In a message dated 7/4/00 3:36:34 AM Pacific Daylight Time,
ThankYouJesusforThornsOnMyRoses@egroups.com writes:
<< Every time I tried sit up I would get a bad headache and would throw up.
So I laid flat Saturday and Sunday and it has helped. I am back on line now,
I have missed all of you.
Jayne,
Glad to have you back! Remember not to rush yourself and take the time you
need to feel better. I am happy to hear things went well.
Melanie
WHEN?
Dear Friends,
<< ¯`'·.,¸©·´¯`·
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The world is so fast-paced people forget to do one simple thing
that would help them relax and calm down. Stop and smell the Roses!
¯`'·.,¸©·´¯`·
Your Sister in Christ, elaine
What I was told today is yes it is common. What I was surprised is
that during the trail and any program adjustments aren't recorded!
So if there is a program that works request a print out, so you can
have them reprogram the same without going all through the various
ways again.
I now have a print out of what it is now.
Mary-Anne
http://www.good4asmile.com/heartsoul/tiny_handsp.htm
Hi
I saw where Paula Abul is to be on his show and talk about RSD Its on CBS at 4pm pst. here.
Hugs Pat CA
I HELD GODS HAND
I held Gods hand in my sorrow
Held it till tears went away
I said I will return it tomorrow
Just let me hold on for today
Somehow time slipped through my fingers
I feel that is the way he planned
For his presence still lingers
I can't let go of Gods hand
Today I had the stimulator readjusted/programmed. The tech/rep told
me it wasn't uncommon for this to happen and he did a slight change
moving the stimulation down one notch on the leads. Pain is gone
and it working great I think. I will know by tomorrow. LOL
Now I can feel the stimulation in the coxic area when I lay down.
Mary-Anne
--Being that my pain is in my rib cage to begin with, this really
upsets me. Did you find out why the pain is in the rib cage to begin
with? Karel
Guess what! You have just received an animated greeting card from Jayne
You'll see the personal greeting by using the following Web location.
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totally awesome .. click on this link ...
Hi all
Here I am a week and a half out from the stimulator implant and I'm
actually having way worse back pain then before the surgery (this
isn't inscisional pain). I know that I have to talk to the medtronic
rep to get it reprogrammed but I really feel that this thing is doing
absolutely nothing,and maybe even worse.
Talking to the surgeon is useless, he says it will all be better once
its reprogramed. But I remember in the hospital the medtronic rep
saying that the area of the back that I had pain in was hard to
cover. I never had much of a trial and I'm just getting more upset
with every passing hour.
Any suggestions? Could this actually come down to having it taken
out? I mean I really can't believe how incredible the pain is.
thanks for listening and reading
Nan
[INLINE] "I'll Have More" Swirled Ice Cream Pie
[INLINE]
[INLINE] see larger photo
[INLINE] Read Reviews [INLINE] Write a Review for this Recipe! Level: Easy Rated: [INLINE] [INLINE] [INLINE] [INLINE] [INLINE]
Source: [INLINE]
With ice cream nestled between scrumptious layers of peanut butter and new NESTLÉ TOLL HOUSE Swirled Milk Chocolate & Peanut Butter Morsels, this chilled delight is sure to have all your party guests asking for more.
Estimated Times:
Preparation - 10 min | Cooling Time - 2 hrs freezing | Yields - 8 servings Ingredients:
1/4 cup plus 2 tablespoons creamy peanut butter, divided
1 prepared 8-inch (6 oz.) chocolate crumb crust
1 cup (6 oz.) NESTLÉ TOLL HOUSE SWIRLED Milk Chocolate & Peanut Butter Morsels, divided
1 qt. (4 cups) vanilla or chocolate ice cream, slightly softened
1/4 cup chopped peanuts
Directions:
SPREAD 1/4 cup peanut butter over bottom of crust. Sprinkle with 2/3 cup morsels. Place small scoops of ice cream over morsels. Freeze for a few minutes if ice cream becomes too soft. Place remaining 2 tablespoons peanut butter in small, heavy-duty plastic bag. Microwave on HIGH (100%) power for about 20 seconds or until soft, kneading until smooth. Cut a small hole in corner of bag; squeeze to drizzle over ice cream. Sprinkle peanuts and remaining morsels over top of pie. Cover; freeze for 2 hours or until firm.
REMOVE pie from freezer and allow to stand at room temperature for about 20 minutes or until just soft enough to cut.
Tarragon Chicken with Fresh Tomato Sauce
Servings: 4, Prep time: 15 minutes, Cook time: 12 minutes
[INLINE] Half the work and doubly delicious, this recipe is wonderfully easy and healthy.
Ingredients:
4 boneless, skinless chicken breast halves, rinsed and patted dry
6 tsp dried tarragon
1 Tbsp crushed garlic
5 Tbsp extra virgin olive oil
3 1/2 cups coarsely chopped ripe tomatoes (with skin and seeds)
4 tsp balsamic vinegar
kosher salt
fresh ground pepper
Whisk together 4 teaspoons tarragon, 3 tablespoons oil, and 2 teaspoons garlic in a small bowl. Pour into shallow casserole dish, add chicken and turn to coat. Season with salt and pepper and let stand 10 minutes.
Meanwhile, blend the chopped tomatoes with 2 tablespoons oil, vinegar, 2 teaspoons tarragon, and 1 teaspoon garlic in blender until smooth. Add salt and pepper to taste.
Broil chicken breasts until cooked (6-8 minutes per side). Pour a large circle of sauce on each plate, arrange one piece of chicken on top, maybe add a dollop of sauce on top for style ... and serve.
Recommended Sides: nice crusty bread for soppng up extra sauce, corn on the cob, sauteed sugar snap peas. Enjoy!
something has been discovered that does the work of 5 men...1 woman
http://www.eakles.com/cleaning_woman.html
Is this a common occurrence with the stimulators? I am scheduled to have my
trial on May 10th.
Thanks,
Denise
Imagine your on your way for a nice relaxing weekend!
Your driving along the Interstate ...65 miles an hour...minding your very own business...when out of nowhere...You getta crack in your windshield...right in the line of vision!!You swerve rightThen left,And it's still there... right in your line of vision!BAM!!!!! [INLINE] [INLINE]
something has been discovered that does the work of 5 men...1 woman
something has been discovered that does the work of 5 men...1 woman
An elderly gentleman was ready to retire. He told his
employer-contractor of his plans to leave the
house-building business
to
live a more leisurely life with his wife enjoying his
extended family.
He would miss the paycheck, but he needed to retire.
They could get by.
The contractor was sorry to see his good worker go and
asked if he
could
build just one more house as a personal favor.
The carpenter said yes, but, in time, it was easy to
see that his heart
was not in his work. He resorted to shoddy workmanship
and used
inferior
materials. It was an unfortunate way to end a
dedicated career.
When the carpenter finished his work, the employer
came to inspect the
house. He handed the front-door key to the carpenter.
"This is your
house," he said, "my gift to you." The carpenter was
shocked!
What a shame! If he had only known he was building his
own house, he
would have done it all so differently.
So it is with us. We build our lives, a day at a time,
often putting
less than our best into the building. Then, with a
shock, we realize we
have to live in the house we have built. If we could
do it over, we'd
do
it much differently. But we cannot go back.
You are the carpenter. Each day you hammer a nail,
place a board, or
erecta wall. "Life is a do-it-yourself project,"
someone has said. Your
attitudes and the choices you make today, build the
"house" you live in
tomorrow.
Build wisely! Remember...
Work like you don't need the money.
Love like you've never been hurt.
Dance like nobody is watching.
Pass this on to someone you like....I did
Italian Chicken and potatoes
1 whole baking chicken (size depending on how many you
are feeding 7-8 lbs suggested)
Italian spices
Garlic powder
Olive oil or regular vegetable oil
Potatoes, sliced very thin (8 or more suggested, or
enough to almost fill a 9X12" baking rectangular
baking dish for more people)
1 c. of milk
Margarine or butter
Preheat oven 400 degrees. Take the 9x12 glass baking
dish and use a paper-towel to rub butter or margarine
all over the inside of the baking dish.
Next, slice the potatoes very thin and cook them in
water, adding the milk also. Boil and remove them from
heat when they are almost done. Drain. Now, layer the
potatoes into the baking dish and sprinkle each layer
with garlic powder and Italian spices.
Take the whole chicken, rinse and remove the giblets
and neck. Place the chicken on top of the potatoes and
season with the olive or vegetable oil, then Italian
spices and garlic powder to taste.
Put it all in the oven and cook until the chicken is
completely done. Remove the chicken from the potatoes
and put the dish back in the oven to brown the
potatoes to your liking. When done, remove and serve
with the chicken.
This is from a recipe that used only rosemary and I
added the Italian spices and garlic on my own. It
turned out so well that many people I have made it for
have liked it very much. So I am sharing it. My family
has no Italian blood, but I love Italian food.
I really hope you and your families will enjoy it like
mine has.
don't tell god how big the storm is, tell the storm how big god is.
Mary-Anne
The average battery lasts for about 2 years. Each battery time is
different, they are calculated based on your intensity and your usage.
There are batteries that last 2 1/2 to 3 years while others that last
only 18 months. (This short of a period of time isn't common!!!! -
when your stim is programmed if the battery life is short they can
change the settings and make it more energy effective - this works the
majority of the time) I keep my stims on 24 hours a day 7 days week
without any problems. They all last 2 years. When you go to get your
stimulator reprogrammed next time ask your rep or your doctor what the
expected battery life is. The computer/ machine whatever you want to
call it (that reprograms the stim) tells them the estimated battery
length.
Good luck with the stimulator, stay healthy!
Jaci
A Hand to Hold
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Little Bitty
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Fireworks!
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U.S.A
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Independence Day
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hello, 2 failed back surgeries, he had
back pain and no leg pain prior surgery now he has
awful leg pain, they say it is nerve damage.
He really wants to lift the canoe he has lost
almost all of his hobbies because of this. Please write back
Sandy
Mary-Anne Durkee <shantihhh@...
I was told you never should list anything heavy again. Does he have a back
problem/pain? Why is he getting the stimulator?
Hello, As you know my husband is going
into the hospital on the 28th for a
temporary stim put in. If this works
he will get the permanent one on April 1
He has a question, about, when and if he gets the
the permanent stim put in, AFTER it is all'
healed in about 2 months or so, can he lift heavy
things, or would this move the lead even after it
is healed? We have canoe which has to be lifted over
a fence, it weighs about 40 pounds but he
also has a battery for a trawling motor so he
doesn't have to row which ways 70 lbs.
Of course the doctor will say no to this but,
I guess we need to hear from others who have
experienced this. And it is also a good
time of year to sell the canoe if need be.
Thanks so much...Sandy an Clint in PA
1 cup butter, plus more for greasing pan
1 cup peanut butter
1 teaspoon pure vanilla extract
1 pound confectionersâ sugar Microwave butter and peanut butter for 2 minutes on high. Stir and microwave on high for 2 more minutes. Add vanilla and confectionersâ sugar to peanut butter mixture and stir to combine with a wooden spoon. Pour into a buttered 8 by 8-inch pan lined with waxed paper. Place a second piece of waxed paper on the surface of the fudge and refrigerate until cool. Cut into 1-inch pieces and store in an airtight container for up to a week.
don't tell god how big the storm is, tell the storm how big god is.
http://chocochip.com/jane/circle.htm
Subject: Fw: Running Water
This looks like a Thomas Kinkade painting. It is rumored to carry a miracle! The water is supposed to be running. If it isn't moving....then it did not transmit entirely.
[INLINE]
They say if you pass this one on, you will receive a miracle. I am passing this on because I thought it was really pretty and who couldn't use a miracle? Enjoy it if it happens! Surround yourself with interesting people and you will find peace.
don't tell god how big the storm is, tell the storm how big god is.
I have a prayer request. A friend of mine from another list just got some
bad news. A friend of hers who just had a preemie just a month ago, now has
her sister missing. She is a teen who was supposed to be spending the night
at a friends and no one has seen her since Thursday. She was apparantly last
seen with a guy, but no one knows if it was someone she knew or not. Also my
friend said that it is not like this girl to not report in at home. She and
her sisters are very close, so it is very odd that no one has heard from her.
She is in Florida and her name is Jennifer. We need a lot of prayers for
the safety of this young lady.
thanks so much
Dorothy
This morning on the Interstate,
I looked over to my
left and there was a
woman
in a brand new
Cadillac
doing 65 mph
w/her face up next to her
rear view mirror
putting on her eyeliner.
I looked away
for a couple seconds & when I looked back she was halfway over in my lane,
still working on that makeup.
As a man,
I don't scare easily.
But she scared me so much;
I dropped
my electric shaver,
which knocked
the donut
out of my other hand.
In all the confusion of trying
to straighten out the car
using my knees against
the steering wheel, it knocked my cell phone
away from my ear which fell
into the coffee
between my legs, splashed, & burned
Big Jim & the Twins,
ruined the damn phone, soaked my trousers, & disconnected an
important call.
Damn women drivers
One step at a time:
"Nothing is particularly hard if you divide it into small
steps."
--Henry Ford
"Little drops of water, little grains of sand/Make the mighty
ocean, and the pleasant land."
--Julia Carney
"Great things are not done by impulse, but by a series of
small things brought together."
--Vincent van Gogh
I woke up this morning and knew that today, the sun would not be shining
and the clouds would be gray.
As I stepped outside, rain fell upon my head. My car wouldn't start so I
walked to school instead. I forgot all of my assignments, I failed all
of my tests. I dropped my head in disgust and asked the Lord for one
request. "Lord, why is it that things won't go my way?" He gently
replied, "Dear child it is because you didn't thank me yesterday. I woke
you up and enabled you to see the sun again. I gave you shelter,
protected your family, and even let you make a new friend. I blessed you
far greater than I ever had before. But you were too busy to thank me
once more. You didn't feel sick because I maintained your health. You
had money in your pocket because I maintained your wealth. You had shoes
on you feet and clothes to wear, too. You had plenty of food to eat, and
what did you do? You ignored me and went about your tasks. But when you
wanted something you never hesitated to ask. I was there when you needed
me, and that wasn't too long ago. But when things started going your
way, it was me you did not know. As if that weren't enough, I provided
your favorite luxuries. This was something I didn't have to do-they
weren't even necessities. And when it was time to get on your knees and
show your gratitude, You decided that after such a fulfilling day, you
weren't in the mood. So I decided to give you just a little test. To
show you how it would feel to stop being blessed." I began to realize
what the Lord was saying. And when I got home, I fell to my knees and
started praying.
He said, "My child, you have learned and you know I do forgive. But
remember to remember this day as long as you shall live. I love filling
your life with joy, and your pain I'll alleviate it. But just a simple
thank you would show how much you appreciate it." Pass this on to
everyone you pray the Lord will bless. There are no catches or rules
just this simple test.
=====
Don't Worry! Be Happy! GOD Loves Us All!
Ribcage soreness is from the stimulator, they will reprogram tomorrow. I mean I
could feel it in my armpit. I had to turn it waaaayyyy down.
Mary-Anne
Subject: inplant-battery question
How long do they last? I am not wanting to go through this agin any
time soon.
The soreness is finally bearable and now I can see if it's
helping....after they reprogram it next Tuesday. Now it makes my
ribcage so sore.
Mary-Anne
I was told you never should list anything heavy again. Does he have a back
problem/pain? Why is he getting the stimulator?
Hello, As you know my husband is going
into the hospital on the 28th for a
temporary stim put in. If this works
he will get the permanent one on April 1
He has a question, about, when and if he gets the
the permanent stim put in, AFTER it is all'
healed in about 2 months or so, can he lift heavy
things, or would this move the lead even after it
is healed? We have canoe which has to be lifted over
a fence, it weighs about 40 pounds but he
also has a battery for a trawling motor so he
doesn't have to row which ways 70 lbs.
Of course the doctor will say no to this but,
I guess we need to hear from others who have
experienced this. And it is also a good
time of year to sell the canoe if need be.
Thanks so much...Sandy an Clint in PA
I was wondering around on the group homepage and came across a way to
post recipes in the database. I posted a recipe and all can access it
by going to the groups homepage and clicking on database and then click
from there to read what you wish. Happy hunting all.
Debbie
http://www.eakles.com/95julyfourthpg.htm
--Being that my pain is in my rib cage to begin with, this really
upsets me. Did you find out why the pain is in the rib cage to begin
with? Karel
hi
nice,helpful,knowlegable human people here. i have had rsd 4 a couple of decades acording 2 doc on monday if not more. 10 of which was a misdiagnosis of ms, doctors 2 neuros r colleages and wont ppoint the fingefr at the oother,so actually both r sure . i have a host of other stuff 2 bladder incontinence, retention,using catheters etc, bad kidner function,fluid buildup in lungs from narcs, etc etc etc wont bore u with it all.i don;t type much du 2 rsd in hands , full body/ .glad ur here.have fun.
fond blessings,
sheree
don't tell god how big the storm is, tell the storm how big god is.
-Can't you do it before? Why take a chance? I am sure once he has
incisional pain they are not going to want him to lift anything more
than like 10 lbs, Karel
2 New Funpages from Send4Fun!
A Bouquet for You!
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Dropping in to say Hi!
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How long do they last? I am not wanting to go through this agin any
time soon.
The soreness is finally bearable and now I can see if it's
helping....after they reprogram it next Tuesday. Now it makes my
ribcage so sore.
Mary-Anne
In a message dated 07/03/2000 10:14:35 Mountain Daylight Time,
cjnfour@... writes:
<<
I want to thank everyone for their prayers and cards. Today is the first day
Iâve been up since surgery on Friday. Surgery went good and I can tell a
difference in the spasms. I did have a pretty bad day Saturday. The tube
going into the spinal cord had not sealed completely. Every time I tried sit
up I would get a bad headache and would throw up. So I laid flat Saturday and
Sunday and it has helped. I am back on line now, I have missed all of you.
Love in Christ,
Jayne
Welcome back Jayne, and I am so glad that the surgery went well and that it
is helping you. Glad to see you back on line, but please don't over do it.
take care and hugs,
Dorothy
tyvm
don't tell god how big the storm is, tell the storm how big god is.
Hello, As you know my husband is going
into the hospital on the 28th for a
temporary stim put in. If this works
he will get the permanent one on April 1
He has a question, about, when and if he gets the
the permanent stim put in, AFTER it is all'
healed in about 2 months or so, can he lift heavy
things, or would this move the lead even after it
is healed? We have canoe which has to be lifted over
a fence, it weighs about 40 pounds but he
also has a battery for a trawling motor so he
doesn't have to row which ways 70 lbs.
Of course the doctor will say no to this but,
I guess we need to hear from others who have
experienced this. And it is also a good
time of year to sell the canoe if need be.
Thanks so much...Sandy an Clint in PA
Hope you all have a happy fourth.
hugs,
Dorothy
~FRIENDS WITHOUT FACES~~
We sit and we type, and we stare at our screens
We all have to wonder, what this possibly means.
With our mouse we roam, through the rooms in a maze
Looking for something or someone, as we sit in a daze.
We chat with each other, we type all our woes
Small groups we do form, and gang up on our foes.
We wait for somebody, to type out our name
We want recognition, but it is always the same.
We give kisses and hugs, and sometimes flirt
In Palace we chat deeply, and reveal why we hurt.
We do form friendships -- but - why we don't know
But some of these friendships, will flourish and grow.
Why is it on screen, we can be so bold
Telling our secrets, that have never been told.
Why is it we share, the thoughts in our mind
With those we can't see, as though we were blind.
The answer is simple, it is as clear as a bell.
We all have our problems, and need someone to tell.
We can't tell real people, but tell someone we must
So we turn to the 'puter, and to those we can trust.
Even though it is crazy, the truth still remains
They are Friends Without Faces, and odd little names.
[INLINE]
Hi Diane,
I am Dori from South Dakota. I have had RSD since July 2000. It started in my right hand and arm and has spread to the back, hips and right leg.
I also have fibromylagia and chronic fatigue syndrome. Please drop us a line and tell us a little about you.
I am unmarried, no kids, but several nieces and nephews that I spoil rotten,. LOL I am 44 years old and lead a boring life except for the sake of the ladies in our group. They take me on trips once in awhile. LOL Seems I have lost them somewhere in Mexico and can't seem to pick up on them. Last I knew they were packing and getting ready to go but I ended up in the hospital. If I recall correctly, Betty was auditioning for a role on Desperate Housewives. I wonder if she ever made it back inside her house. LOL
Anyway, I just wanted to welcome you to the group and let you know we are crazy and fun. We laugh and joke but also lend the support of a strong family that understands one another and the issues we face with the pain of disease. So feel free to jump right in.
Looking forward to getting to know you better,
RSD friends
Dori
Just in case nobody has smiled at you today
????????????????????????????????????????????? [INLINE]
I want to thank everyone for their prayers and cards. Today is the first day I've been up since surgery on Friday. Surgery went good and I can tell a difference in the spasms. I did have a pretty bad day Saturday. The tube going into the spinal cord had not sealed completely. Every time I tried sit up I would get a bad headache and would throw up. So I laid flat Saturday and Sunday and it has helped. I am back on line now, I have missed all of you.
Love in Christ,
Jayne
Hi
Thanks to those who replied. I really didn't have much of a trial.
The surgeon put the implant in late on Thursday in the hospital, then
I was ordered to have full bed rest, and then he implanted the full
one on Friday early in the morning. Not exactly how I thought the
whole thing would go, so I really don't know if it worked for the
trial. I'm a little upset right now. Can't figure all of this out,
but I do know that I have to meet with the rep to have it
reprogrammed.
I'm just not very happy right now since none of this is happening the
way I thought it would.
Again, thank you for reply.
I had far more relief on the trail, so I am going for a readjustment of the
program. I am having sore ribs from it and have it turned way down now.
I am 3 weeks post op. Doc said it takes 6-8 weeks for the swelling,
edema,soreness, etc. to go down so the stimulator really works.
In a message dated 7/3/00 3:17:06 AM Pacific Daylight Time,
ThankYouJesusforThornsOnMyRoses@egroups.com writes:
<< can you share the site for lefties? My 8 yr old is a lefty and is learning
to crochet - being taught by her oldest sister, a righty. Me? I'm just plain
clueless to it all! so if you could share the site, I'm sure she'd love it.
heehee
Thanks
~Karen
Ok I am going to try this again, I tried to go to my favorite places to give
you the address and AOL said I had preformed an illegal operation (???) and
bumped me off...gotta love AOL...not...
Here is the site, I hope this works:
http://www.crochet.org/lessons/lesson.html
It has the basic stitches only but its a good place to start to be sure she
is doing them as a lefty should. I got into a mess trying to copy my right
handed Mom. Hope it helps!
Melanie
I thought you would want to know about this e-mail virus. Even the most advanced programs from Norton or McAfee cannot take care of this one.
It appears to affect those who were born prior to 1965.
Symptoms:
1. Causes you to send the same e-mail twice. done that!
2. Causes you to send a blank e-mail! that too!
3. Causes you to send e-mail to the wrong person. yep!
4. Causes you to send it back to the person who sent it to you. who me?
5. Causes you to forget to attach the attachment. well darn!
6. Causes you to hit "SEND" before you've finished. oh no - not again!
7. Causes you to hit "DELETE" instead of "SEND." and I just hate that!
8. Causes you to hit "SEND" when you should "DELETE." Oh No!
IT IS CALLED THE "C-NILE VIRUS."
and there is no known cure..........=(
-People say that they need multiple adjustments from the rep at first
till they get it right, sounds like this is what you have to get
doing. I would not let the stimulator fail. How did the trial go? If
the trial was good, shouldn't the real thing be even better? Please
call your surgeon or your rep. Do not accept this the way that is is.
There has to be something else they can do. Karel
can you share the site for lefties? My 8 yr old is a lefty and is learning to crochet - being taught by her oldest sister, a righty. Me? I'm just plain clueless to it all! so if you could share the site, I'm sure she'd love it. heehee
Thanks
~Karen
Betty,
Thanks so much for the kind words and encouragement you have given me all along the way. If not for this group and having a plate to vent I would have surely lost it well before now so I really need to thank everyone for being here for me. I know you are over doing it and now your body is crying out. I pray you find an acceptable point to be able to get to so you cannot hurt so much and relax as you need to. Sherry I am so sorry things keep going there like the energizer bunny. I have been there for sure and just when you think it can't get any worse it does. Keep up your chin and tell yourself I will not be beaten, I will come out ok. I know it can get so overwhelming at times but believe me if I would have thrown in the towel all the times I got to that point I would not be here today. Please vent away as I found that to be my best friend in letting off steam. Diane, I am so sorry for not welcoming you before now but life here has been rather busy and I have not
been online like normal. I know you will fall in love with all the girls here and please ask away any questions you may have and we will do out best to try to help or answer them. I have learned so much from hearing the stories of others and what works for them and what does not. We have fun, pass jokes and adult cartoons, get serious, cry together, get excited about new babies and grands, and take virtual trips to break up the same ole same ole. I even send out a recipe from time to time as well. Please feel free to email me directly anytime you wish as I am usually here a lot esp. at night. My RSD started from a work injury (self employed) fall where I blew out both knees. I started with bilateral lower extremities RSD and from there it spread. It affects both my kidney's and bladder and we feel it has now gone to my left arm and hand. Right now I feel it and the meds have caused me to start having dental problems with all the teeth cracking and breaking. I
have both a permanently implanted spinal cord stimulator and pain pump. I have had lots of troubles with both and currently am at risk of having to have the pump or both pulled but we need to get the Ins. Co. online here and get this Lumbar Myelogram done to see and to see what kind of surgeon I will need in case a cysts or scar tissue has encapsulated the spinal cord. Happy to have you in the group and hope to read more from you very soon.
Debbie
Happy Labor Day to All of You!!!!
Sandy, I truly hope that your friends are somewhere among the thousands
of refugees from the hurricane. I know that by now it isn't looking
very good but until you know for sure, there's always hope. You and
your friends are in my thoughts and prayers. Debbie, congratulations on
the good news you received Friday! God wants you to have what you want
to have and will never desert you. He may not answer you in the way you
want or the time you want but God will ALWAYS answer your prayers. Good
Luck to you! Lynda, I'm so glad that your knee is healing and you can
put the sticks away. Take it real easy and try not to aggravate the
situation again. Sherry, it seems the problems are never-ending at your
house. I hope they figure out what's going on with your mother's foot
real soon and with Dennis as well. Try to relax when you can to get
that pain under control. Lynda and I have known for years that I have
fibro but it wasn't official so I never paid much attention to it. I
don't know a darn thing about it so I'd appreciate any input you girls
might have. Diane, how are you doing? I hope that you feel like posting
one of these days.
Love to All,
Betty
Hi all
This is my first time posting but I've been reading posts for quite a
while now...I appreciate other people's experiences and have really
learned quite a bit from other's interaction here.
Last week I had the medtronic stimulator implanted. I could go on
and on about the surgeries but I won't bore anyone. But here is my
question - does anyone else feel no real relief from their
stimulator? I kind of feel like there must be something wrong with
me because it seems like so many people have gotten significant
relief from their stimulators. Also, my doctor has told me that most
of his patients have 80% relief at a minimum, some have 100% relief.
My back problems include numerous herniations, scoliosis, stenosis,
significant disc degeneration and severe osteoarthritis - but I'm
still in my 30's. I feel so much stimulation in my legs, but that's
not really where my significant pain is (granted, I did have some
pain in my legs, but by far the bigger and constant pain is in my
back). I know I have to talk to the representative for reprogramming
but even she told me that the parts of my back where I have the most
pain is hard to get coverage on. I feel like I'm too young to give
up and just accept what is, but then again I feel like I'm being a
real pain to everyone else if I say it just simply isn't providing me
with relief.
Any thoughts? Am I the only one who is disappointed?
thanks a bunch
Nan
Christy, I think I got the granny square after 3 days of doing and undoing : )
I just was not going to give up even though I was getting quite frustrated.
I found a web site that gives directions for left handed crocheters and guess
what!! The yarn over part? Well I was doing it backwards all this time, no
wonder it took me forever to crochet! I was pulling the yarn over away from
me not towards me!! So that was a very basic thing that once I started doing
it right I didnt have to use my fingers to pull the loops through I can do it
like everyone else now (turning the needle and pulling the yarn through if
you kwim) anyway....now that I am much faster : ) I did complete a square
last night but do have a question, my corners are a bit rounded they are not
square corners, is that ok? Will that make it so I can still attach them if
they are like that? I sure hope so I cant figure it out any better.
Thanks for the offer to talk me through it, I think I needed to just keep
doing it over and over till I got it that usually works best for me
Melanie
In a message dated 7/2/00 3:08:49 AM Pacific Daylight Time,
ThankYouJesusforThornsOnMyRoses@egroups.com writes:
<< I always have a headache, I can live that...but my goodness that was a
nasty one, and it wasn't even a migraine!
I will tell you what has worked for me, I get REALLY bad headaches, like a
sinus..migrane...tension headache all in one. When I get these I almost wish
they were migranes since I have meds that work for those : ) But I have
found that even if you have to drag yourself, make yourself take a hot
shower, as hot and as long as you can stand it, then put an ice pack on your
forehead and a heating pad on the back of your neck and head. I know it
sounds weird but give it a try. This is the only thing I have found to work
for some reason it has to be the combo of hot and cold just one or the other
doesnt work. Also I know it goes against everything your feeling but if you
get one of those "tootsie rolls" if you kwim in your muscles (I get them in
my back) put ice on it not heat. It was hard for me to do, my body was
screaming out for heat but I put ice on it according to my doctor and it
really works, it takes down the swelling so the nerves are not pinched. If
you do get these tootsie rolls I can almost bet thats where your headache is
coming from. My dh will work one out in my lower back and my headache will
go away! He said its because the swollen knotted muscle way down there is
actually pinching nerves that go to my head.
Hope this helps, it works for me and I know we are all so different but
praying it will help someone else.
Melanie
Ok I feel like an idiot but I realized yesterday that what he bought was
non-alcoholic beer. Still not ideal in my opinion but at least he isnt
drinking again. I am so silly I guess I am just so sensitive to drinking I
take a leap at the first sign of it in any way.
So with my foot in my mouth I say have a great weekend, I know I will : )
Melanie
Stacey,
I can relate to the lack of sleep. I haven't slept well for a while. The lack
of sleep just compounds the problems... it really brings you down.
You don't need to take on all the duties/chores yourself. I know how you feel
about it-- the guilt. I am the same way. However, I have been trying not to let
my guilt get in the way of my back issues.
Just take your time and don't over do it!
Denise
Denise I know what you mean about being in a cespool instead of a gene
pool. Like I mentioned I'm following my mom's footsteps.
It's not like my house mate doesn't do anything around the house but,
it just seems like I'm more aware of the things that need to be done.
And I feel bad if I don't do it. The way I see it is my house mate
works all day and I'm home so why don't I get off my pity pot and do
it. I know my body needs rest but I couldn't tell you when I had a
good nights sleep. I try to joke with my friends telling them oh I'll
sleep when I'm dead. And they in turn call me the Energiser bunny
unfortionatly my batteries are running out. My mom was from England
and she always went by the montra of "british stiff upper lip" so in
turn I do that. Sometimes it's hard to do that.
When I see that there are things to be done around the house I try to
focus only on what I'm doing and I don't notice the pain untill I sit
down. Cleaning has always been like therapy to me, I mean I really
enjoy it. Lately I can't do the cleaning and if I do I suffer. I
know it's not worth it but, when is enough, really enough.
For everyone in this group have you ever tried Hypnosis my therapist
has done it with me and sometimes my pain goes from 10+ to a 8 or a 9.
Maybe it would work for you.
Please if there is any advice from anyone I need it.
THANKS
~Stacey
The posts are going thru to the entire list. I'm the Karen she was responding to.
*curtsey* Nice ta meetcha :)(:
~Karen, FL
Niblet_@...
Stacey --
listen to your body!!!! It knows when it's had enough. I totally know what you
mean about getting things done. I am the same way. My fiancé and my son don't
do too much around here. They seem to forget why I am home and not working. As
hard as it is, take your time, spread the chores out and be careful, get
rest!!!!!
My family has had a lot of back issues. I too am following in my Aunts foot
steps. She was the 7th person in the USA to have a stimulator. Although hers
was with an external batter/receiver. Aren't genetics fun? My fiancé says that
I am in the wrong gene pool. It's more like a cesspool that anything. Way to
many back issues. I can't imagine having 18 back surgeries... that must be
rough.
Chin up and listen to your body
Denise
Hi everyone. Thanks so much for the support. My house mate is on
vacation and her mom lives with us, so yesterday she needed laundry
done and since I can't seem to say no I did it. How do you keep a
type A personality down. Plus I'm the type of person that if I see
that something needs to be done I do it. I can't do a little each day
and take my time either. I have to do it all in one shot. If I start
I can put my mind totally on the task at hand. I know I'm still in
pain but I feel who else is going to do it. Not to mention that if I
take a brake and sit down isn't allowed because if I sit down I'll
never get up. Needless to say that's what happened. I did the
laundry yesterday and today I'm paying the price. I have a lot of
nerve damage in my legs so today just getting up to go to the bathroom
is a challedge. I'm always joking with my friends that my butt hurts
because of some of the nerve damage but today it's no laughing matter.
God when is all of this going to end.
My back problems were given to me by my mother. She also had DDD and
had 15 back surgeries. The doctors tried the stimulator on her and
for a while it worked but my mother was stubborn and hardly ever
listened to the docs. Eventually the leads moved and she had three
more surgeries on top of the 15. Being that I am like the Energizer
bunny and try to keep going I hope I won't screw this up.
That's all for now
PEACE TO ALL
~Stacey
Well I am at 2 3/4 weeks with the permanent stimulator in place. I thought the
pain of the inplant was lessening then last night I think I rolled over and
instand sheer pain! I am now back at like a week after the inplant pain wise.
The pain is where the transmitter is located in my upper buttocks. If I flench
my muscle as to sit or lay down it is severe pain.
I do hope this goes away in time.
Far as inserting the lead wires the doc didn't have problems as I have no scar
tissue as this was my first ever surgery. However, laying there listening to
the doc tell the in training Fellow that he was going too deep with the stitches
drove me crazy!
Mary-Anne
hello ladies!!
my headache is greatly diminished this AM, praise the Lord!!! I always have a
headache, I can live that...but my goodness that was a nasty one, and it wasn't
even a migraine! My computer belies me about how much I am online......for
those of you who have me on your buddy list...my AIM starts up automatically, so
even if my kids are on, or hubby..or if it just sitting here idle....it says I'm
online. I try to remember to put up my 'away' message..but, well....you know
what fibrofog is like!! I did spend most of my day in bed yesterday.....
Welcome to our newbies! I should mention that I am ouchiemama too. So, just to
confuse you all more....... christy..aka crochetin4Christ is also aka
ouchiemama. I now have AOL IM as crochetin4Christ and MSN IM as ouchiemama.
Karen, I KNOW exactly what you mean by restless pain. I was so very restless
for two days, on weds. and thurs of this week. I felt like I was walking,
talking, and thinking incessantly..all in big circles! Not getting anywhere, not
getting anything accomplished....too restless to do anything....and then I have
a tendency to overeat. I really was expecting a decent earthquake. I get like
that in 'earthquake weather'. It could be a mild anxiety attack....I find I am
usually that way for a little bit before an anxiety attack (full blown) hits.
Karen, when I get an annxiety attack....the symptoms are physical too. I can't
breathe right, I get cold sweats, I may shake or feel paralyzed ..... usually
when I haven't been able to sleep well (comparatively speaking) or have been in
a flare I can't manage. I expect panic attacks happen to many who have chronic
pain.....you really are not alone. Doesn't help much at the time, I know. I am
not saying yours are panic attacks either..... but that panicky feeling you
talked about......don't hesitate to go to ER. If you do have something else
physical the dr would benefit from seeing you at your worst....
And, it's okay to fall apart. Shut your door and cry....and pray. God is there
with you....this is one of those 'footprint' moments. And cling to the promise
that He will not give you more than you can handle... (although I have noticed
that His idea of my limits are a little different than mine!!!) And you can vent
to us....that's why we have this list :-)
Jayne's hubby sent a post to another list we are on together saying that she
came out of surgery well and she hopes to come home today. That is great
news!!!
Thank you Lord!
Well, appears quite a few us are 'flaring' together. And/or having some
spiritual warfare at home. Well, I feel blessed that Satan is so interested in
us.... he wouldn't bother with us if we were not living for Christ.
Melanie, I cannot relate to the alcohol problem, but I have prayed that your
hubby be cut loose from the addiction and that taste of alcohol would make him
ill. But, I do know that his decisions are not yours. Dorothy is absolutely
right. As for the marriage...it it in God's hands. Sometimes you just gotta
get to the point where you give up......then God can do his bit. He can't fix
it if you don't let go..... and because you love your hubby it makes it that
much more difficult to let go. Remind yourself often .... everytime you want to
do or say something regarding his problem... 'let go and let God.' And say a
prayer for hubby whenever you think of him. Cover him, your marriage, your home
and your children with prayer. Easier said than done however....I get so
involved I forget to remind myself or pray.
But I will say a prayer now, for all of you. Well, I think it is off to Denny's
(if I don't get some chicken fried steak and eggs things are gonna get ugly
around here!) and then I think I might just spend today in bed watching Alfred
Hitchcok movies and crocheting, or making paper dolls....or something. I will
check in later......love you all!
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
AIM user name: crochetin4Christ
MSN user name: ouchiemama
http://www.egroups.com/group/ThankYouJesusforThornsonMyRoses (elist for
Christian women living with chronic pain and illness
http://www.geocities.com/christybritain/index
(Christian pages(God's promises, creation vs. evolution, Corrie ten Boom tribute
page, shooting down the big bang theory....and more) recipes, free crochet
patterns, mystery page, Sherlock Holmes page, classic movie page, aromatherapy
'recipe' page, craft ideas, FMS page, homeschooling page and more)
http://www.geocities.com/britainchristianacademy/indexofstudies.html (thematic
on-line unit studies with off-line activites and games grades 2-?)
websites are continual works in progress
Hi Stacey,
YES I DO! Feel free to IM or email me anytime. Keep your faith and chin
up....that's all I can say or do these days!
Claudia
wildbluerosie <wildbluerosie@...
Hi everyone. I'm 31 years old and started going thru. the process for
the trial. I have DDD and my insurance doesn't pay for meds. So I
have had three surgeries and many epi. shots. All of these have not
worked. Next week I have an appointment to get the shrink clearance.
I wish my shrink could do this. I almost never sleep at night
anymore. My doctor calls it sundowning. Honestly it gets to the
point sometimes that I don't want to live but, hopefully with groups
like this it will help. My room mate wants me to get a wheelchair so
that I will feel that I have some freedom again. As you see I live in
a big city and could get around a lot easier but I don't know how I
feel about it I mean after all I'm only 31. Also does anyone have
problems with your disability and anger.
Thanks so much any advice is greatly needed.
~Stacey
Lynda
I have spoken to the Red Cross several times,but they told me today,if I havent heard anything they have most likely died,Slidell took the flooding first w/ no warning,I have someone from Fema who came in at work who is going to check the shelters for me,but warned me to prepare for worst,Red Cross was most likely correct....please keep praying...I have no luck finding lists at all....
love ya
Sandy
Hi Melanie,
Grew up with alcoholic grandparents and my heart aches for you. Your
husband is a grown up, adult human being capable of making choices. His
choices, good or bad, are his, not yours. Beating yourself to death over
his mistakes is rediculous and the tension will soon tell on you and your
children. If I had a husband with a drinking problem and children, and
remembering my childhood, I wouldn't stay with him. No matter what it took,
he would be living somewhere else until he got the help he needs to stay
sober and be a good husband and dad. That's just my opinion from past
experience. I can still remember those nightmare days with such clarity
that I think ANY child being exposed to an alcoholic would have those same
memories later in life. You don't want that!!!!!! I will certainly pray
for you and your husband and children that you all will make the best
decisions to ease your situation. Do not ruin your life by blaming yourself
for his actions. God is good --- and he truly doesn't give you more than
you can handle --- I just often wonder how much is TOO much (G). I'm sure
God has already heard your pleas and is with you even now helping you.
Take care and please know we're holding you in our thoughts and prayers.
Barbara Horton
horton@...
Killen, AL
Have you been able to find out anything about your friends yet? I have
them in thought and prayer, as well as you hon. Love you. Lynda
Well I guess I spoke too soon about my dh and his drinking. I was so happy he
almost made it to 4 months, only 6 more days. I could tell he was having a
mood and it was odd I smelled beer in the house but he hadnt bought it yet,
maybe I was smelling what was to come? I dont know but he came back from the
store with a six-pack : ( I cant tell you how my heart fell when I saw it.
I dont even know what to say to him or how to act around him. I know its
probably not right but I asked him to at least not drink today when my family
is here, I just cant deal with them commenting on it yet and I know they
would. He only drank 1 and 1/2 but I am so scared, I know that is going to
very quickly turn into 2 then 3 then 4.....
My first thought was how did I fail Lord??? What did I let slide that this
confusion and chaos could return?? Why do I think its me that has any
control?? I know its between Mike and God but its so hard. I dont know if I
can do it again. Is the fighting going to start again? We havent had a out
and out argument since he quit. Are the mood swings and distancing from the
family and Church going to start again??? WHY GOD???? I should have known
it was too easy when he quit, I guess I just believed that God could make it
easy and got lulled into a false sense of security. How do I react to this?
How do I hold it together and pretend all is well for the sake of the kids?
How do I act in a way that will be good for my husband?
I am sorry to dump this on you all but I dont know where else to go I dont
want to talk to anyone in real life just yet. Its kind of humilating to me
because I see it as a reflection on me if you know what I mean. Like
everyone is looking at me and thinking how stupid I am to put up with this.
It seems even worse now that he quit for a while and I know what life can be
like without the alcohol.
I am trying to hold on to the hope that its just a slip and it wont progress,
but just what are the odds that it is, not good I would imagine. I dont even
want to be around him, I hate the way he smells when he drinks, I dont like
who he is when he drinks, can I stay in the marriage on this rollercoaster
forever? I dont even know how to pray right now if that makes any sense so I
am asking if you all could pray for me. Thank God for this list!
Melanie
--I am extremely angry. I miss out on so much of life. I am a waiting
my 2nd trial on April 19th. I have become a zombie on the duragesic
patches and all I want to do is lie in bed and watch TV lately. Don't
give up, I hope that the stimulator will give us some semblance of
our lives back and make us more functional. I was also told that what
goes around on the boards is a good amount of negativity because the
people who do well with no complications don't need the boards or a
place to chat. They mostly go on with their lifes so I was told to
take these boards with a grain of salt. Welcome and let us know how
your trial goes. Karel, NY
This says it all!!!
A lot of folks can't understand
how we came to have
an oil shortage here in our country.
~~~
Well, there's a very simple answer.
~~~
Nobody bothered to check the oil.
~~~
We just didn't know we were getting low.
~~~
The reason for that is purely geographical.
~~~
Our OIL is located in
~~~
ALASKA
~~~
California
~~~
Coastal Florida
~~~
Coastal Louisiana
~~~
Kansas
~~~
Oklahoma
~~~
Pennsylvania
and
Texas
~~~
Our DIPSTICKS are located in Washington DC
I just popped in to say hi and I would like to visit this message
board as often as I can. Hey ouchiemama, I made it. Bad day for
headaches - I am just coming out of mine and wanted to get set up
here after our chat last night. Hope to write more tomorrow, I am
very tired as, you guessed it, no sleep and a headache hangover!!
Hope and prayers that you will feel better soon. I shall return on
the 'morrow!! G-nite 4 now!! Mmonroe (better known as Marilyn)
Hi everyone. I'm 31 years old and started going thru. the process for
the trial. I have DDD and my insurance doesn't pay for meds. So I
have had three surgeries and many epi. shots. All of these have not
worked. Next week I have an appointment to get the shrink clearance.
I wish my shrink could do this. I almost never sleep at night
anymore. My doctor calls it sundowning. Honestly it gets to the
point sometimes that I don't want to live but, hopefully with groups
like this it will help. My room mate wants me to get a wheelchair so
that I will feel that I have some freedom again. As you see I live in
a big city and could get around a lot easier but I don't know how I
feel about it I mean after all I'm only 31. Also does anyone have
problems with your disability and anger.
Thanks so much any advice is greatly needed.
~Stacey
Well finally our prayers got through!!!! Debbie, that is the best news I could have hoped for you my dear friend!!! See, when you don't give up on God, he doesn't give up on you. He just had to answer all our prayers for you. If this isn't a prayer answered, I don't know what one is. I am so grateful first that your friends are with you and alive. Sandy, we will be praying for the survival of yours. Everything is just so messed up right now, it maybe that they just can't get word out to you that they are OK. Know they will be in my heart, thoughts, and prayers. The devastation is just so overwhelming I can't even sleep. I feel so deeply for these poor souls, I can hardly stand it. It really breaks my heart. Betty, I know you are going to be feeling better noe that you have seen a few specelicialists and they are changing your meds. working on your sleep. We've known you had fibro for yrs. sorry it has been confirmed, but we knew. At least now they can start treating you for
it and getting you to feeling better. Good to hear Jim's feeling better. My knee is improving daily. I can now walk without the sticks, LOL. Still have some pain but nothing like it was. Thank God for that. Dori, I know you are feeling better but it will take time to get your strength back. Welcome Diane to our RSD family. I am anxious to get to know you better. Love & huggs Lynda [INLINE]
---Dear Rob,
I have gone through the same thing my leads moved after four weeks out
of surgery with the first implant. So my pain doc went back in and did
a revision of the lead. The lead moved shortly after surgery and
caused more pain than any relief. He than sent me to my neurosurgeon
we stayed with the same brand ANS system we tried the paddle lead it
didn't work after surgery. So than two months later they tried it
again and tested it in the OR it worked than but once out it didn't
work. We than found out that the system was defective.
Last April I had a Medtronic System put in and it has helped me a ton.
However when my doctor went in he found lots of scar tissue built up
he had to remove in order to place it in. I have that keloid scar
tissue problem. I have the internal battery system. The ANS was
external with the antena implanted.
So I have had a total of five back surgeries with the stimulator. I
can tell you it was well worth it to get the last one. So any of you
that get discouraged keep pressing forward with it. However that is up
to you if you want to be off drugs or us the stimulator. I do
understand what you are going through because I have been there many
times. My faith in God has helped me know that things would get better.
If you have any questions for me feel free to contact me. I am sorry
that I haven't been responding to alot of the postings my neurosurgeon
has put me on a new medication that makes me nausated. I was already
nausated so it made it worse he is trying to control my headaches with
out doing surgery.
take care
Holly Ut
Moderator
That's cool we all need one of those LOL
Hugs pat CA
GOOD MORNING ALL,
I HAD THE SCS UNIT INSTALL YESTERDAY, SO FAR I HAVE BEEN IN MORE PAIN THAN I
THOUGHT I WOULD HAVE! THE PROGRAM THAT THE REP DID ON ME WAS WHEN I WAS LAYING
DOWN FLAT ON MY BACK, AFTER I WAS HOME AN LAYING DOWN THE STIMULATION HAD
CHANGED FROM WHAT IT HAD BEEN AT THE HOSPITAL! I HAVE A HARD TIME LAYING ON MY
BACK OR STOMACH FOR A LONG TIME, I KNOW THAT THE STIMULATION CAN CHANGE BY MY
MOVEMENT'S. SO FAR IT HAS CHANGED SO MUCH THAT I HAVE TURNED OFF THE SCS. THE
STIMULATION HAS ONLY BEEN IN MY UPPER BACK AREA AND WHERE MY PUMP SITS
BELOW MY RIB CAGE. IT DOES NOT COVER ANY OF MY LOWER BACK OR MY LEGS.
I HAD GOOD COVERAGE WHEN I WAS PROGRAMED AT THE HOSPITAL,I'M GOING TO Call THE
REP TODAY AN SEE IF I CAN GET RE-PROGRAMED BEFORE THE WEEKEND!
THE DOC DID HAVE A HARD TIME GETTING THE LEADS IN THE RIGHT PLACE BECAUSE OF
ALL THE SCARE TISSUE. IT'S SO HARD TO LAY THERE WHILE HIS IS INSTALLING THE
LEADS AN NOT TO MOVE WHEN HE HITS A NERVE, IT'S LIKE POW,
IT'S JUST LIKE GETTING SHOCKED BY AN ELECTRIC FENCE. AFTER THE LEADS SCAR OVER
AN NOT MOVE AROUND LIKE THEY DO NOW, I'M HOPING THAT THE STIMULATION WILL BE
BETTER. SO FAR I'M NOT HAPPY WITH WHAT I HAVE NOW!
HAS ANYONE ELSE HAD THE PROBLEM WITH THE LEADS MOVING AROUND AND NOT GIVING
GOOD COVERAGE ON THE AREA THAT IS NEEDED? THANKS FOR YOUR TIME, HAVE A GOOD
WEEKEND! TAKE CARE.
ROB
IN IDAHO
In a message dated 06/30/2000 22:49:50 Mountain Daylight Time,
crochetin4Christ@... writes:
<<
*** There is an attachment in this mail. ***
Christy, this attachment did not come through. Did you hear from Jayne? How
is she doing?
hugs,
Dorothy
I am on the or schedule on April 19th for my second trial. I guess my
dr is busy. I guess that is a good sign. I will let you all know how
is goes then, Feel good to everyone. Karel, NY
Sandy, try these 3 links that I have here. I will get you more later today from my friends who are here staying with us that came from there.
Debbie
Hurricane Katrina Recovery on FirstGov.gov
American Red Cross - Preparing Communities for Emergencies and Keeping People Safe - Preparedness
craigslist | Katrina 2005
========Original Message========
Subj: [lifelineforrsders] Need help gang....
Date: 9/2/2005 12:24:06 PM Central Standard Time
From: brnx316@...
Dear Christy, don't worry about us girls!! We have all been in your shoes at
one time or another!! You do such an incredible job with this list, please be
encouraged my sister!! I too am feeling soooo awful...I do BELIEVE we are
soul sisters(-: I am lifting you up in prayer tonight In His love and
service, your sister in Christ, Diane
But those who wait upon the Lord shall renew their strength; they shall mount
up with wings like eagles, they shall run and not be weary, they shall walk
and not faint. Isaiah 40:31
Economical Transportation
[INLINE]
A COWASAKI !!
-- Can't you have the rep from the company talk to your dr. No One
says they are suppose to cut you off all your medications at once.
From my understanding they are suppose to wean you off as the
stimulator becomes more effective. If I was you and not getting
results from this dr I would definately find a new dr and explain
what is going on. Your dr sounds like a monster. I would go to
someone else or have the rep talk to him, Karel
ladies, please be patient with me, as I am not doing so hot again. I think we
need a healthy person to run our list!!!!! I must appear so flaky! But,
perhaps all of you can better understand than most. I feel like I am on a
roolercoaster ride, and right now I am even nauseous like I'm on a rollercoaster
ride! I cannot get rid of this nasty headache.....I have taken several T3 and
it is not helping! It's not a migriane..praise the Lord!!!!
I will post the bible studies when I am able.....I just can't think straight
with this headache.
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
AIM user name: crochetin4Christ
MSN user name: ouchiemama
http://www.egroups.com/group/ThankYouJesusforThornsonMyRoses (elist for
Christian women living with chronic pain and illness
http://www.geocities.com/christybritain/index
(Christian pages(God's promises, creation vs. evolution, Corrie ten Boom tribute
page, shooting down the big bang theory....and more) recipes, free crochet
patterns, mystery page, Sherlock Holmes page, classic movie page, aromatherapy
'recipe' page, craft ideas, FMS page, homeschooling page and more)
http://www.geocities.com/britainchristianacademy/indexofstudies.html (thematic
on-line unit studies with off-line activites and games grades 2-?)
websites are continual works in progress
Just to let you know on Friday, 9/2/05, we retained an Attorney for the Land. He is very positive on the situation. IN fact so much so that I have a 24 hour phone number for him and we are not to allow anyone including the law remove us off the land. We have papers in our possession now to show we have him as well. If the law or the Land Co. shows up we call him and either him or his Dad who is also an Atty. will get someone to come and get the papers on our behalf. His Para Legal lives barely 17 miles from us so it turns out. He says they cannot evict us now without a trail. He found more law violations also that were committed against us. Of course he cannot predict the outcome as no Atty. can in any case but he said he feels very positive on this that we will end up with the land free and clear and a large sum of money plus all our Atty. fee's. I cannot tell you how much of a load this took off of us to actually have an Atty. now. He came highly recommended to
us by the Atty. I used for my child support. I also called another Atty. we have known for 20 yrs and asked him if he knew of him since he was the one who recommended the child support Atty. to me. He knows him and said he is one of the best real estate litigators in Houston. He also cut his fee's $50/hr. to us as well. He will allow us to pay him out as he incurs expenses too. His office is in Downtown Houston so we got a 1st hand look at the preparations underway top open the George R. Brown Convention Center to house Louisiana evacuees. So sad this is for all of those folks. My heart just aches for them. We stopped and asked a few people about donating clothes and they said that we can call the phone number they gave us and someone would come and pick them up. We said that we have acreage and that we would be willing to allow persons with travel trailers and RV's to park here if need be so they took out phone number also. I also got more good news on Friday. It
appears the well will be repaired next week late finally and will only cost us $75 to pull it and put on a working pump motor and drop it again. We also will have a tractor then as well ours LOL finally to mow. Yippee. Our friend were here when we got back home finally. The ones who lost their home in Louisiana. They called us Friday morning early and we told them we had to leave for a while but made arrangements with the neighbor we get our water from for them to go and get a shower if they wanted and the keys to get in the gate and the house both. Then after we got home the neighbor lady called after she got in from work (her hubby is Disabled) and she and another neighbor knew our friends were coming and they have made preparations to BBQ brisket and ribs and all the trimmings to bring over on Sunday. They said that they wanted to help the people and since we will have ones here directly affected for a week or so now they were all over the place in offering all
kinds of stuff for them. They even got their church involved in this of all things. This is one that turned me down to take a weekly shower at that is near by. I just cannot tell you how great my Friday was. My and Donna (our friend) are still up, LOL. We have rearranged furniture and everything to make it more comfy for them and they have their own bathroom. They knew before they came we did not have water but they were just happy to have a place to relax and not have to pay the high hotel bill even though they are well off it makes a huge difference when you no longer have anything more than a few suitcases and boxes of personal stuff and no house. She will be taking me Tues. to my Pain Dr. to get my Pump refilled and see if she can get her pump refilled also. They left before the Hurricane and took the time to pack a few important things such as medical records they had and papers and clothing and jewelry and several other things. It was funny when they got here
and dog included but she gets along well with my 3 fixed males, they have a GMC Yukon and it was packed the roof LOL. Tomorrow she wants me to take her to Sam's so she can get a few things also. I feel so good right now about everything even with my legs hurting they seems like noting compared to the huge weight off my shoulder and the peace of mind knowing our friends are here with us. I am sure a lot of stuff will get done around here while they are here as he is very energetic and he will force Mike to get up and help him do whatever. It is nice to have them here as I do not have to worry about making sure they are feed or anything they just make themselves right at home and it is like they are part of the family. Life is so wonderful right now and God did see me through it so far as you did too. Thanks so much for the shoulder. I know this is just the beginning and there will be more Atty. fee's and all but I feel like we have just turned one corner to better
finally. Take care and love you lots.
Debbie
hey its been awhile since i have wrote but noone else seems to know
where i am comming from and i all my family can say is "i dont know
what to tell you" I have the stimulator going on 5 months now and
instead of it taking away at least 50% of my pain i am lucky if it
takes away 30% and that is on a really good day when i can stay off
my feet all day long.And when i go to my doctor he is at the point
at tellin me he dont know what else to do.He took me off pain meds
after he put it in so i have to deal with the pain all the time now
so most of the time all i seem to do in the evenings is cry.I think
it was not worth it,it has cause me to have major headaches everyday
all day long and the box in my back bulges out to the point of
pain.When i do go to the doctor he dont even see me he is in there
with me for like 30 seconds and out.I dont know what to do anymore
im gettin more depressed everyday and im on anti-depressants and
because all of this it is driving me crazy.I want to change doctors
but its a pain to with tricare.What should i do??
Thanks for any advice you can
give me.. Brandi
*** There is an attachment in this mail. ***
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
AIM user name: crochetin4Christ
MSN user name: ouchiemama
http://www.egroups.com/group/ThankYouJesusforThornsonMyRoses (elist for
Christian women living with chronic pain and illness
http://www.geocities.com/christybritain/index
(Christian pages(God's promises, creation vs. evolution, Corrie ten Boom tribute
page, shooting down the big bang theory....and more) recipes, free crochet
patterns, mystery page, Sherlock Holmes page, classic movie page, aromatherapy
'recipe' page, craft ideas, FMS page, homeschooling page and more)
http://www.geocities.com/britainchristianacademy/indexofstudies.html (thematic
on-line unit studies with off-line activites and games grades 2-?)
websites are continual works in progress
Hi all,
Please bare with me as I am so excited. Many of you know that I have
been trying to get my designs published for some time now. Well, I didn't
exactly get one published but it is the next best thing.
In May I sent a design into Leisure Arts, For The Love Of Cross Stitch
Magazine for a contest for a cross stitched Easter egg contest.
Well, today I got a letter stating that my design has won third place. I
am excited about this as it really helps trying to get into this business.
I won $50 for this design. It is not the first time that I have won in a
design contest with Leisure Arts, it is the second, but it has been a while
and lately I have been submitting several designs for publication just to
get rejected. So I am thrilled about this.
The irony of this is I also received another rejection today for another
magazine that I had sent in a cross stitch piece to. I knew from the
envelops that one was bad news and the other was probably good news. That's
life, I guess.
Anyway, if any of you get Leisure Arts, For The Love Of Cross Stitch
magazine, the November issue will announce the winners of this contest and
have a picture of the winning designs and the names of the winners. Hope you
get a chance to see it.
The chart won't be published, but the letter did say that it becomes their
property and they can publish it at any time without further payment. Just
keep your fingers crossed and prayers going that it will someday be published.
thanks for sharing in my excitment.
hugs,
Dorothy
Mine is in my right upper buttcks and is quite sore still. Between
that inciscion and the spinal in lower back incesions for the leads
it is difficult to say the stimulator is helping.
I know that when they tried different programs on the ubit I also
had sciatic pain, but they switched it around and the sensation
stimulation is lower back and legs.
I do not have the pain pump. I have had dreadful reactions to
duragesic, opiates, nuerontin, methadone, gabitril, codeine, and
everything else they have tried.
Going out today as it is a gorgeous sunny day finally. I'll see how
I do. Of course I can't drive for a few weeks.
Mary-Anne
In a message dated 06/30/2000 14:17:31 Mountain Daylight Time,
crochetin4Christ@... writes:
<<
Please keep Jayne in your prayers as she is having surgery today....and
Karnation goes into surgery next week..and Chris is still recovering from
knee surgery.
They could all use extra prayers right now!
Will do, I hope all goes well with Jayne's surgery and yours too Karnation.
hugs,
Dorothy
http://www.biblequizzes.com/
I think instead of me doing a bible quiz and word search and stuff I will just
forward this URL instead. It's a great little website.
About yesterdays bible study..well, um....er, I forgot to do it. So, Next post
will be yesterdays and later today I will todays. I was so restless yesterday,
and I couldn't concentrate at all...so, it is probably better this way!!!
Please keep Jayne in your prayers as she is having surgery today....and
Karnation goes into surgery next week..and Chris is still recovering from knee
surgery.
They could all use extra prayers right now!
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
AIM user name: crochetin4Christ
MSN user name: ouchiemama
http://www.egroups.com/group/ThankYouJesusforThornsonMyRoses (elist for
Christian women living with chronic pain and illness
http://www.geocities.com/christybritain/index
(Christian pages(God's promises, creation vs. evolution, Corrie ten Boom tribute
page, shooting down the big bang theory....and more) recipes, free crochet
patterns, mystery page, Sherlock Holmes page, classic movie page, aromatherapy
'recipe' page, craft ideas, FMS page, homeschooling page and more)
http://www.geocities.com/britainchristianacademy/indexofstudies.html (thematic
on-line unit studies with off-line activites and games grades 2-?)
websites are continual works in progress
Morning Mary-Anne,
My pump is on my right so i'm sure that they will
put the power unit on my left. I there a better place
to put it on your butt/hip rather than where it is
now?
So how is your pain level doing, is it helping with
both legs an back pain for you, also how active have
you been since you have had the stimulator? Does the
stimulattion bother your siatic nerve at all? With the
trial the stimulation it did bug my siatic (sp) nerve,
I could not leave it on to long or on to high. With me
i had the stimulation cranked up, I had it as high as
i could stand it most of the time! I sure hope this
works for the both of us!
Do you have the pump? You probably told me, i'm a
space case once an a while! Hang in there Mary-Anne,
it's got to get better!
Rob in Idaho
Please sign and return to
mailto:Di4Gsus@...
Do not return this to the person who sent it to you, return it to the
person above. This way it will not go off in a 1000 different
directions and never get back to the right person.
--------- Begin forwarded message
I am really taking it easy. DH is a jewel, and even the puppies
know mom needs TLC LOL
Today some of the soreness is leaving. I was doing a little better
each day after day 5, then they removed the stitches on day 8 OUCH,
now here I am on day 10 and I think Iam going uphill now. No
lifting over maybe 3# and no leaning over at all. Sitting, laying
down, and a lot of sleep.
Mary-Anne
Hi Girls!!!!!
I know that I have been awol lately and I'm very sorry about that. I
just haven't been feeling well at all. It seems like the better Jim
gets the worse I get. You know, how you start to relax once the main
stress is gone and then you begin to feel what you wouldn't allow your
body to feel before. All the stress caused me to lose control of
everything, the pain, the RLS, the PLMD. I've been to the neuro and he
is working to get the rls and plmd under control. I've also been to the
rheumatologist and he is trying to get the pain from the rsd and fibro
under control. Both are trying to get me to sleep better so I won't be
so exhausted. I feel better just knowing that they are trying to help.
Anyway, I'll try to do better than I have been as far as being here.
Now, we have a new member girls. Her name is Diane and she joined us a
few days ago. Diane, Please accept my apology for not welcoming you
sooner. I wish you didn't have to be here but I'm glad that you came to
us. Ladies, please welcome Diane to the group. I hope, Diane, that you
will post a little about yourself so that we can get to know you.
Love to All, Betty
Hey does anyone know where I can find any lists of survivors <or non survivors
Any help would be appreciated,seems there are no actual confirmed lists of anything that I can find...
thanks
hope everyone is well
luv to all
Sandy
I just had the stitches removed in my hip/butt at day 7, and also
the ones where the leads are in my back along the spine, day 19.
The ones in my back were no big deal, but wish they'd waited a few
more days to remove the ones in my hip/butt as they are so tender
and sore causing severe pain. It is so difficult to sit or turn
onto my side in bed. Can't begin to lay on that side.
Just a thought for others to consider. I was told they usually
leave them in for 10 days, but I healed "so nicely" they set an
appointment to remove them one week after the inplant. HUMPH!
Mary-Anne
Midlife-------a great time for women!
I can almost feel myself losing weight...by forwarding this to you!
You'll understand at the end.
I've seen two shows lately that went on and on about how mid-life is
a great time for women. Just last week, Oprah had a whole show on how
great menopause will be.... Puhleeeeeeeze! I've had a few thoughts
of my own and would like to share them with you. Whether you are
pushing 40, 50, 60 (or maybe even just pushing your luck) you'll
probably relate.
Midlife is when the growth of hair on our legs slows down. This
gives us plenty of time to care for our newly acquired mustache.
In midlife, women no longer have upper arms, we have wing spans. We
are no longer women in sleeveless shirts, we are flying squirrels in
drag.
Midlife is when you can stand naked in front of a mirror and you can
see your rear without turning around.
Midlife is when you go for a mammogram and you realize that this is
the only time someone will ask you to appear topless.
Midlife is when you want to grab every firm young lovely in a tube
top and scream, "Listen honey, even the Roman empire fell and those
will too."
Midlife brings wisdom to know that life throws us curves and we're
sitting on our biggest ones.
Midlife is when you look at your-know-it-all, beeper-wearing
teenager and think: "For this I have stretch marks?"
In midlife your memory starts to go. In fact the only thing we can
retain is water.
Midlife means that your Body By Jake now includes Legs By Rand
McNally--more red and blue lines than an accurately scaled map of
Wisconsin.
Midlife means that you become more reflective...You start pondering
the "big" questions. What is life? Why am I here? How much Healthy
Choice ice cream can I eat before it's no longer a healthy choice?
But midlife also brings with it an appreciation for what is
important. We realize that breasts sag, hips expand and chins
double, but our loved ones make the journey worthwhile. Would any of
you trade the knowledge that you have now, for the body you had way back
when? Maybe our bodies simply have to expand to hold all the wisdom
and love we've acquired. That's my philosophy and I'm sticking to it!
Send this to four women and you will lose two pounds.
Send this to all the women you know (or ever knew), and you will lose
10 pounds.
If you delete this message, you will gain 10 pounds immediately.
That's why I had to pass this on - I didn't want to risk deleting this.
Enjoy today...
dont sing of yesterday, yesterday is gone ,tommorow isnt written, make today your song
never mind about chat.......
I'm not feelin' so hot I think I'll go lie down!
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
AIM user name: crochetin4Christ
http://www.egroups.com/group/ThankYouJesusforThornsonMyRoses (elist for
Christian women living with chronic pain and illness
http://www.geocities.com/christybritain/index
(Christian pages(God's promises, creation vs. evolution, Corrie ten Boom tribute
page, shooting down the big bang theory....and more) recipes, free crochet
patterns, mystery page, Sherlock Holmes page, classic movie page, aromatherapy
'recipe' page, craft ideas, FMS page, homeschooling page and more)
http://www.geocities.com/britainchristianacademy/indexofstudies.html (thematic
on-line unit studies with off-line activites and games grades 2-?)
websites are continual works in progress