28:05

Thanks for the info Karel. I am scheduled to have a nerve root Block on Tuesday
the 21st. We'll see if that works. If not, then I will do the trial.
I hope you feel better.
Denise

Re: ThornsonMyRoses cartoon, a cute one

2007-09-17 21:29:00

This applies to me wholly. I have a part basset and part weenie dog and all
he does is chew things up and sleep and eat. he would probably just sit and
watch while they toted all my stuff off. I have to put him in his kennel at
night when I go to bed cause he is tearing up the rug in the bath area of the
trlr. BAD DOG Huh? (hehehe). I love my little puppy. God Bless ya'll.
Jan

Re: [lifelineforrsders] Appology To All My Sisters/ Re. Debbie

2007-09-17 10:16:31

Lynda,please read my post to Betty,same reply goes for this too,I love you both
dearly and I think ya all did great catching situation and handling it
immediately - you know I understand,thanks to my 2 groups....
soooo...lets move on and catch up on where we all where o n our
trip....personally...I am sick of eating pie and pretending I dont see Betty
naked in the bushes....
((((Lynda))))
luv ya
Sandy

Re: a sympathectomy

2007-09-17 10:10:39

---A sympathectomy is when they take out the nerve surgically. I have
put my stimulator on hold now because the last surgeon was way too
anxious to put it in and that scared me. Right now I have postphoned
it until me and the pain dr can see if we can come up with a better
plan. I was put on Methadone and it is making a big difference in my
pain. Good luck in finding someone to have the first trial with
Denise, Karel

Re: ThornsonMyRoses check out colors of Love

2007-09-17 08:36:28

This is a totally awesome site. God Bless Ya'll.
Jan

Re: [lifelineforrsders] Everyone

2007-09-16 23:20:49

Betty
First,sorry I havent been here much,not sure how a fuel shortage has created
more hours<and believe me STRESS
best I can,but usually so tired I read most recent posts. I did see the post you
are refering too and having disbanded my own group due to chronic attacks like
that to my members or me and my co owner,please do not feel you owe an
apology<nor Lynda
happen,we try to help,but we can't predict how people will turn out to be,all we
can do is pray the choices we make are right and our "family" here can trust our
judgement on the decisions we have to make to avoid further problems.
You have been there many times thru some horrific events in my life and your
love and support has been an incredible source of inspiration to me and immence
help to me,I am always here for you should you need,and I thank you for this
group and your work to find a domain that we could all use to support one
another!
with that said....off to get ready for work...will update hopefully tomorrow
being I have day off....altho usually I end up catching up on stuff<darn type A
personality!!!!
Luv ya
Sandy

Re: [Stimulator] another question

2007-09-16 14:32:15

I have had 2 explants. The recovery from the surgery
was unlike the implant. I did, however, have some
other complications not related to the stimulator -
but to to other medical conditions I have. Please
email me with any specific questions.
Anne in TX

Re: ThornsonMyRoses With God's Help

2007-09-16 11:01:21

That was just to cute.
Jan

cartoon, a cute one

2007-09-16 02:09:58

http://www.arcamax.com/ezines/hc/07/kc000717.htm
For AOL Members:
<A HREF="http://www.arcamax.com/ezines/hc/07/kc000717.htm"
17th_2000</A

Read This, It Will Get You Started

2007-09-15 23:31:16

[INLINE]

Rules from God
1. Wake Up !! [INLINE]
Decide to have a good day.
"Today is the day the Lord hath made;
let us rejoice and be glad in it."
Psalms 118:24
2. Dress Up !! [INLINE]
The best way to dress up is to put on a smile.
A smile is an inexpensive way to improve your looks.
"The Lord does not look at the things man looks at.
Man looks at outward appearance;
but the Lord looks at the heart."
I Samuel 16:7
3. Shut Up!! [INLINE]
Say nice things and learn to listen.
God gave us two ears and one mouth, so He must have meant
for us to do twice as much listening as talking.
"He who guards his lips guards his soul."
Proverbs 13:3
4. Stand Up!!...
For what you believe in.
Stand for something or you will fall for anything..
"Let us not be weary in doing good; for at the proper time,
we will reap a harvest if we do not give up.
Therefore, as we have opportunity, let us do good..."
Galatians 6:9-10
5. Look Up !!... [INLINE]
To the Lord.
"I can do everything through Christ who strengthens me."
Philippians 4:13
6. Reach Up !!... [INLINE]
For something higher.
"Trust in the Lord with all your heart,
and lean not unto your own understanding.
In all your ways, acknowledge Him,
and He will direct your path."
Proverbs 3:5-6
7. Lift Up !!... [INLINE]
Your Prayers.
"Do not worry about anything;
instead PRAY ABOUT
EVERYTHING."
Philippians 4:6
Send this to the people you care about.
I thought this was mighty special, just like you.
Pass this on and brighten someone's day, and remember:
God answers Knee-Mail.
[INLINE]

http://www.incredimail.com/index.asp?id=54475

another question

2007-09-15 11:58:36

Has anyone ever had this stimulator removed??? If so, is that recovery
as bad as the one when they put it in???? I saw my 3rd neurosurgeon
today and he gave me the following options......Remove the stimulator
since it doesn't seem to be helping me and then he can get a MRI of my
thoracic area.........or leave it in and suffer.........OR they might
need to do another sympathectomy!!!!!!! I'm just beside myself. He
told me to think things over and let him know what I want him to do.
I have to tell you guys, I'm not sure when I'm going to "wake up" from
this nightmare here!
As always, I hope everyone's pain is a little more bareable as time
goes by!!!
Claudia

Appology To All My Sisters/ Re. Debbie

2007-09-15 10:46:31

It is with great regret and I appologize to every person in this group.
I am so sorry I lacked the patience and knowledge that has now come to
my attention. I have found out that while it is true, what was said,
it was NOT said by any person in this group. Nor was ANY information
shared with or by any person in this group, as was hinted to. Her
motives are completely unknown. We have been nothing but kind, loving,
and generous of spirit to our friend Debbie. It is felt at this time
for the sake of the group, that she be dropped from the membership. We
wish her the best and that God will Bless her richly.
Lynda
co-owner

Thanks......

2007-09-15 07:24:56

Hi All,
Well I guess basically the doctors can only try to help us. It gets
really frustrating. If they push me for the pump Wed, I guess I'll
give them the go ahead. My pain levels are off the charts!
Too bad doctors don't see what people like us have to live with on a
day to day basis. It kills me to pick up my grand daughter (1) but I
can't bare the thoughts of not holding her. Someday she won't want to
be held. I missed my son's high school graduation, etc.
I wish everyone strength within and less painful days.
Claudia

check out colors of Love

2007-09-14 16:11:49

Subject: Check out @---
<A HREF="http://members.aol.com/MelloStars/ColorOfLove.index.html"
here: @---

Re: [lifelineforrsders] All Members

2007-09-14 10:03:51

DITO, LYNDA- co-owner-or maybe this person would like to be dismissed from the group for breaking the number 1 rule of this group. What is said in the group stays in the group or your out the door and don't let it hit your backside on the way out!!! What a huge dissappointment to me personally that someone in this group

would do such a mean, hateful thing. Whoever you are, and I do know, I hope you drop out on your own, you do not deserve our love or trust. Shame on you.....

Re: [lifelineforrsders] Anniversary/From Lynn

2007-09-14 04:49:51

Lynda,

I just noticed that the word "human" is hu-man. If we, women, truly felt hu-man it might mean that we sit around in our underwear, scratching various places...best left unexplored, belching and asking: "Is there anything to eat in this house?"! Just though I would toss that out as today's "Point To Ponder".

[INLINE] , [INLINE] [INLINE] ,& [INLINE] [INLINE] ,
Lynn, feeling less than hu-man, but more "I am woman, hear me roar!"

Re: [Stimulator] Anyone with the morphine pump????

2007-09-13 21:32:09

Claudia,
Sorry to hear about your new problems. I hope that you get some relief soon.
Take care of yourself and stay positive.
Denise

RE: [lifelineforrsders] No More Updates/from Lynn

2007-09-13 17:43:22

Debbie,

I can not fathom anyone in this group telling you such a thing! I, for one am deeply sorry to hear about it and wish I could take back someone else's hurtful words.

Why don't you let Betty know, in a private message, who it was and she can deal with them, as she is the manager.

It is upsetting to think that someone in the group would be insensitive to others pain. Heaven only knows, all of us do our share of B****ING & COMPLAINING, but that is real life.

[INLINE] , [INLINE] [INLINE] ,& [INLINE] [INLINE] ,
Lynn

Everyone

2007-09-13 12:06:00

Good Morning Everyone!
I assume that you have all read Debbie's post this morning. To say that
I'm upset about someone in this group privately emailing her and
telling Debbie what she can and can not say in her posts is a major
understatement! Unless you are a manager or the owner, you do NOT have
the right to dictate to any other member of the group. You can write to
me or Lynda and state your complaint but that's it!!!! Debbie has been
through some very difficult times and can vent here as she pleases. If
you don't want to read her posts then delete them or feel free to 86
yourself from this group. This is NOT the first time that I have been
told of such a thing going on but this had better be the last time or I
will disband this group and start up another one elsewhere. It's hard
for me to believe that one of you is this selfish but you need to grow
up and realise that the world is NOT all about you. It's about us and
so is this group. We share the good and the bad here and if you don't
want that then perhaps you need to find people who think like you do.
Betty (Owner of this Group)

Anyone with the morphine pump????

2007-09-13 11:11:57

Hi All,
I've had a lot going on since I was last on here. Was sent back to
work in Jan....pulled out the end of April. I couldn't make a 40
hour week and I'd leave work in soooo much pain. Well, now I've
been told my c/5 and c/6 have collasped.....no doctors are willing
to go in to reconstruct. I've consulted with another neurosurgeon
and he is referring me to his associate that knows the stimulator
inside and out. I told them that my pain doctor adjusted and I get
the stimulation to my fingertips.......it's now the neck pain and
loss of use of my left hand by the afternoon. So........this doctor
I am to see next week is going to discuss the morphine implant with
me. I'v lost count of how many adjustments I have had to this!
Anyone here able to tell me what this is like, how it is to recover
and whether it helps them?????? I just want to go back to
work.....If it enables me to move my head and fingers, I'm all for
it! Most of the doctors are just at the point of telling me...."you
have RSD, we can't guantee you anything and don't know how to help
you" Not what I want to hear!!!!!
Hope you all have been doing well and painfree!
Claudia

Re: [Stimulator] checking in

2007-09-13 05:14:15

WOW sorry to hear about your problems. I hope you will soon be feeling better.
Where is the battery located for you? Is it in the front or in the "love
handles"?
Denise

No More Updates or Complaining From Me Ever Again Sorry

2007-09-13 02:33:03

It has been said to me in a private email that I complain too much and that I need to get my priorities straight. I was told that to stop complaining or stop emailing. So no more from me on my problems ever again. Please accep[t my sincerest of apologies if you have been affected by my complaining. I have no where else to go to vent and have no one here other than my husband who is not much help as he too is Disabled and in his own pain. Again So Sorry I offended anyone.

Sincerely,

Debbie

Re: ThornsonMyRoses Just thinking

2007-09-12 20:52:41

I do know what you mean about the fatigue, Melanie. I have fibro. and lupus
and some days I am so fatigued that it actually hurts! I too find I am
totally washed out in the late afternoon but find myself wired and unable to
sleep in the evening. I have learned to listen to my body...if I need a nap
I need a nap and I no longer feel bad about it. I simply must rest when my
body is screaming to stop!! I am blessed that my dh and children are so
understanding. My children are ages 6 and 10 and they are use to mommy
needing "time out". I am very busy witht them and their various activities
(camp, soccer, baseball, etc.) so they know if I don't rest I am unable to do
these things with them. Each afternoon we all take an hour to rest/nap. I
shut the phone off and pull the shades down. (I am suppose to be doing that
right now...but instead hopped on the computer(-: lol). When I know I cannot
rest/nap I pray "Jesus Help me!!" Prayer is so powerful and it does help me
to know I have a Lord and Savior who hears my plea and cares.
I wanted to update everyone on my son Zachary. it has been a week
since he became ill and his fever broke Friday, Praise the Lord! His
headaches have also subsided and he is feeling better. Thank you to all who
prayed for my precious son and who took the time to write to me personally.
it meant so much to me. Zachary also enjoyed seeing all the emails from
ladies telling us they were praying for him.
I also have some good news to share with everyone...and another prasyer
request as well(-: Last week we received a call from our social worker with
DSS. My dh and I have been in the process of trying to adopt another child
since my hysterectomy three years ago. ( We really wanted another baby but
the surgery was unavoidable.) Despite bieng told we would NEVER be able to
adopt a baby I ,like Hannah, called out to the Lord and prayed He would some
how, some way bring a baby into our lives. To make a long story short a baby
is available for us to adopt!!!! She is 7 months old and we will be meeting
her Wednesday and, The Lord willing, will bring her home in a couple of
weeks! I have received pictures of her in the mail and she is beautifuL
(what baby isn't?!). Anyway please pray for us during this exciting but
anxious time. The baby is not yet legally free but she is on the "adoption
track".Thank you all so much!
I pray for all of you daily, In His love and service, Diane
But those who wait upon the Lord shall renew their strength; they shall mount
up with wings like eagles, they shall run and not be weary, they shall walk
and not faint. Isaiah 40:31

Re: [Stimulator] PS

2007-09-12 07:05:43

Awesome! where are you located? How long have you had your implants.

Just thinking

2007-09-12 05:10:50

I was thinking last night and was wondering if anyone else struggled with the
same things. I have realized that with FMS I can deal with the daily pain
and sorness, its the fatigue that really gets me down. Does anyone else feel
that way? If only I wasnt so tired all the time! I have become very good at
working through the headaches, the sore necks, the backaches but when it
comes to being so tired I litterally cant keep my eyes open how do you fight
that? I get so tired I just cant force myself to move another step, and if
it hits during nap time its fine I can lay down but when it doesnt its so
hard. I find that my worst time of the day is from about 4pm to 7pm which is
the busiest time of day for a Mom but the kicker is that I then get a second
wind and cant go to bed early and rest. I spend all dinner time thinking if
I just make it till 8 (bedtime for the kids) I will go to bed and really get
a good nights sleep but lo and behold its 8 and I am wide awake! Its really
frustrating and I just thought sharing it would help.
Thanks for listening
Melanie

Going To Protest

2007-09-11 19:06:36

Here we are still no power and all the officials I speak to not one can answer a simple question. The other part is those that do answer a question may not be telling you the correct info. or the info. they tell you no one else knows of it as yet. Never in all my years I have I ever seen such a screwed up situation. Makes me scared to think of what would happen in case of a Terror attack here. I guess they could all stand around and point fingers at each other while those affected sit and wait and try to survive as best they can in what ever the current weather conditions are. Sad that America has come to this and unless you have money you are out of luck all the way around. We are turning the generator on and off to conserve what gas we have left as when this is gone it is gone we are flat broke unable to buy anymore gas at all. I was told a few days back by my State Senator's office we were going to be declared a disaster county just waiting on the paperwork.
yesterday I was told the 1st time I called the loacl Emergency Mgmt. office, we were declared so I called FEMA, and RED Cross they knew nothing of it. Then I called Emergency Mgmt. back and they tell me we are just waiting on President Bush to sign it. This morning I am told we are signed and good to go. I called FEMA and RED Cross back, they know nothing of it. So back to square one again. Who knows what, is my question and how long does it take all to know the same thing? I mean have they not heard of telephone, cell phone, and faxes? Then I had been told the other day to go ahead and put in my FEMA application so I did as it would finally let me. This morning it told me it had expired or I had entered invalid info. So I reapplied and it told me I could not use the same user ID as it was already being used, LOL So I now have it appears 2 FEMA applications but when I try to look back at each one of them it tells me expired on both now. This is so confusing and
such a run around. This is our Federal Govt. hard at play I guess as they surely are not working. Maybe by the time they get the power back on FEMA and the Red Cross will have heard of this County and we may get to apply or else they will say you no longer have a need. I am told that FEMA will direct deposit $2000 plus reimburse certain things and Red Cross for 2 people will mail or Western Union $665. to us. Now the problem is how do I get them to see us here so we can get on the road to recovery too? All I know is what the State tells us and the Local Govt. then these 2 agencies are none of them the same. A shower is to die for right now or a good down pour one. I am going to the Fire Dept. today and get water a few times in my jugs so I can shower by the cup full LOL. We got to do something we stink bad now been a week since yesterday since we had a shower. Last night was a real interesting night. We turn the generator off at night all night and with the windows
open you can hear all the coyotes and critters of the wild. Forrest pushes out the screen and sneaks out. Mike gets up gets him back in the house and darn if he does not do it again. Finally I think we were both too dead asleep to hear him the last time as he was outside this morning when I went to the door to let them out. Also does not help the nuts who lease the 195 acres next to us that do not live there it is just for hunting let the tracking hounds out the past several nights to run fox. What a rude thing for them to do as they leave after they let them out and come back the next day to feed them and maybe pin them up in the kennels maybe not. So we get to hear these hounds howling and doing their hound noises all night long. It is not near as bad but still bad when the power is on and the windows are down. When the power is off and the windows are open OMG too loud to sleep, not to mention then we have to deal with our dogs barking inside the house. I am
tired of house camping it is time to get power back on and get back to being people again. Will try to check back later again must go get water, food and ice again. If this keep up to much more the care will be empty too.

Debbie

RE: [lifelineforrsders] Anniversary/Lynn

2007-09-11 15:30:04

Betty,

I'm with you, all of the way. The 12th will be my 6th anniversary. (Whoopie Kio Kia!)

I, too have been dx with fibro, in April or May, can't remember just when and now, it seems that I have sleep apnea and desat to 80% when I have the apneic events. I haven't heard from my doc about it, yet.

I have had to stop my pain med as it was causing headaches and nausea! It didn't help if I ate something when I took it or not, so I just tough it out.

Hang in there, all of my dear sisters, but I know what you mean when you say that you "feel like being dead " is better than what we face each and every day.

Our grand daughter is scheduled to make her grand entrance on the 13th of this month. There is a reason to go on!

Not only that, but our younger daughter and her family may be moving back to this area by the first of the year. She is very close to being offered a position as an orthopedic medical assistant for a new doctor at Washington University, here in St. Louis. We will know more on the 10th as she has a phone interview, with the doctor then.

I will try to keep all of you updated as things happen.

[INLINE] , [INLINE] [INLINE] ,& [INLINE] [INLINE] ,
Lynn

Re: Medtronic SCS patients

2007-09-11 13:16:27

I was told the battery lasts about 8 years. You wear a belt
recharger for a few hours at a time to recharge the battery.
Mary-Anne

Re: this is good, keep it going

2007-09-11 06:10:40

In a message dated 7/17/00 4:25:47 AM Pacific Daylight Time,
ThankYouJesusforThornsOnMyRoses@egroups.com writes:
<<
It was so good to see you again. Thank you for the lovely meal. And
thank you, too, for the beautiful coat.
Love Always,
Jesus
I really like this story its one of my favorites. Its a good reminder that
no matter how discouraged I get about how little we have or how much we have
to struggle financially we are still blessed and can share with others.
: )
Melanie

RSD-online - Smart Seniors

2007-09-10 20:56:59

$1.99 vs $2.49

They went to breakfast at a restaurant where the "Seniors'Special" was two eggs, bacon, hash browns and toast for $1.99.

"Sounds good," the wife said. "But I don't want the eggs." "Then I'll have to charge you two dollars and forty-nine cents because you're ordering a la carte," the waitress warned her.

"You mean I'd have to pay for not taking the eggs?" the wife asked incredulously. "I'll take the special."

"How do you want your eggs?"

"Raw and in the shell," the wife replied. She took the two eggs home...

Don't mess with seniors! They weren't born yesterday!!!!

PS

2007-09-10 15:46:35

My doc is on his way today to Italy to be awarded the presidency of
the International Spinal Stimulator docs.
MA

something to read and think about

2007-09-10 10:38:17

I WANT TO TELL YOU LIES. I want to tell that little
boy his Mom will be just
fine I want to tell that dad we got his daughter out
in time I want to tell that wife
her husband will be home tonight I don't want to tell
it like it is, I want to tell them
lies. You didn't put their seat belts on, you feel you
killed your kids I want to say
you didn't ... but in a way, you did. You pound your
fists into my chest, you're
hurting so inside I want to say you'll be ok, I want
to tell you lies. You left chemicals
within his reach and now it's in his eyes I want to
say your son will see, not tell you
he'll be blind. You ask me if he'll be OK, with
pleading in your eyes I want to say
that yes he will, I want to tell you lies. I can see
you're crying as your life goes up in
smoke. If you'd maintained that smoke alarm, your
children may have woke. Don't
grab my arm and ask me if your family is alive. Don't
make me tell you they're all dead,
I want to tell you lies. I want to say she'll be ok,
you didn't take her life I hear you say
you love her and you'd never hurt your wife. You
thought you didn't drink too much,
you thought that you could drive. I don't want to say
how wrong you were, I want to
tell you lies. You only left her for a moment, it
happens all the time. How could she
have fell from there? You thought she couldn't climb.
I want to say her neck's not broke,
that she will be just fine. I don't want to say she's
paralyzed, I want to tell you lies. I want
to tell this teen his buddies didn't die in vain
Because he thought that it'd be cool to try to
beat that train. I don't want to tell him this will
haunt him all his life I want to say that he'll
forget, I want to tell him lies. You left the cabinet
open and your daughter found the gun.
Now you want me to undo the damage that's been done.
You tell me she's your only child,
you say she's only five. I don't want to say she won't
see six, I want to tell you lies. He fell
into the pool when you just went to grab the phone. It
was only for a second that you left
him there alone. If you let the damn phone ring
perhaps your boy would be alive. But I
don't want to tell you that, I want to tell you lies.
The fact that you were speeding caused
that car to overturn and we couldn't get them out of
there before the whole thing burned.
Did they suffer? Yes, they suffered, as they slowly
burned alive. But I don't want to say
those words, I want to tell you lies. But I have to
tell it like it is, until my shift is through
And then the real lies begin, when I come home to you.
You ask me how my day was,
and I say it was just fine I hope you understand,
sometimes, I have to tell you lies.
Dedicated to all the Police Officers, Firefighters,
EMTs, Paramedics, Emergency Flight
Crews and all civil servants who deal with the
tragedies of life and death. The saddest of
all, being those that involve children, and could have
been prevented. Wear your seat belts.
Keep poisons, flammables, fireworks, etc. out of reach
of children. Keep your smoke alarm
in operating order, if you don't have one, get one.
Never, ever drive if you've been drinking.
Never leave your toddler unattended. Teens, be
responsible drivers, obey all traffic lights,
posted limits, warnings and signals at RR crossings.
Keep your guns locked and out of reach,
buy a trigger guard. Protect our children, they are
our future...
Am I preaching? Am I nagging? I guess I am just
telling it like it is...
Or I could just tell you a lie.
=====

Jury Duty Scam

2007-09-10 06:45:27

I checked this out on snopes.com and this a a true identity theft
scam.....
Jury Duty Scam Leads to Identity Theft
Here's a new twist scammers are using to commit identity theft: the jury
duty scam. Here's how it works:
The scammer calls claiming to work for the local court and claims you've
failed to report for jury duty. He tells you that a warrant has been issued
for your arrest.
The victim will often rightly claim they never received the jury duty
notification. The scammer then asks the victim for confidential information
for "verification" purposes.
Specifically, the scammer asks for the victim's Social Security number,
birth date, and sometimes even for credit card numbers and other private
information -- exactly what the scammer needs to commit identity theft.
So far, this jury duty scam has been reported in Michigan, Ohio, Texas,
Arizona, Illinois, Pennsylvania, Minnesota, Oregon and Washington state.
It's easy to see why this works. The victim is clearly caught off guard, and
is understandably upset at the prospect of a warrant being issued for his or
her arrest. So, the victim is much less likely to be vigilant about
protecting their confidential information.
In reality, court workers will never call you to ask for social security
numbers and other private information. In fact, most courts follow up via
snail mail and rarely, if ever, call prospective jurors.
Action: Never give out your Social Security number, credit card numbers or
other personal confidential information when you receive a telephone call.
This jury duty scam is the latest in a series of identity theft scams where
scammers use the phone to try to get people to reveal their Social Security
number, credit card numbers or other personal confidential information.
It doesn't matter *why* they are calling -- all the reasons are just
different variants of the same scam.
Protecting yourself is simple: Never give this info out when you receive a
phone call.

http://www.incredimail.com/index.asp?id=54475

Hold my calls......this is too cute

2007-09-09 21:05:10

Subject: Check out Hold My Calls
<A HREF="http://www.debsfunpages.com/funpic45.htm"
/A
thought this was so cute.

checking in

2007-09-09 14:29:31

I haven't posted a few weeks so here is the update. Spinal Stimulator
was in place first of March/end of Feb. Progressed to feeling pretty
good until 2 weeks ago then severe soreness devloped. I felt like the
battery unit had shifted and moved a bit. Went to the doc today and
that is exactly what has taken place. They will have to go back in
and place it deeper and repostion it. *sigh* Hopefully they can
replace with the now rechargeable battery from Medronix. I am on
Keflex 4 X a day for a week, just in case there is infection. It is
severely inflamed and doc decided to take this preventative step just
in case.
Mary-Anne

Anniversary

2007-09-09 13:28:35

Well, today is my RSD anniversary which I prefer not to celebrate.
However, Dori said a mouthful yesterday and it got me to thinking
about stuff. Jim is pretty much self-sufficient now and only needs
help once in a while. Mostly he just messes things up that usually
stay tidy when he is working. LOL If I am to be honest, I AM MY OWN
WORST ENEMY!!!!!! One of the reasons is my incurable case of
stubbornness. The other reason is a severe case of RLS. I try not to
take as much medication as I'm prescribed so I get antsy and since
moving makes it feel better I decide to do a "project" that I've
wanted to get done. See, at that time, I just want to feel better now
and give no thought to how I'm going to feel later. You hit the nail
on the head when you said I feel like I want to die sometimes
afterward, Dori. I didn't know that I could feel so bad. Apparently I
also have amnesia because the next time the antsy feeling starts I do
the whole thing all over again. I am also so incredibly tired that
it's unbelievable! That's whether I do anything or not. Rumor has it
that it's the fibro causing that and if any of you have suggestions
about how to get rid of the tiredness I'd sure appreciate it. You
know, these specialists keep telling me I have this or that but they
only give me a name. None of them has ever told me what the disease
is, just the name. I'm still workin on figuring out what fibro really
is. Well, that's it for now,
Love To All,
Betty

implant surgery

2007-09-09 02:39:53

Hi All - I'm a new member to the group and I just finished my trial.
It went well and I'm having the implantation of the medtronic device
(recharchable) on this coming Wed. YEAH!! Can you guys give me an
idea of how quickly you recovered from the actually procedure? A day,
week(s), months? I'm a little unclear on how quickly I will feel like
getting up and moving.
I've learned a bunch from reading your previous messages. I
appreciate the resource. Thanks much!!
Jill

Re: [lifelineforrsders] Debbie and All

2007-09-08 23:48:57

Betty Betty Betty,

Please do NOT push yourself to the limit. Instead limit your pushing. LOL

I know it is easier said than done and I am not one to be handing out this advice when I am so unable to have done this myself . But I have learned and am doing MUCH MUCH better now that I do limit myself.

I think you will find that now you have the fibro it is much harder to heal than before. And for me, I have realized that if I do limit, then I can do so much more the next day than if I had pushed.

Heck, Jim isn't going to die if you don't do it all and heaven forbid, if you do do it all, you will feel as if you want to die. LOL

So relax and take care of yourself or I will throw you back in the bushes and surround you with guard dogs to protect you from anyone wanting to let you back in. HAHAHAHA

I love ya girlfriend

Dori

Drivers tip from the Duke

2007-09-08 18:28:06

15fc67.gif
REDNECK TIP OF THE WEEK:
Next time you are too drunk to drive, walk to the nearest pizza shop, place an order, and when they go to deliver it, catch a ride home with them!

Re: ThornsonMyRoses going 'no mail'

2007-09-08 07:46:11

Dear Christy, I pray you will have a wonderful time of fellowship and
relaxation while on vacation. Try and keep cool sweetie...I will be praying
for your comfort and health. It is mighty humid here in New England and I
find the library, malls, and movie theater the best places to visit with he
humidity. (((((((((Christie))))))))) In His love, Diane
But those who wait upon the Lord shall renew their strength; they shall mount
up with wings like eagles, they shall run and not be weary, they shall walk
and not faint. Isaiah 40:31

Re: [Stimulator] 12 WEEKS WITH THE SCS!

2007-09-08 04:49:09

Rob
Do you have advanced bionics stimulator or medtronics stim
Jaci

Re: [lifelineforrsders] Firemans Revenge

2007-09-07 21:01:03

Boy what I would do to stand in front of that hose on right now ROFLOL

Debbie

========Original Message========

Subj: [lifelineforrsders] Firemans Revenge
Date: 9/30/2005 5:24:17 PM Central Standard Time
From: lynmadrid@...
To: Lynmadrid@...
Sent on:

Firemen's revenge
(this is one of the best photos I've seen in years!)
[INLINE]

12 WEEKS WITH THE SCS!

2007-09-07 17:05:10

HELLO ALL,
WELL IT HAS BEEN 12 WEEKS SINCE I RECIEVED MY SCS! I HAVE GONE IN EVERY TWO
WEEKS TO HAVE THE SCS AJUSTED. I WAS DOING OK WITH THE SCS FOR THE FIRST COUPLE
OF WEEKS, I DID NOT HAVE A ALOT OF RELIEF, BUT WHAT I HAD WAS GOOD. I STILL
HAVE A BIG PROBLEM WITH MY SLEEP, I CAN GET TO SLEEP OK, BUT STAYING ASLEEP IS A
DRAG! I ONLY SLEEP 15 TO 45 MINUTES AT A TIME, THEN I'M UP AND DOWN TRYING TO
GET SLEEP WHEN I CAN. IT HARD TO SLEEP WITH THE SCS TURNED ON ALL THE TIME. I
HAVE TURNED IT UP AND DOWN TRYING TO FIND THE RIGHT STIMULATION WHILE SLEEPING,
WITH NO LUCK! I FIND THAT THE STIMUATION CHANGES WHEN I MOVE AROUND TO MUCH IN
BED, DOES ANYONE ELSE HAVE THE PROBLEM WITH THEIR SCS?
I WILL HAVE A LOT OF STIMULATION GOING ON IN MY PUMP AREA AN ALSO RIGHT UNDER MY
RIGHT RIB CAGE. I GO IN AND HAVE THE REP AJUST THE STIMULATION AND PULL IT AWAY
FROM THOSE AREA'S. OUT OF THE 4 PROGRAMS I'LL GET 1 OR 2 OF THEM THAT WILL FEEL
ALL RIGHT, I WILL GO BACK AND FOURTH WITH THE ONE'S THAT FEEL GOOD, THEY JUST
DON'T FEEL SO GOOD FOR LONG. I HAVE QUIT TAKING METHADONE AND THE DOC CUT BACK
10 % ON MY PAIN MEDS IN MY PUMP. I WAS AT 18.5 MG AN NOW I'M AT 16.5 MG PER DAY!
I'M SO GLAD TO OFF SOME OF THE MEDS THAT MAKE ME FEEL WEIRD, THESE LAST 5 YRS
HAVE BEEN A ROLLER COASTER RIDE FOR ME WITH ALL THE DRUGS THAT I HAVE BEEN ON,
I'M VERY SICK OF ALL OF THEM! THE SCS WAS MY LAST CHANCE AT GETTING SOMETHING
THAT WOULD HELP MY PAIN AND KEEP MY PAIN LEVEL IN CHECK.
I HAVE TO KEEP THE STIMULATION UP RATHER HIGH IN ORDER TO GET ANY RELIEF AT
ALL. WHEN IT IS ON SO HIGH I HAVE TROUBLE WALKING, EACH TIME I LIFT MY LEFT LEG
WHILE WALKING, I GET A BIG JOLT IN MY LEG AND LOWER BACK. I WISH THAT I HAD
MORE GOOD NEWS THAN WHAT I DO, TIME WILL TELL! I HOPE THE REST OF YOU HAVE
BETTER LUCK WITH THE SCS THAN I HAVE HAD.
HANG IN THERE, IT HAS TO GET BETTER SOMEDAY!
LATER,
ROB IN IDAHO

going 'no mail'

2007-09-07 07:50:20

I am going on vacation! Yeah!!!!! To see family! Yeah!!!!!! in Kansas (in
July???!!!!!) Please pray for a cold front to move into the midwest, lest I
drop dead form heat stroke the moment I walk out of the airport! I am trying to
figure out how to bottle some of our Northern CA coastal weather (currently 58
degrees, partly cloudy, low fog in the AM)..
will be on vacation until the 27th of July, if I get to a 'puter I will check in
at the archives to catch up on posts....I will also check my email.....so, I
will be keeping track of all of you! (I am already shaking from withdrawls and
haven't even gone 'no mail' yet!)
love to all!
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
AIM user name: crochetin4Christ
MSN user name: ouchiemama
http://www.egroups.com/group/ThankYouJesusforThornsonMyRoses (elist for
Christian women living with chronic pain and illness
http://www.geocities.com/christybritain/index
(Christian pages(God's promises, creation vs. evolution, Corrie ten Boom tribute
page, shooting down the big bang theory....and more) recipes, free crochet
patterns, mystery page, Sherlock Holmes page, classic movie page, aromatherapy
'recipe' page, craft ideas, FMS page, homeschooling page and more)
http://www.geocities.com/britainchristianacademy/indexofstudies.html (thematic
on-line unit studies with off-line activites and games grades 2-?)
websites are continual works in progress

HIGHLY UPSET HERE

2007-09-07 05:15:12

I am so much appreciative of all the kind caring thoughts and concerns you all have sent our way during this trying time of House Camping 101 LOL. I had to throw that in for a laugh for myself. I am at wits ends here and have to find humor in things before I go nuts and they come and take me away in while coats. Need I saw tempers are flaring here as well. Men they just cannot get it down on how to rough it inside the house, LOL. What more can I say about men? The wildlife are plentiful at least and keep the dogs barking all night long. In fact we have had 3 incidents of the dogs (Harley and Forrest [yrs)) sneaking out at night by pushing the screen out. Then they come banging on the door to get let back in. What an adventure. As I type this I am looking at 8 deer laid down in the tall grass out front. Did I say tall grass? A person can disappear in that grass, LOL. All the Hurricane rain got the grass growing in full top speed. I thought today was going to be a
good day but I sure got that wrong. Our Government is so screwed up they can't see for their heads up their asses. Here we sit now a full week later after the power went off from Hurricane Rita and it is now the weekend so they are all going home. They declared our County a disaster 2 days ago and the County got all the papers to the Texas Governor and he has it to President Bush. All we need is a signature and we would be spared a horrendous week end but it appears this is not going to happen. God forbid us ask them to work over the week end to help us out here who have been severely affected by all of this. The run around is unreal. You call one office they have no idea tell you to call this other office and give you a non working number. You call back to get the right number they give you one to some flunky who knows nothing but does give you a different number. Then you are told "Your County has Shower stations," wrong, they have no shower stations and have no
idea how they go about doing a shower station. Then the Senators assistant calls me and says your County is going to help those with generators out with gas, wrong again. I called before I went there thinking I wonder if they know this plan yet. They never heard of this and besides they have no fuel so how would they help us with gas? What a mess and this is our Government at work here helping those in a disaster. FEMA has their heads so far up they may never see daylight again. The Red Cross is useless as well. They know nothing, hear nothing and say nothing and therefore they do nothing other than pass out food, water and ice which is good but..... A big but that is, LOL we need gas before the heat comes back tomorrow and we have no gas for the generator so that means no fan, then the food we have now will spoil and we start this all over again. I have already been in hell this week I did not know you could go further down in hell. I again assumed wrong as
obviously the USA thinks you can go to the center of the earth unscathed. So I have now fired off a nasty email to God and everybody on all of this run around crap and giving false info. out. I actually addressed it to the state and local officials then to President Bush, but I copied it to every ABC, NBC, CBS, FOX and numerous other stations along with newspapers and radio stations too. If my elected whacks think I am going to sit by quietly and not stir the pot while I roast to a well done nasty smelling rotting flesh corpse they have another thing coming. It will be my duty as an American to show these elected officials for what they are before they are ever elected again to any office anywhere. It was bad enough just trying to get food stamps, but this is horrible and could be labeled human torture if you ask me. Once we run out of gas tomorrow afternoon I will not be able to get back online again until power comes back up. That could be several more weeks from
what we are told today. With the generator on I can power up my computer some and email and read some and see TV, have 2 fans (1 each) and the freezer and fridge are on. When that goes it will be awful and we have rain coming also so hot humidity stinky sweat. I cannot wait. We have spent just under $400 on gas since the power went off. We have been turning the generator off at night the past 2 nights and again tonight to conserve fuel when it is somewhat cooler. However, this afternoon it began to heat back up again and tomorrow we are looking at temps in the upper 90's. I just do not know how much more we can take here. We need about 10 D and 8 C batteries, gas and Repel Sportsman or Deep Woods Off mosquito spray. The higher the Deet the better it works. You do not dare stay outside unless you have mosquito spray on and we ran out already after going thru 1-1/2 cans. Never in my wildest dreams did I ever think we would be sitting here living like cavemen a week
later. We are now getting low on gas in the car and that is only from going to get gas and food, water and ice which are all across the street from each other about 6 miles from us here. Hopefully we can get someone at the fire dept. to bring us food, water and ice when we cannot get there due to no gas. What year is this? Am I living in the 1800s? OK, I have banged the drum loudly this time I am going to go see about something to eat. Beanie Weenies in a self heating can with applesauce. I am adding my address and contact info. below since a few people have asked me for it. Please keep within the group.

Love Your Friend,

Debbie Wolff

201 Wolff Lane

Coldspring, TX 77331

936-767-8551

Whew...my week...

2007-09-06 21:58:05

Ok I am sending this to everyone so I dont have to type the same story over
and over : ) Just call me lazy butt...
I was house and pet sitting for my mother-in-law this past week. It was
great, she lives out in the country (so far out that just to get to the
nearest little town its 15 min) and has an old farmhouse they remodled on 40
acres of land. We swam in her pool, I relaxed by the pond and little
waterfall they made right next to the good old fashioned porch and soaked in
the hot tub in the sunroom. Lets