Online Blog

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[INLINE] to everyone for all your prayers and thoughts over the last month.
I have been home from the hospital since late Thursday afternoon but only today have actually felt up to doing anything.
I have not read any emails yet so bear with me as I catch up with you all.
Long story short, what they have diagnosed me with now is giardiasis. It is a diahrrheal illness caused by a one-celled, microscopic parasite called giardia intestinalis or giardia lamblia. It is found in both drinking and recreational water. It is found in soil, food, water or surfaces that have been contaminated with the feces from infected humans or animals.
All the symptoms for this disease I suffer from including the unexplained weight loss. I have lost 15 pounds although to look at me, you would not notice. Some people actually show NO symptoms at all. The symptoms will last 2-6 weeks and can occasionally last longer.
Unfortunately, the drug they use to treat this, I am allergic to. So they had to research and find a brand new drug to treat me with. The hospital pharmacy did not even have it in stock. It was a one time treatment which left the most horrible metallic taste in my mouth. YUCK!!!!
Anyway, I am thankful that they found something without spending weeks doing tests. I am now on the road to recovery. I have given you only a brief explanation of this disease which doctor said can become chronic with some one like me who has a weakened immune system. I would guess that Debbie and Lynda are familiar with this??? It is a disease that is required to be reported to the state health department, so I have been dealing with their phone calls and paperwork as well. If you have time, check this out as I have NO CLUE where or how I got this. And there is only a few ways to get it.
As a matter of fact, I had to laugh at my doctor. He was being so diplomatic about asking me if I had any sexual fetishes without coming right out and asking. It was quite comical. LOL
Anyway, I am going to go read about all the rest of you and am glad to be back to feeling somewhat human again.
Love
Dori

Be very careful of taking St Johns Wort if you suffer hay fever ....... not
all the packages have the warning but if you suffer from hay fever the SJW
can make you verysick. Just because it's natural doesn't mean it's 100%
safe.
Mary Lou TX
Won't you please check out my new E-Business at
http://mdhealthline.com/sgx/assoc/4806

- Dave, He makes a lot of sense. The one thing I hear is that people
have problems with the stimulator implanted in the butt. I have a
port in my abdomen from my lap band that I had done for weight loss
and I don't feel it at all. Your dr may be on to something. If you
get the intrathecal pain pump they put it in your abdomen but from my
understanding , the reason why they put it in your butt is so they
don't have to turn you over on the operating table. Please find out
for me. I am very curious about this. From all I have read he makes
sense about using only one lead as well. Less to have problems with.
I have back pain as well as rib pain but since my rib pain is way
worse they are not even condsidering running a lead to my lower
back. I go to the surgeon tommorrow. I will bring up these questions
for better clarification. When do you go?, Karel

Subject: Dear Jane vs. Dear John

A husband wrote a letter for his wife to find:

To My Dear Wife, You will surely understand that I have certain needs that you with your 54 years can no longer supply. I am very happy with you and I value you as a good wife. Therefore after reading this letter,
I hope that you will not wrongly interpret the fact that I will be spending the evening with my 18 year old secretary at the Comfort Inn Hotel. Please don't be perturbed - I shall be back home before midnight."

When the man came home, he found the following letter on the dining room table:

My Dear Husband, I received your letter and thank you for your honesty.
I would like to take this opportunity to remind you that you are also 54 years old. At the same time I would like to inform you that while you read this, I will be at the Hotel Fiesta with Michael, my tennis coach, who, like your secretary, is also 18 years old. As a successful businessman and with your excellent knowledge of math, you will understand that we are in the same situation, although with one small difference: 18 goes into 54 a lot more times than 54 goes into 18.
Therefore, I will not be back before lunchtime tomorrow.

Good Morning. I have to agree with Karen. I also tried it and had to
stop. I threw the rest of the bottle out not to make a mistake and try
it again.
Becareful when trying these over the counter products they are not for
everyone.
Lee

Hi Dave,
I have spoken with a few doctors and was never told anything about
problems with implants in the cheek area. As far as I know some doctors
do prefer the abs but from what I've heard not that many. The people I
have spoken with have no problem with the "cheek".
I can not understand how you would be better with one lead. Now granted
I don't know a thing about you or your pain, but that just makes no
sense to me at all.
The other thing that bothers me is that he seems to be somewhat behind
the times in saying hardly anyone getting lower back relief. At least
85% of my pain is lower back in origin. I have had remarkable success
with the stimulator in dealing with the lower back.
Do you have the possibility of discussing this with another surgeon?
Take care,
Jeff-NY/PA
Moderator

In a message dated 6/28/00 5:45:38 AM Pacific Daylight Time,
ThankYouJesusforThornsOnMyRoses@egroups.com writes:
<< I wonder why he would put on 'the pill' instead of estrogen? Maybe cuz
you still have one ovary?
Yea he said since I have an ovary and I am still pre-menopausal they dont
like to give the estrogen because it is stronger, with the pill you can get
very small amounts only during the time in your cycle you need it. You are
blessed that you had a full hysterectomy, my doctor even said that it
probably would have been better if they would have just taken the whole
shebang out when they did the ovary, too bad he doesnt do surgery : )
Melanie

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geese. that is what u call a biggggggggggggg mess. sorry my dear. read the book or selection of books , maybe in the library , the tightwad gazette. series, i think there is 3 of great books maybe more. 4 today ur not in poverty plummeted not but 1 cent. 1 cent is poverty. i hope things turn around i believe in the power of prayer, talking to the source ,god, etc. i will put my thinking cap on, u have some nice things to sell, wish we had some bucks to buy soome stuff, we r not broke, but paying on that expensive trip to alaska.and alot of other stuff. worth it tho. ur also alllll the way in texas , darn it. keep trolling, u never know what u might catch.m y thoughts and prayaer r with u hun. say a prayer for us 2 i am physically breaking down, and other stuff. i am doing what i can do and focusing on that. not what i can;t do. pain is not a gain when is causes more pain to gain.i can;t complain!
many fond loving blessigs 2 u and urs.
THERES ALWAYS ROOM FOR IMPROVEMENT ITS THE BEST ROOM IN THE HOUSE..

Just a note on st johns wort...not everyone responds to it in the same way.

I tried it and oh man, couldn't handle it and I was taking the lowest dose noted for it. My husband was fine but I had an opposite response to it. I was on edge and felt like I was coming down off of speed or something. Just thought I'd mention it. I tend to have an opposite response to a lot of things tho. A friend of mine has the same problem and st johns wort does the same to her as it does to me.

~Karen

Hello all,
Thanks for providing this area and taking the time to answer these
questions.
I am yet to do my trial implant, but my doc had some interesting
points that I wanted to run by this group.
First, he said that he implants the device in the abs. He said the
cheek area bothers his patient to much... I had not yet mentioned to
him that it was a concern... Anybody else implanted in the front with
success or problems?
Second, he said I would be better off with only one lead... he
explained that I could get coverage for both legs... One lead would
also give less chance of problems...
He also said he is convinced that hardly anyone gets lower back
relief. Some initially but the relief would drop off drastically...
He explained that some few patients do receive pain relief...This
problem may be due the accessibility to the nerves for the back pain
and then these nerves "desensitizing" to what he said is usually a
higher setting for back pain relief...
Thanks again
Dave

hello all,
i have been distant for a number of reasons , some personal others not so personal. forgive my lack of contact sometimesl i am working on myself and with others in so many healing ,loving ,forgiving,confusing difficul t funny ways . forgive my ugly behavior, it hurgts me 2 see the true colors of others and of the world in itself. i am happy i am not perfect. otherdays i want perfection. its not for me to change anyone but my self. if i smile and compliment others i feel happier and i don;t pick up and drag out a resentment that i may nurse and nurse. i like thisdear god poem because i write poems and really enjoy writing when i can.many people love my writing and how good i am it brings tears to their eyes. its something i love and have a passion for. my class will be starting soon so i will be busy studyig and learning. i have a dollhouse i am working on 2. its been in the shop when i became bedridden for close to twoo years. what a love that i miss. i bake and cook and
am learnin g new ways to do it . a handicapped kitchen would help LOL. i wish my typing was a s good as my writing. peace to all and 2 all a good night. thank u for loving me, and helping me. i sure hope its unconditional. i feel that devious ness is not a quality i want to harbor. ever. its terrible when i see it or feel it anywhere.in the world.
many fond blessings thank u for being here again.
help me get to know u all in the most appropriate ways. tell me what ur boundaries r. i can;t figure it out myself, i have my own boundaries to set ,learn and teach. i will tell u wat i need /aand want as best as i can as honest as i can and as open as i can. give me a chance, i will give each and ever one of u your own chances.
THERES ALWAYS ROOM FOR IMPROVEMENT ITS THE BEST ROOM IN THE HOUSE..

Today is exactly one week since the implant. Doc removed stitches today and I
can have a shower tomorrow. YIPPPPEEEEE
The stimulator wasn't working as it stopped for sonme reason, but they explained
that for some reason it reset. Anyway, it now is working and I am hoping as I
am soooo dang sore in my right cheeck where they inplanted the unit. Lower back
back pain is servere.
The Ultracet helped the pain but gave me such severe headaches I couldn't think.
They took me off it. What the doc prescribed today makes no sense as it is for
arthritis. It is Nabumetone an anti-inflamatory not a pain med. Just weird. I
am currently taking Mobic as Vioxx was taken off the market.
He suggested ice packs.
Mary-Anne

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Two red necks, Bubba and Earl, were driving down
the road drinking a couple of bottles of beer.
The passenger, Bubba, said "Lookie thar up ahead,
Earl, it's a dadgum police roadblock!! We're gonna get
busted fer drinkin' these here beers !

Don't worry, Bubba," Earl said. "We'll just pull over
and finish drinkin' these beers, then peel off the
label and stick it on our foreheads, then throw the
bottles under the seat.

"What fer?", asked Bubba.

"Just let me do the talkin', OK?, said Earl.

Well, they finished their beers, threw the empties
out of sight & put the labels on each of their
foreheads. When they reached the roadblock, the
sheriff said, "Howdy boys, ya'll been drinkin'?"

" No sir," said Earl while pointing at the labels...

"Me and Bubba's on the patch.

HAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHA!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Another "real" man finds out that housework is not a piece of cake
HAHAHAHAHA!!!!!
Even if the majority agrees with an idiotic idea, it is still an idiotic
idea.
Mary J

---Welcome Jan. I am about to start my second trial. I am also a
registered nurse of 27 years so tell me what you want to know? Is
your husband on a lot of medication for his pain? Karel

Subject: Dear God,

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Dear God,
I'm writing to say I'm sorry
For being angry yesterday
When you seemed to ignore my prayer
And things didn't go my way
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First, my car broke down
I was very late for work
But I missed that awful accident
Was that your handiwork?
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I found a house I loved
But others got there first
I was angry, then relieved
When I heard the pipes had burst!
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Yesterday, I found the perfect dress
But the color was too pale
Today, I found the dress in red
Would you believe, it was on sale!
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I know you're watching over me
And I'm feeling truly blessed
For no matter what I pray for
You always know what's best!
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I have this circle of E-mail friends,
Who mean the world to me;
Some days I "send" and "send,"
At other times, I let them be.
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I am so blessed to have these friends,
With whom I've grown so close;
So this little poem I dedicate to them,
Because to me they are the "Most"!
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When I see each name download,
And view the message they've sent;
I know they've thought of me that day,
And "well wishes" were their intent.
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So to you, my friends, I would like to say,
Thank you for being a part;
Of all my daily contacts,
This comes right from my heart.
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God bless you all is my prayer today,
I'm honored to call you "friend";
I pray the Lord will keep you safe,
Until we write again! .
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Happiness comes through doors you didn't know you left open.

Christy ....
I know I'm not a doctor, but have you ever tried St
John's Wort? It just concerns me when people ahve to
take anti-depressants becuase sometimes it seems to do
more harm than good. I've been through depression -
theyu wanted to put me on Prozac but I refused and
made it through.
last year when we were losing the baby my husband went
through a worse depression than ever. A friend
suggested he try this, and it has made such a
difference! And another lady I know who has just been
through similar trials has also just dumped her
anti-depressants and gojne onto the wort, and it has
been better - she doesn't feel so gaumless!
The only thing is ---- if you have to have an op just
nake sure to tell the sandman, as it affects the
anesthetic!
Love always
Joanne
ps - and don't worry that I unsubbed from that other
list ---- I'm moving certain lists to a different account!
=====
Joanne P. Eva \0/\0/\0/ <
YOUR VISION IS YOUR ONLY LIMITATION
"Preach the gospel at all times - If necessary use words." -St. Francis of
Assissi
Alt. e-mail address: jeva_nehemiah@...
Website: http://www.heartwarmers4u.com/members?christiangirl

Hi!
[INLINE] How's it going? [INLINE] Just wanted to say Hello!!
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Not much going on here.
[INLINE] So how are you?
[INLINE] Actually, I don't have anything to say.
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But I had to do it!!
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I just wanted to BUG you for a minute.
[INLINE] After all, isn't that what friends are for?!
[INLINE] Thanks for being a friend!
[INLINE] Now go BUG the rest of YOUR friends!
[INLINE] Good bye! !

Hi Mary -Anne,
Sorry you're having so much pain. We all are different but it was about
2 weeks before the pain from the incision let up for me. I wish there
were a set date I could give but that's not realistic.
Have you been using the stimulator?
Take care,
Jeff-NY/PA
Moderator

Dear Michelle, I will keep in my prayers throughout the week and next week as
well. I also had a hysterectomy three years ago at the age of 33. I wanted
to write to you to hopefully encourage you and help relieve some of your
anxiety. I am not sure why you need to have the surgery but in my case I has
almost instant relief from the constant pain and bleeding I had been having
for several years prior to my surgery. Although I did have some post
operative pain it was nothing compared to what I had been living with. I was
able to go home from the hospital 48 hours after my surgery and I remember
being fairly comfortable with pain medication. Please be assured that while
hospitalized you will also be fairly comfortable. As a former working RN I
can say that the emphasis on pain relief is much greater today than it was a
decade ago. In the hospital I had a patient controlled analgesia pump (PCA
pump) right up until the time I was discharged. Also I was up and about two
weeks after my surgery. (Believe me when I say I
am NOT very pain tolerant ,I live with lupus/FMS every day.) MY prayer for
you this evening is that this helps even if just a little bit. I found
meditating on Psalm 34:4 very comforting as I awaited my surgery; I SOUGHT
THE LORD AND HE HEARD ME AND DELIVERED ME FROM ALL MY FEARS.(Psalm 34:4). If
I can be of any other help please let me know. In His love and service,
YSIC, Diane
But those who wait upon the Lord shall renew their strength; they shall mount
up with wings like eagles, they shall run and not be weary, they shall walk
and not faint. Isaiah 40:31

OK, I am 6 days into this and yes I hurt like crazy both my lower back as
always, but where the stimulator was put in plus the spinal wires. So what is
the aftermath? How long before I can sit confortably and not scream, etc.?
Mary-Anne, who wants to know please
<<What made me kind of mad was, I didn't find out what all the aftermath
of this surgery was going to be..........people on this site, Medtronic
Rep and my disability caseworker enlightened me.

<A HREF="http://www.geocities.com/Wellesley/Garden/2806/page5.html"
here: ~ BEAUTIFUL QUOTES ~</A

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Subject: THE PASSING OF GAS........

All About Farts.
A fart can be quiet,
A fart can be loud,
Some leave a powerful,
Poisonous cloud

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A fart can be short,
Or a fart can be long,
Some farts have been known
To sound like a song......

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A fart can create
A most curious medley,
A fart can be harmless,
Or silent , and deadly.

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A fart might not smell,
While others are vile,
A fart may pass quickly,
Or linger a while......

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A fart can occur
In a number of places,
And leave everyone there,
With strange looks on their faces.

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From wide-open prairie,
To small elevators,
A fart will find all of
Us sooner or later.

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But farts are all bad,
Is simply not true-
We must not forget.......
Sweet old farts like you and me too.

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Just a quick note to let you all know I am alive just in a ton of pain right now. I think I have told you before about my top back left molar that 2 sides are broken off and 1 down to just below the gum line. Well, as of Friday evening I had a gold crown on the top back right side come off. I have some of that Temp-Dent stuff but I cannot get the crown to fit back in place. So I put the crown in the Crown saver jar with milk as it said to and tried to pack this stuff into the gaping hole. It will not stay in it crumbles out. So I spent my night last night putting Oragel on these teeth every 2 hours. I am so upset on matters I am having to deal with. They cut our food stamps down to $144 a month and that was unexpected. I was barely being able to do it when it was $202 a month now I have no idea how this will work. Then I do not have enough money to pay the electric bill no later than the 29th so it will get shut off for sure. I would have had the money if I had to
had to pay 3 different Attorney's a consultation fee to talk to them about our problem with the Land. I think between the 2 of us we have a grand total in our pockets and the bank a whopping $23.63. From that I have to buy gas to get me to the Myelogram this coming week, dog food, toilet paper, shampoo, propane to cook with and paper towels. It will not stretch far enough. Oh I almost forgot I also have to go and pay $15 to keep my wedding rings in the Pawn shop another month or lose them. The min. I can get my teeth addressed for is $100 at the Dental School in Houston. So I am screwed, glued and tattooed for sure. It is currently raining again so I am sure we will not get any people by today for the yard sale we are trying to have currently. So far no one has come by and I am betting it is due to being so muddy n the roads. If I had a way to haul these 2 refrigerators and chest freezer to the Pawn Shop I would at least Pawn them as surely I could get for all 3 of
them about $200, but that would still leave me about $150 short. What to do what to do I am so tired of this crap I could just scream. This is not life this is suffering. Oh did I mention in all these bills there is an additional $100 that needs to be paid to keep the phone on and pay the car insurance. I have some money coming in this coming week but no where near enough to pay all of this. Any idea here from anyone as far as suggestions on how to raise money? I wish the rain would let up enough so we could get a good turn out for the yard sale. I have my dining room table for sale also and we have a ton of tools for sale and we are practically giving this stuff away like 3 extremely nice deer blinds for hunting that include ball bearing chairs and tower stands (new these things cost almost $2000 each), generators, power washers, airless paint sprayers, air compressors, drill presses, table saws, a huge name brand gun safe and a lot more. My best estimate of how
much we could make if we were able to sale all of this would be about $4000. My husband has a nice expensive Meade 10" Telescope plus eye pieces and a lot of accessories for sale on E-bay but so far nothing and that alone is worth no less than $2000 as new all together you are looking at about $8000 for all of this. I just do not understand why the guy who promised to help us as he too is interested in buying the land why he just fell off the face of the earth and has our tractor which actually belongs to my father in law as we sold it to him on paper for money over a year ago. I guess I do not do pain and poverty well. I am going so I can see about getting some water from the neighbors for this week. Take care all and if you do not see much of me in coming days know I am down and out in pain here and depressed to boot.

Love Ya

Debbie

For those of you about to go into surgery shortly, I wanted to share these
verses with you.
This was my Daddy's favorite verse for comfort as well as mine.....
Thou wilt keep him in perfect peace, whose mind is stayed on the; because he
trusteth in thee.
Isaiah 26:3
I will both lay me down in peace, and sleep; for thou, Lord, only makest me
dwell in safety.
Psalm 4:8
When thow liest down, thous shalt not be afraid: yea, thou shalt lie down, and
thy sleep shall be sweet.
Proverbs 3:24
Peace I leave with you, my peace I give unto you: not as the world giveth, give
I unto you. Let not your heeart be troubled, neither let it be afraid.
John 14:27
This is my comfort in my affliction: for thy word hath quickened me.
Psalm 119:50
For I will restore health unto thee, and I will heal thee of thy wounds, saith
the Lord.
Jeremiah 30:17a
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
AIM user name: crochetin4Christ
http://www.egroups.com/group/ThankYouJesusforThornsonMyRoses (elist for
Christian women living with chronic pain and illness
http://www.geocities.com/christybritain/index
(Christian pages(God's promises, creation vs. evolution, Corrie ten Boom tribute
page, shooting down the big bang theory....and more) recipes, free crochet
patterns, mystery page, Sherlock Holmes page, classic movie page, aromatherapy
'recipe' page, craft ideas, FMS page, homeschooling page and more)
http://www.geocities.com/britainchristianacademy/indexofstudies.html (thematic
on-line unit studies with off-line activites and games grades 2-?)
websites are continual works in progress

lynda, thanks for all your concern. She got home from the hospital today so now you can send messages to her. She has a parasite, but will let her tell you about it. Take care to all of you. God Bless, Donna

--- OMG Claudia, Thankyou for such an honest and heart felt response.
You have just made my day with the encouragement and positive
thinking you have suggested. I am just so scared and praying that
this 2nd trial will do the trick. My first trial was not good because
the leads were in the wrong place and the stimulation I was feeling
was too low and too much to the left of the pain. The drs swear that
the stim will give me the relief that I need I am just so tired of
having no life. My family were all here for dinner last night and I
hid in my room. I have a hard time tolerating large groups and a lot
of stilulation. I use to be the center of attention in a crowd.
Thanks again. I am gonna call the surgeon right now to schedule my
pre op testing and get going with the 2nd trial... Karel

Sandy and all, it's a done deal. I told Donna that the whole group was praying for a speedy recovery for Dori, that we all missed and loved her very, very much. That all of us are worried about her and to please keep us posted as to her recovery. She seems so sweet but worried as we all are. If I hear a word, I will post the email as I did the last one for the whole group. I'm sure Betty will too if she hears anything also. We will certainly pass the word if we hear anything, keep up the prayers everybody. Love to all, Lynda

No one has responded to last weeks bible trivia quiz.....?????????? I will post
another in a few days.
AND, did anyone find the word search any fun?
thanks!!!!
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
AIM user name: crochetin4Christ
http://www.egroups.com/group/ThankYouJesusforThornsonMyRoses (elist for
Christian women living with chronic pain and illness
http://www.geocities.com/christybritain/index
(Christian pages(God's promises, creation vs. evolution, Corrie ten Boom tribute
page, shooting down the big bang theory....and more) recipes, free crochet
patterns, mystery page, Sherlock Holmes page, classic movie page, aromatherapy
'recipe' page, craft ideas, FMS page, homeschooling page and more)
http://www.geocities.com/britainchristianacademy/indexofstudies.html (thematic
on-line unit studies with off-line activites and games grades 2-?)
websites are continual works in progress

Hello Everyone,

Sorry about the mass mailing but I wanted to get this written and over with. I go into the hospital on July 5th for a hysterectomy. We will be leaving Sunday the 2nd for the lake for the 4th holiday and then I will go to the hospital the 5th at 9am for the surgery. Please keep us in your prayers. I know this is something that many people have had done, but at any rate I am a little bit apprehensive. I will miss each and every one of you and all the fellowship I have through the net with you all. I have thought about taking the laptop to the hospital with me and I may yet but I am not sure how I will feel, so we will just have to wait and see. The doctor said I can expect a 3-5 day stay after the surgery. As I said before please keep us in your prayers! Thanks so much,

Michelle (Karnation)

~ ~ ~ ~
"May the Lord be as welcome in your world as you are in His."

"The price of hating other human beings is loving ones self less."

Visit us:
http://www.geocities.com/the_skinners_tx
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~

If you would like to be removed from our address book please email donot_mail_me@...

Karel,
My heart goes out to you. I don't think I'd say I was on as much meds as you
are........before the stimulator I was taking 30mg of Oxycontin three times a
day and they tried Neurontin and Vioxx (I put 15 pounds on in 3
weeks.....swelled and puffed up so bad), then they tried Topamax...started on
25mg and within 2 months I was up to 250mg twice a day. I had my days where I
wanted to dig a hole and crawl in and never come out. I, also, was beginning to
believe life would never be the same for me again! I had the trial stim on Oct
14th and perm one Octo 18. WHAT A DIFFERENCE.....it's just a pain trying to get
used to the aftermath of the implant. I am totally off the Oxycontin and I'm
now on Keppra 500 mg three times a day and Pamelor 100mg to help me sleep. Yes,
I've been having a rough time getting used to working with this life
change....but, I am able to do some of the things I never thought I would. My
doctors and Medtronic Rep are very happy and pleased with me because I
gather not too many success stories are out there on stimulators placed in for
the cervical pain. My fingers feel like fingers again (most of the time), I can
get out of bed everyday and be productive!!!! I'm even going to the gym (doctors
orders) and I'm taking off the weight!!!
Try not to beat yourself up toooooo much for what has been done to you. I did
the same thing over the sympathectomy that they did to me and my psychologist
told me I shouldn't feel guilty about something the "doctors" did........I was
at the point where I didn't want anymore doctors touching me!!!!!!!! I went
into the last resort (stimulator) with a lot of doubt and mad because it was my
only option they were giving me!!!!!!! I have two great doctors and a great
PCP. I'm in good hands now and my Medtronic Rep is always there if I need
him..........he has had to adjust me about 5 times since I went back to work in
January. I think this time he's got it.
What made me kind of mad was, I didn't find out what all the aftermath of this
surgery was going to be..........people on this site, Medtronic Rep and my
disability caseworker enlightened me.
By the way, on my visit to the pain doctor Thursday........I told him I wanted
someone to please explain why my RSD systoms weren't going away...........he
actually sat with me and told me. Took a weight off my shoulders because I
thought I was going crazy. I think I'm willing to live with the discomfort
because I was right where you are now! Every day seems to be sooooo long!!!
And, it's so frustrating trying to get out and do something so "little" and pay
for it later by spending days in bed. I used to go 6 days/nights with no sleep
and sleep on the 7th. I still have to take meds so I can sleep...I may get 3 to
4 hours a night with the Pamelor. And pending on how active I was, the pain
level was thru the roof! Then both my arms/hands and fingers totally shut down
on me.....that's why my doctors were and still are so pleased with how far I've
come since October.
I don't think anybody except the ones that can truely relate to you problems and
pain can understand and help you. The people on this group were such a comfort
to me back then and still are today!!! Don't beat yourself up, know that it's
going to come to an end soon and you've already done battle with the worse of it
all! And, I thought I would have to go into detox too........but the doctors
got me off with no problems. As they kept saying to me..........you are not an
addict...your body is dependent on the drug. I went thru withdraw just fine.
If you have the faith and confidence in your doctors.......just hang in there a
little longer..........I know, the pain starts talking to you and you just want
to die sometimes............My pain doctor called me a "walking miracle"
Thursday...........I hope and pray that you join me in that
title!!!!!!!!!!!!!!!!!!! Looking back on how bad I was.......he's
right!!!!!!!!!!!!!!
Take Care and keep us informed of what's going on. We are all here if you need
us!!!!
Claudia
Karel <lovinglife530@...
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From: "Karel" <NYWhiteangel@a...
Date: Sun Feb 27, 2005 3:03 pm
Subject: is anyone on as much medication as I am?
ADVERTISEMENT
I am on Duragesic patches 300 mch every 48 hrs and roxicodone 30 mg
evert 4- 6 hrs for break through pain. I have been taking about 3of
them per day lately. I am going for my 2nd trial for the nerve
stimulator on March 8th, but I am so angry that I allowed myself get
to such an enormus dose to begin with. I see others on this board
on 1/4 as much as what I am up being offered the nerve stim or the
pump. My life is on a complete stand still. Just going to visit my
b/f's mother in the hospital yesterday, I can hardly get out of bed
today. I have no life at all now as I wait for my dissability to
hopefully be approved or some new treatment to be effective. I am so
frustrated I want to crawl under a rock and die. I am losing my
patience fast. Sometimes I feel like I should go into a detox and
just start all over again but I am scared to death of the pain
increasing out of control during withdrawel. Any ideas? Karel

In a message dated 6/24/00 9:22:29 AM Central Daylight Time,
lmskinner@... writes:
<< I really enjoyed my evening. she went on to say. But what about afterward?
her friends wanted to know. It didn't work out, Jenny said. Charley was too
tired.
At least he did not say he had a headache. Hahahaha.
Jan

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From: "Karel" <NYWhiteangel@a...
Date: Sun Feb 27, 2005 3:03 pm
Subject: is anyone on as much medication as I am?
ADVERTISEMENT
I am on Duragesic patches 300 mch every 48 hrs and roxicodone 30 mg
evert 4- 6 hrs for break through pain. I have been taking about 3of
them per day lately. I am going for my 2nd trial for the nerve
stimulator on March 8th, but I am so angry that I allowed myself get
to such an enormus dose to begin with. I see others on this board
on 1/4 as much as what I am up being offered the nerve stim or the
pump. My life is on a complete stand still. Just going to visit my
b/f's mother in the hospital yesterday, I can hardly get out of bed
today. I have no life at all now as I wait for my dissability to
hopefully be approved or some new treatment to be effective. I am so
frustrated I want to crawl under a rock and die. I am losing my
patience fast. Sometimes I feel like I should go into a detox and
just start all over again but I am scared to death of the pain
increasing out of control during withdrawel. Any ideas? Karel

hi Mealanie
I wonder why he would put on 'the pill' instead of estrogen? Maybe cuz you
still have one ovary? I had horrible mood swings and depression, partly caused
by my homones. I was even suicidal. Then had the hysterectomy........so much
better! Hormones were making me crazy! I take estrogen tablets....both of my
ovaries were removed. (yeah!!!!!!!!)
That is great that you found a Dr. with a sense of humour and compassion!!!!! I
would like one of those!!
I had an awful night........I was in so much pain. I took robaxin and ultram
(been eating it like it was candy for 3 days now) then took 1/2 a vicodin.
Still in lots and lots of pain...so then I took a percocet, a whole percocet. I
so dislike that 'drugged' feeling.....ewwwwwwwwwwww. It almost threw me into a
panic attack....I still had bad pain in specific spots and general all over
'achiness' but it was definately better than before. But I couldn't sleep cuz
of the 'drugged' feeling....and then by the time it wore off enough to sleep,
the bad was too bad to sleep. When I did drift off I had horrible dreams. But, I
had to check my email as soon as I got up. I think I am an elist junkie. Maybe
I'll start a support group for that!! :-)
--- Dizzy94@...
src="http://adimg.egroups.com/img/5897/1/_/_/_/962116874/468x60_summerfun_fullba\
nner1.gif"
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
AIM user name: crochetin4Christ
http://www.egroups.com/group/ThankYouJesusforThornsonMyRoses (elist for
Christian women living with chronic pain and illness
http://www.geocities.com/christybritain/index
(Christian pages(God's promises, creation vs. evolution, Corrie ten Boom tribute
page, shooting down the big bang theory....and more) recipes, free crochet
patterns, mystery page, Sherlock Holmes page, classic movie page, aromatherapy
'recipe' page, craft ideas, FMS page, homeschooling page and more)
http://www.geocities.com/britainchristianacademy/indexofstudies.html (thematic
on-line unit studies with off-line activites and games grades 2-?)
websites are continual works in progress

Scarlett, I would like to have Dori's mom's email addy. I want to send
Dori a note or two.
Dixie

LET NOT YOUR HEART BE TROUBLED

"Let not your heart be troubled,
Give your worries and cares to me.
I am your heavenly Father
Who suffered and died for thee.
There are times throughout your earthly life
When you're filled with doubts and fear.
Always come to Me in prayer
And know that I am near.
The love I have for you, dear child,
Can never be bought or measured.
It's a gift I freely give to you.
It is my most precious treasure.
When sorrow and pain come your way
And life seems to be unfair,
Let not your heart be trouble
Just come to me in prayer."

~ ~ ~ ~
"May the Lord be as welcome in your world as you are in His."

"The price of hating other human beings is loving ones self less."

Visit us:
http://www.geocities.com/the_skinners_tx
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~

If you would like to be removed from our address book please email donot_mail_me@...

Howdy, I'm new to the forum and this is my first posting so it may
seem a bit long. My wife is considering having an spinal cord
stimlator implant but is having trouble getting any answers from her
Dr. as we live 150 miles from the office and don't get in to often.
Her pain is located in the lower back and down the legs. The
following is a list of questions she has, How long after the surgery
can she return to work? How much will her activities be curtailed?
How much relief can she expect? How long is the recovery period? I
think they are going to use a RF type control, is it best? Is there
much sensation in the back while the unit is operating? Please email

Hi everyone, just wanted to let you know how it went at the doctors. I feel
pretty good about it. We decided we didnt want to use a treatment that I had
to take everyday but would go the route of meds as needed. I got Zortex (?)
an anti-inflamatory to take at the first sign of a flare then if that doesnt
work he gave me Altram. I took the Altram last night and it worked
wonderfully. I woke up without a head/neck ache for the first time in
weeks!! He also put me on Progesterone since with having the baby and all
the surgries I have had it was not where it should be so I am hoping that
will solve some of my mood problems....I know dh sure is : )
He first suggested anti-depressants but I listed all the ones I had tried and
that they made me REALLY wacky and sick. He was funny at the end he told me
that there was a lot to think about, a challenge and I told him not to
challenge my poor brain I am lucky I can remember my name and he said he
wasnt talking about a challenge for me he meant I was a "medical challenge"
LOL I told him I didnt know if I should take that as a compliment or not : )
He also said that if I didnt clear up with the progesterone I would need
estrogen and then he says the treatment for that would be putting me on the
pill and commented on how ironic that would be.....yes the irony of that is
hilarous considering I had my tubes tied so I wouldnt have to be on the pill
nor worry about a possibly dangerous pregnancy, and had 2 other surgries, one
where they took out my right ovary because of problems and that surgery was
supposed to finish my problems once and for all...just hilarious isnt it... :
)
Oh well at least I have a wonderful doctor with a sense of humor similar to
mine, we both seem to laugh at things that most would cry at which makes it
much more pleasent when dealing with this.
So there is my news for the week...oh yea and just to share, I am down to 148
so I only have 10 more pounds to go and I will be pre-baby weight! I guess
being sick does have its advantages
Melanie
who is always looking for the blessing in disguise : )

Hi Lynda, I am Dori's mother. She asked me to write the group and let
you all know that she is in the hospital for tests. She has been sick
about a month now throwing up and diarrhea. She had a test this morning
on her upper GI tract and her small colon. We are waiting for the
results of that and if that doesn't show anything, then tomorrow she
will have the lower colon tested. The doctors are really confusing us
as 3 doctors at the clinic say her exrays of her abdomen are normal and
the emergency doctor at the hospital says she is completely blocked
with BM. I don't know how they can have such conflicting ideas, so they
admitted her yesterday to see what is going on. I told her if we don't
get any satisfaction from these tests, she is going to be referred to
an internal medicine specialist. This nonsense has gone on long enough.
I hope everything is going good for everyone else. Dori says hi and we
will keep you posted. She doesn't have access to internet up at the
hospital, so any messages will come through me for a couple of days.
Take care, Donna Beynon

Linda
Thank you for taking the time to answer and give words of encouragement. I do
so appreciate it. It has been 3 days since they implanted the Medronix Synergy
Spinal Stimulator. I am in a lot of pain due to the incesion, sticthes, etc,
but am very hopeful.
I will have the sutures removed on Tuesday and I know this will help ease the
pain a lot. I am fearful of turning the unit on as I hurt so much, but really
must try it. LOL Afterall, that is why I had it done.
I reacted (hives-itching and hyperness) to the pain killer codiene. Today they
gave me Ultracet to help ease the pain. I just have a terrible time with most
of the meds-opiates, oxycontin, nuerontin, etc.
I swo understand your loosing a child and the grieving process. We lost our
youngest son 7 years ago and it still is there everyday. All I can tell you is
that it never goes away, but it gets different as time goes on, we do heal, but
you will always miss them.
Mary-Anne

In a message dated 06/26/2000 16:55:32 Mountain Daylight Time,
cjnfour@... writes:
<< http://www.justsaywow.com/friendsarespecial.htm
thanks Jayne for the beautiful card. I hope you are feeling good today.
Hugs,
Dorothy

Lynda,

I will pick you up. We make a pair with our legs LOL. Between the 2 of us we may manage 2 good feet to drive with LOL. Hate to hear about you not being a good surgical candidate as that is the fastest way for you get past this, but I know all about this situation as well. My Ortho. puts in overnight when he does my knees now. He has an Epidural block put in to block my legs to help keep there from being any complications from surgery on my RSD legs. So far it has not flared up really all that bad after. The Epidural is left in place a good 12 hours after the surgery also for pain control reasons. What he does with me is not general anesthesia he uses the block and then just IV sedates me. I hear I am a real cut up during surgeries as with just IV sedation you are not totally out and I have been told I sing and give cooking lessons and tell jokes. As far as Dori is concerned I think we have all been real concerned about here and the problems she is dealing with
currently. However, I did not see a note from her Mom. Did just you get it or did I miss this or something? I am praying Dori gets seen immediately by a Gastro. Dr. as that really sounds like what she needs right now. Nothing worse than being flipped around from Dr. to Dr. and not one of them gives a thought to consulting a Gastro Dr. I am heading off to go to the store so we can eat tonight. Have meat need something to go with it LOL. Take care all and Lynda, please keep up updated on Dori I am very concerned about her as I am a few others here as well you, Betty, Sherry, Sandy to mention a few oh and of course Sheree my partner in crime LOL just kidding Sheree. Love you all like sisters.

Debbie

Well, here I am one day after having the permanent Medronix Synergy Stimulator
inplant done. I am feeling much better than I expected even after 2 hours on
the table under general anethesia.
Time will tell. Stitches are painful and I am dang sore, but that is to be
expected. Tomorrow I go to have the dressings changed and probably will try out
the stimulator unless I am still too sore.
As to Jerry Lewis switching to ANS sounds like marketing of ANS to me. Jerry
was just here in the San Franisco Bay Area at Stanford Univerisity Hospital in
particular promoting the Synergy unit! He also was recently on the Dave
Letterman Show praising the machine he has. He says it saved his life as he was
on the verge of commiting suicide as he ouldn't go on with the unrelenting
anguising pain.
I don't really think it is a matter of this machine is better than that machine,
but whether a spinal stmulator is the answer for your particular pain issues. I
mean it's sort of like saying my Sony Vaio is better than my husband's Dell or
vice versa. Actually our Mac is the best......for some things like graphs,
colour and design applications. LOL
Looking forward to planting a Spring garden on my own like I used to.
Mary-Anne

http://www.justsaywow.com/friendsarespecial.htm

Hi. I just wanted to inform you of the organization I'm getting my stimulator
(mine is form ANS). This is supposed to have more options, in terms of
programming correctly. I also was told that Jerry Lewis is switching to ANS.
Just trying to help,
Angie
Mary-Anne Durkee <shantihhh@...
Holly
That is a wonderful testimonial for Medronix and the spinal stimulator success.
My doctor told me patients with leg and foot pain improve the most. He said
lower back sucess is minimal and I shouldn't expect much.
Is there anyone here with lower back pain who has relief from the stimulator? I
have spinal stenosis, degenerative disc disease, and 3 ruptured/herniated
discs. I also have pereformis issues.
I injured my back by squatting down to repostion a oir door mat at work. It was
floppy and I lost my balance and twisted. a BIG OUCH! The next day and all
night I was in severe pain. I won't vbore you with the issues and trails of the
months sine June 3 1998.
I am going to 62 in April and had always led a very active life not sports
however. Doc says my discs are worn out. My mom is 81 and in our family
reaching mid 90's is typical. I have a lot of places to go and things to do!
LOL
Mary-Anne

Signs Your Cat Has Learned Your Internet Password

- E-mail flames from some guy named "Fluffy."

- Traces of kitty litter in your keyboard.

- You find you've been subscribed to strange newsgroups like alt.recreational.catnip.

- Your mouse has teeth marks in it... and a strange aroma of tuna.

- Hate-mail messages to Apple Computers, Inc. about thier release of "CyberDog."

- Your new ergonomic keyboard has a strange territorial scent to it.

- You keep finding new software around your house like CatinTax and WarCat II.

- On IRC you're known as the IronMouser.

- Little kitty carpal-tunnel braces near the scratching post.

Mon. Mark 12:38-44
Tues. John 11:1-16
Weds. John 11:17-31
Thurs. John 11:32-44
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
AIM user name: crochetin4Christ
http://www.egroups.com/group/ThankYouJesusforThornsonMyRoses (elist for
Christian women living with chronic pain and illness
http://www.geocities.com/christybritain/index
(Christian pages(God's promises, creation vs. evolution, Corrie ten Boom tribute
page, shooting down the big bang theory....and more) recipes, free crochet
patterns, mystery page, Sherlock Holmes page, classic movie page, aromatherapy
'recipe' page, craft ideas, FMS page, homeschooling page and more)
http://www.geocities.com/britainchristianacademy/indexofstudies.html (thematic
on-line unit studies with off-line activites and games grades 2-?)
websites are continual works in progress

--- from what I hear, this stimulator should be perfect for your type
of pain. You have to have a 5 day trial anyway. During the trial you
can decide whether you like it or not. You have nothing to lose by
having the trial.

HI Dori,

Well it sounds like you have had a very hard time of it still. A week ago I suggested you do a colon cleanse. You need to do that PLEASE!!! Every person should actually have a bowel movement after every meal. That is what would be totally normal for all of us. Again after every meal we eat we should have a bowel movement!!! Of course we don't since almost or 99.5 percent of the population eats food from the grocery store that has all kinds of pesticides in it. The ideal diet would come from organic stores and eat only organic grown food and meats. Plus the fact we all take drugs and antibiotics! Which is harmful to our systems!!!

It doesn't matter what you have wrong with you or your colon you need to do a colon cleanse!!! It will NOT harm you in any way, only HELP you in the long run. As I said you might need to do that once a month for at least 2 to 3 months. Then at least 2 times a year we all should do that. Our colons are liken to a oil filter to a car. It needs cleaned out every so many miles 3 to 5 thousand miles which is the recommended maintnance for most cars except Honda's which is 5 thousand miles without fail or you do harm to it. It is the same way with our colons Dori!!! Yes you can have diarrhea and still have a partical blockage and it is the actuall blockage that gives you the diarrhea since your colon can't and isn't functioning properly.

get a referral to a GI DR. or Internist DR. Sure there could be another underlying problem besides but you need to stop messing around with this and make that appt. and in the interium do that colon cleanse as it will help you. I had a similar thing happen to me over a year ago. Well I certainly hope you get better my friend and fast.

Things are a little better around here and Shelley hasn't had anymore black outs. Now her eyes are swelled one swelled shut and both hurting her this morning and both running as she hasn't bought new contacts as her eye Dr. has told her to do and stop wearing real old ones in her eyes (the throw away kind) we have told over and over to get new ones or she is going to get bad eye infections and loose her eye sight eventually. Of course she never listens to Dr. or to anyone as she thinks it will not happen to her as always and she doesn't learn from past experiences at all. STUPID! STUPID!!!

soft hugs and prayers

sherry

I hated my first trial. It was about 2 months ago. The stimulation I
was feeling was about 3" to the left and an inch down from where my
pain is. I also had the stimulation running down my left leg. My dr
was in a hurry to catch a plane. I have intercostal neuritis and 2
failed back surgeries with further herniations over my fusion. My
main concern is my rib pain because that is what keeps me in bed. I
do get pain in my back at times but only when I walk or stand. On the
first trial I was able to tolerate the stimultor during the day and
it seemed to distract me from the pain. At night I had to take the
machine off because I felt like the tingling was right in the pain
and it caused irritation rather than relief,
I went to a new neurosurgeon to see about an intratecal pain pump
because my dr thought I was not a candidate for it because I was too
impatient. This new dr wants me to have another trial with the nerve
stimulator because he also believes that this would be perfect for
the type of pain I have. He feels that he would have his PA and the
rep from the company checking me more frequently and making
adjustments as needed.
I have nothing to lose because during the last trial the leads were
falling out and Thank God I had bio-oclusive dressings for my
Duragesic Patches and a very helpful boyfriend. It was over a holiday
weekend and there was no one who I could even call because my dr was
on vacation. I hope this trial goes better because this seems like
the only thing they want to give me and my narcotic use is soaring so
high that eventually they will cut me off ftom that as well. Did
anyone else have a repeat trial?, Karel

Emily and I have started our doll rescue mission!
If you have any dolls (that will fit in a shoebox) that may be in need of a
little TLC, a new wardrobe and a lonely child...please send them our way!
We will do as much restoration and repair as humanly possible, and crochet and
sew them clothes. Then,they will be sent to our church-sponsored orphanage in
Mexico, or to 'Operation Christmas'. In both cases, they will go to needy
children. (No Barbie-type dolls, please)
If you want to donate some doll clothes, that would be much appreciated!! We've
got baby dolls, toddler dolls, bigger dolls, cabbage patch dolls, cupie dolls,
little dolls, soft-bodied dolls, vinyl dolls,girl dolls, boy dolls, and I don't
know dolls, all naked and in need of something to wear for their big day!!!!!
We'd like to send each doll with a small wardrobe ...
any size clothing (for dolls that fit in a shoe box) will be put to good
use...handmade with love is best, but store bought would be wonderful too!
thank you so much for any help or donations you are able to give!
please EMAIL me (or Emily) directly if you have any questions.
crochetin4Christ@... (christy)
purpleangel@... (emily)
Christy and Emily Britain
3604 Edgewood Road
Eureka, CA 95501
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
AIM user name: crochetin4Christ
http://www.egroups.com/group/ThankYouJesusforThornsonMyRoses (elist for
Christian women living with chronic pain and illness
http://www.geocities.com/christybritain/index
(Christian pages(God's promises, creation vs. evolution, Corrie ten Boom tribute
page, shooting down the big bang theory....and more) recipes, free crochet
patterns, mystery page, Sherlock Holmes page, classic movie page, aromatherapy
'recipe' page, craft ideas, FMS page, homeschooling page and more)
http://www.geocities.com/britainchristianacademy/indexofstudies.html (thematic
on-line unit studies with off-line activites and games grades 2-?)
websites are continual works in progress

<<Hi Mary-Anne,
As Holly said it's very possible that in the reprogramming of the
stimulator some soreness could occur. That's something you need to mention
to the rep when you have the surgery.
Good luck and please keep us posted as to your progress, and we also
will try and help with any questions you might have.
That sense of humor is going to also help a lot.
Take care,
Jeff-NY/PA
Moderator
Jeff
Thanks so much for the input and enouragement. Tomorrow I leave the house at 5
AM to enter Pacific Medical in San Francisco for the permanent inplant of the
Medronix Synergy unit. I am excited, but also a wee bit aprehensive VBG
However, I just can't wait for A) this dang drainage from the gapping hole to
stop. LOL
B) To get on with my life, hey I mean seed starting time is around the corner,
and I have a new grandson to spoil. LOL
C) To begin to enjoy life and travel alot again. Hey I am thinking of writing
a book on cultures and cuisines starting with Thailand. I have been to Thailand
30+ times and feel I can help a few get the knack of this marvelous culture and
cuisine. Then maybe Vietnam, Myanmar, Laos, India various regions, and then on
to the former Yugoslavia which I love. Our son-in-law, all 6'4" of him is from
this region. We spent a month there summer of 2003 and fell in love with the
entire region.
Well, you get the idea!
Mary-Anne

Dori,

Your RSD could very well be systemic and it can affect your GI tract. However, I feel since you are taking Morphine and you have diarrhea that is something other than RSD. All though it can most certainly be associated with your RSD such as your taking your Morphine is. You really need to go see a Gastro Dr. and soon as they can sort this out and get you on the road to wellness again. I ended up having to myself and I was like you with the puking and diarrhea and a Dr. telling me I was backed up. However, the Dr. I had gone to see was somewhat new for me and I only went to see him as he was a lot closer at the time than my Family Dr. and my youngest daughter had gone to work there. After my 2nd time in to see him in a week for the same problem I decided to go on down to my Family Dr. after I left. I did that because he had a girl (not my daughter) take an X-ray of my abdominal and she did not even have me take off my jean shorts so right smack in the middle of the
X-ray is the zipper showing all bold and bright. He told me to do the BRAT (Bananas, rice, applesauce and tea) diet. Idiot, are you not listening to me I already am on Jell-O and water alone and it is not working. So I went on to my family as soon as I got out of there and he took X-rays and darn it showed I was all backed up. So I asked him how can this be with diarrhea? He said it is like an obstruction and the watery stuff is bypassing the hard and he showed it all to me in the X-rays and sure enough it was there. The next suggestion from him freaked me out as this was the wildest thing I had ever heard and I was an RN for 10 yrs way back when. He told me to do an enema of Molasses with barely warm milk and to make up about a quart of this concoction using 1 qt. of milk and 1 jar of molasses. I looked at him like he had gone to space or something but he assured me it would do the trick. OMG, I did this and I was like a sticky candy ROFLOL. You know what it worked
and well at that. Now the mess in the bathroom was not good but hey I felt so much better after a bit. Then get this at 3 am the phone rings, Ashley answered it and I hear her coming to my bedroom and says Mom it is Dr. D. and he is demanding to talk to you. This is the fruitcake Dr. who I had gone to see where she worked and told me to eat the BRAT diet. We had suspicions about this Dr. but this really confirmed them for me. I get on the phone and trying to not tell him as best I can that I did not trust his opinion so I went to my old Dr. and I am now fine. He is telling me that I have Antibiotic induced colitis and that if I do not get to an ER Immediately my intestines will rupture. I am amazed at this man who is actually an MD. His calling me at 3 AM was unprofessional but he took this a step further and made me madder than anything. When Ashley got to work that morning he was all over her asking her if I went to the ER and she said no. He told her to call me
and to get me on the phone as if I did not go to the ER I was going to die. That did it for me his telling her I was going to die. So he gets on the phone and my trying hard to not compromise her job have to tell him I will be fine I went to see my old Dr. and all is now under control. Ashley quit that day over all of this saying he was whacked. He was and then she tells me of her suspicions of his doing Cocaine in his office. I was never so happy that she quit a job ever. I filed a complaint on him with the State Medical Examiners. He no longer is a MD and not just due to me either seems he had numerous complaints against him and he had already been banned by 2 different hospitals. What I did find out after my Family Dr. referred me to see a Gastroenterologist was that your colon accumulates stool on the walls over years. The actual inside area can be as small as a pencil maybe smaller that what we all perceive as normal stools are indeed not normal at all. We all
should have a daily BM not every other day or every few days. You can literally grow parasites and worms in your intestines in the sludge of fecal matter adhering to the walls. I learned all of this from the GI Dr. I ended up having to have a colon cleansing done and asked that I could see what was removed. I know this sounds nasty and it sure was nut I wanted to see for myself if what he said was true. There sure was and I about lost it when I saw what was inside of me. I had had diarrhea (more watery) for the better part of 5 weeks and I was so sure there was no stool inside of me. Heck there was way more than I could have ever imagined including worms and other odd looking things. I now do a colon cleansing myself with a product called Clonix and I only do this once a month and it works well since I have IBS and Diverticuloses both not to mention bad pelvic adhesions and straining really does a number on those. You really should get a referral to see a Gastro.
Dr. and soon as you very well could have parasites causing this problem and the ER Dr. may be seeing the sludge attached to the walls and the other Dr. is not seeing it like that. Best to be safe as you really do not want your colon to burst. Hope that maybe of some help to you. Try eating some Bananas, Plain Rice, Applesauce, Yogurt and plain hot or cold tea for a few days and see if that helps any.

Debbie

Exodus 28:42:
"And you shall make for Aaron your brother and for his sons
linen
undergarments to cover their nakedness; they shall reach from
the waist to
the thighs."
There you have it, straight from Moses. The only Kosher
underwear are:
BOXER SHORTS! LOL

~ ~ ~ ~
"May the Lord be as welcome in your world as you are in His."

"The price of hating other human beings is loving ones self less."

Visit us:
http://www.geocities.com/the_skinners_tx
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~

If you would like to be removed from our address book please email donot_mail_me@...

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Hi Everyone,
Just thought I would let you all know that I was back in the ER last night.
The vomiting and diarrhea have not passed. Even with a prescription to help with the nausea, I am still not able to keep any food down.
I ended up with the same ER doc I had last Sunday and he stands by his diagnosis of stool in the bowel. He took two more X-rays and tried to show me where the "brick" of 6-8 lbs sits on the right side of my colon. He said I can ask any medical professional and they will tell you that you shouldn't have stool on the right side. So he sent me home and wants me to take two more dulcolax and give myself several enemas, one Fleet, than hot water mixed with Mineral Oil at least a couple of times and try to hold it for as long as I can. YEAH RIGHT!!!!!!!! You hold back the diarrhea!!!!!!!!!!!!
So today my regular RSD and pain doc is back and I have an appointment to see him at 3:30 today. So this will be a third opinion.
My question to all of you is, my RSD affects the right side of my body. Could the RSD have anything to do with this???Could it be systemic???? I don't know anymore.
All I know is that I am miserable and will stay in touch as much as I can.
Thanks for all the kind words, thoughts and prayers.
I love ya all
Dori

Hi Mary-Anne,
As Holly said it's very possible that in the reprogramming of the stimulator
some soreness could occur. That's something you need to mention to the rep when
you have the surgery.
Good luck and please keep us posted as to your progress, and we also will try
and help with any questions you might have.
That sense of humor is going to also help a lot.
Take care,
Jeff-NY/PA
Moderator

I really love this poem and thought you might also!

Michelle

It isn't all love and laughter
But it isn't all war and pain
Take each day for what it is
There will be sun but also rain.
Pray not for smooth pathways
But strength to climb the rocks
Pray not for open doors
But keys that fit the locks.
Look for rainbows in the clouds
And beauty in the rain
Because it isn't all love and laughter
But it isn't all war and pain.

~ ~ ~ ~
"May the Lord be as welcome in your world as you are in His."

"The price of hating other human beings is loving ones self less."

Visit us:
http://www.geocities.com/the_skinners_tx
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~

If you would like to be removed from our address book please email donot_mail_me@...

A couple was relating their vacation experiences to a friend. "It
sounds as if you had a great time in Texas," the friend observed.
"But didn't you tell me you were planning to visit Colorado?"
"Well," the husband said, "we changed our plans because, uh..."
His wife cut in, "Oh, tell the truth, Dan!" He fell silent and she
continued, "You know, it's just ridiculous.
Dan simply will not ask for directions."

~ ~ ~ ~
"May the Lord be as welcome in your world as you are in His."

"The price of hating other human beings is loving ones self less."

Visit us:
http://www.geocities.com/the_skinners_tx
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~

If you would like to be removed from our address book please email donot_mail_me@...

There is a little girl inside of you,
who never grew up.
She has been there from the beginning.
She has seen, heard, experienced every aspect
of your life.
She knows, she really knows who you are;
and she never misses an opportunity to remind you.
She knows your strengths, weaknesses, fears,
likes and dislikes.
She knows who you are,
What you can do; most of all,
She knows when and how to act up.
Children will act up at the most
inconvenient times.
They will lose things.
They will spill things on their clothes.
They will make you late.
They will speak out at inappropriate times.
They have temper tantrums.
They overeat.
They fight, argue, and take things
that do not belong to them.
All to get your attention.
Don't ignore your little girl.
Make sure you greet her, nurture her.
talk to her, every day.
Find ways to reassure her, make her feel safe.
Let her know she is loved, welcomed and valued.
Let her play, and make sure she has plenty of toys.
Don't forget to discipline her.
Be firm but supportive, structured but flexible.
Encourage her to try new things.
Listen to her opinions.
Make sure she eats well and gets plenty of rest.
You may be all grown up.
However, there is a little girl in you
still trying to figure out
who she is and what life is really about.
Honor The Child In You!
Copyright © Iyanla Vanzant-Faith In The Valley
Lessons For Women On The Journey To Peace

~ ~ ~ ~
"May the Lord be as welcome in your world as you are in His."

"The price of hating other human beings is loving ones self less."

Visit us:
http://www.geocities.com/the_skinners_tx
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~

If you would like to be removed from our address book please email donot_mail_me@...

Just to let you know .... (lol)
I'm not in America - I'm in Africa!
Joanne
=====
Joanne P. Eva \0/\0/\0/ <
YOUR VISION IS YOUR ONLY LIMITATION
"Preach the gospel at all times - If necessary use words." -St. Francis of
Assissi
Alt. e-mail address: jeva_nehemiah@...
Website: http://www.heartwarmers4u.com/members?christiangirl

Hi Claudia,
I'm really sorry that you're having so many problems with your doctors. There is
no reason not to give you something for arthritis pain. Do you know what type of
arthritis it is? This neurosurgeon doesn't seem to be the one you should be
seeing about this problem. Either your pain doctor or a rheumatologist may be a
better place for you to get results.
Also perhaps you can look into cutting back some hours from your work day. As
far as what other doctors do, well each one is different but I was told right
from the beginning that I may not be able to work full time again. Also I was
told that the more active a person is the less benefit they would get from the
stimulator. So perhaps if you can back off a bit from work you might get some
better results.
And then I would look for another neuro!
Good luck,
Jeff-NY/PA
Moderator

<ok...some of these ARE different...LOL

Welcome to the new edition of getting to know your friends. Okay here's what you're supposed to do, and try not to be lame and spoil the fun! Just copy (not forward) this entire e-mail and paste into a new e-mail that you can send. Change all the answers so that they apply to you. Then send this to a whole bunch of people you know, INCLUDING the person that sent it to you. Have fun with it!
1. What is your full name? Debora Jo Haines Fullerton Wolff
2. What color pants are you wearing? Not wearing pants-have shorts on,gray
3. What are you listening to right now? Journey

4. What was the last thing you ate? Chicken Quesadillas with Guacamole
5. Do you wish on stars? yes always
6.If you were a crayon, what color would you be? blue
7. What is the weather right now? HOT HOT HOT,HUMID HUMID HUMID....and oh did I say HOT.....LOL
8. Last person you spoke to on the phone? father in law
9. Do you like the person who sent this to you? Love her dearly
11. favorite drink? plain ice tea
12. Favorite sport? flying
13. Hair color? dark blonde
14. Do you wear contacts? no
15. Siblings? Living? none
16. Favorite month? March
17. Favorite food? steak
18. What was the last movie you watched? Ray
19. Favorite day of the year?
christmas
20. What do you do to vent anger? Spout off and go outside until clam
21. What was your favorite toy as a child? bike
22. Summer or winter? Winter
23. Hugs or kisses? HUGS!
24. Chocolate or Vanilla? chocolate
25. Do you want your friends to email you back....yes, definitely!!!!
26. Who is most likely to respond? most all...who knows
28. What are your living arrangements? myself & hubby and 3 dogs
29. When was the last time you cried? today
30. What is under your bed? shoes and at least 1 dog
31. Who is the friend you have had the longest? David
32. What did you do last night? watched movies
33. Favorite smell? cinnamon and spice
34. What inspires you? my children
35. What are you afraid of? not walking or waking up
36. Plain, buttered or salted popcorn? buttered
37. Favorite car? Caravan
38. Favorite flower? Roses
39. How many keys on your Key Ring? 13
40. How many years on your current job? not employed
41. Favorite day of the week? Saturday
42. How many states have you lived in ? 4
43. How many cities have you lived in? 6
<adding # 44
44. Did anyone notice # 10 was missing??? not till u pointed it out,lol

In a message dated 6/24/00 3:40:50 AM Pacific Daylight Time,
ThankYouJesusforThornsOnMyRoses@egroups.com writes:
<< When have you felt descouraged because you thought God was ignoring your
prayer?
I prayed for my husband for 9 long years that the Lord would take the taste
for alcohol from him and free him of his addiction. Let me tell you I got
angry, frustrated, and even turned from God at different points in those 9
yrs. I felt at times that God MUST want him not to drink why was he not
doing as I asked in prayer??? I finally went to my pastors wife and talked
to her about it and she had a great suggestion, she said that maybe God
wanted me to pray about what *I* needed to change first then Mike would
follow and you know what it worked! I realized I had been praying with love
for Mike but then wouldnt treat him with love throughout the day and I needed
to change my heart before I asked God to change his. Sometimes God doesnt
answer prayers because we are not in the right "place" so to speak. I
changed some things about myself and began to live differently in some ways
and instead of begging and barganing with God about Mikes drinking I just
asked God to do His will in our marriage. Mike has now been alcohol free
since Ash Wednesday. Praise God, sometimes He wants us to see things
differently and cant pour blessings on us until we are right with Him.
Melanie

Mary-Anne,
I don't know exactly what your doctor has told you, but I think you should be
aware that the more active you are the less benefit you may realize. I can't
possibly know all the details of your pain, but this is not a cure for pain,
although it should allow you to take back a good part of your life. You will
need to give yourself plenty of time to recuperate before you try and become as
active as you were.
I hope you understand that I think the stimulator is a great treatment and I
have had remarkable success from my surgery, but at the same time I still have
many limitations.
At the same time I want to tell you that 90% of my pain was lower back and the
coverage I have with the Medtronics is fantastic.
Take care,
Jeff-NY/PA
Moderator

I thought this was cute and you might enjoy it! Have a great weekend.

Michelle

Woman's Work
Jenny was married to a male chauvinist. They both worked full time, but he
never did anything around the house and certainly not any housework. That, he
declared, was woman's work!
But one evening Jenny arrived home from work to find the children bathed, a
load of wash in the washing machine and another in the dryer, dinner on the
stove and a beautifully set table, complete with flowers. She was astonished,
and she immediately wanted to know what was going on.
It turned out that Charley, her husband, had read a magazine article that
suggested working wives would be more romantically inclined if they weren't
so tired from having to do all the housework, in addition to holding down a
full-time job.
The next day, she couldn't wait to tell her girlfriends at the office. How
did it work out? they asked. Well, it was a great dinner, Jenny said. Charley
even cleaned up, helped the kids with their homework, folded the laundry and
put everything away.
I really enjoyed my evening. she went on to say. But what about afterward?
her friends wanted to know. It didn't work out, Jenny said. Charley was too
tired.

~ ~ ~ ~
"May the Lord be as welcome in your world as you are in His."

"The price of hating other human beings is loving ones self less."

Visit us:
http://www.geocities.com/the_skinners_tx
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~

If you would like to be removed from our address book please email donot_mail_me@...

I am writing you to let you know that some stupid fool of whom I do not know but she has pressed me hard to be my friend and keeps emailing me sent me a nice Trojan Horse virus. I had gotten an email from a person I used to know in a group I used to belong to many months back. This person sent the email to about 50 people and did not BCC the email addresses. Therefore when anyone replied to the email it went to every single person on the list. I got tired of the numerous emails coming and going and many were bickering back and forth even and I had no clue as to who most of these people were or are. This one person in particular, Hismorningglory, sent me an email asking me who I am. I said just a person who got on an email listing without my permission to be on it and the email was sent out bulk. Well, this person decided she wanted to be my email friend even after I said no to her. She is a perfect stranger to me or at least I originally thought so now I am not so
sure I feel I may know who she is and this is just a different screen name for her. If she is ion fact who I think she may be she has been nothing but trouble to me for years and made up such tremendous lies and spread them around as if I said it to her. I blocked her and completely stopped going to the AOL chat room due to the situation. Her lies were very hurtful and eventually is what lead me to leave RSD Online as she is also in that group as well. She has no concern in hurting others at all in fact I think she actually likes to do that. Anyway in came this email to my Spam folder and I read it there then deleted it as spam. I got up from my computer and turned it off and did not come back on until way late yesterday actually this morning early. When I rebooted my system my monitor was all funny and I have not been able to get it back normal. I found this email in my normal email in box and had no idea who it was but recognized the subject line so I read it.
There were no attachments to open it was just a normal email but also contained all the message from this Hismorningglory's email. Low and behold as soon as I deleted this one my monitor went even funnier. So I shut down rebooted defragged, deleted Temp. Internet files and cookies and ran virus scan. Guess what I got a Trojan Horse and it showed to have come from both of those email addresses. I spent all day restoring my system and cleaning the Trojan Horse out but this particular virus hit my monitor. My monitor is dying a slow death and I can only read in the bottom 1/2 of the screen, then the type is tiny. Since the original email address is an AOL user I have notified AOL of this as well. However, due to my monitor dying I may not be able to get back on so if you do not see me know that is where I went to. I will go out into the storage tomorrow and see if there is an old monitor left from the business out there. There should be unless Ashley got to them and
knowing her that is quite possible. I used to have another monitor here on my desk for my other business computer but she took it when she got a new computer 2 yrs ago Christmas as it was a 17" monitor and she put her 14" monitor on my desk but I do not have the software to load it with and not even sure it was working. If I remember correctly the reason she switched it was because this monitor of her's was dying and that was why she swapped them out. So if you get any emails from this Hismorningglory do not read it or even open it just report it and be safe.

Debbie

Hi Pam,
Welcome to our group. I'm sorry to be responding so late but I've had some
computer problems the past few days.
I guess I am having a hard time understanding why you would not want to go ahead
with the implant if the trial was successful in stopping the pain. The scs is
NOT a cure, but a treatment for a problem with chronic pain. It's not uncommon
for the pain to stop for a short period, but your doctor is correct, it will
come back.
Holly had given you good advise for finding another doctor. First to go through
your insurance provider and also you can find a doctor in your area from the web
site of the unit you are having implanted.
I hope you'll reconsider your decision and not wait until the pain comes back to
decide and then have to wait for the surgery.
Please keep us posted as you decide.
Good luck,
Jeff-NY/PA
Moderator

I'll be in our NEW chatroom for about the next 20 minutes or so....if anyone
wants to come visit me!
http://members.xoom.com/Christlovin/tyJesuschat.htm
(it's about 5 after 6 Pacific time)
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
AIM user name: crochetin4Christ
http://www.egroups.com/group/ThankYouJesusforThornsonMyRoses (elist for
Christian women living with chronic pain and illness
http://www.geocities.com/christybritain/index
(Christian pages(God's promises, creation vs. evolution, Corrie ten Boom tribute
page, shooting down the big bang theory....and more) recipes, free crochet
patterns, mystery page, Sherlock Holmes page, classic movie page, aromatherapy
'recipe' page, craft ideas, FMS page, homeschooling page and more)
http://www.geocities.com/britainchristianacademy/indexofstudies.html (thematic
on-line unit studies with off-line activites and games grades 2-?)
websites are continual works in progress

Men are Like..

PLACEMATS

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they only show up when there's food on the table. ...

MASCARA

[INLINE]

they usually run at the first sign of emotion. ...

BIKE HELMETS

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they're good in emergencies but usually just look silly. ...

GOVERNMENT BONDS

[INLINE]

they take so long to mature. ...