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dear mike,
do you know of the risks involved with this treatment, my husband is due to have
this proceedure following a botched hernia op 4 years ago, he is terribly
worried of the risk of paralysis, do you know if this is common, or if anyone
has become paralysed due to this proceedure? he is very worried as he has
already had one botched op and he doesn't want to end up worse than he already
is, can you give us any advice or information please.
thank you
Bev.

Pat,

I have both a Spinal Cord Stimulator (SCS) and Pain Pump. I also have a pretty well fused neck but my RSD is worse in my legs and lower back. I had numerous problems with both of these devices and I currently have my SCS turned off due to electrical shocks at the battery site. I see the Pain Mgmt. Dr. next week to get my pump refilled and we will discuss this. I do not think the SCS does much for me anymore anyway and after the problems I had with it trying to break back open the incision due to the battery kept migrating up I am not impressed at all. Now my pump I have only had for 2 yrs. this Dec. I have had some awful problems with it also but I feel most of them were Dr. related. I thought I had an Atty. for a medical malpractice but it looks like I do not. It seems that since I am still alive and able to walk I have not much in damages. Never mind they ODed me so badly I died and had to be revived or put me into major drug withdrawals 4 times due to either
allowing my pump to go dry or leaving it in pause after refilling it. I have stood on my head trying to find a new Dr. and even asked Medtronics for help since it seems to be my pump keeping a Dr. from taking me. None will take me and Medtronics has been no help at all. I am getting rather bitter these days given the way our society works and how these politicians all are ready to hold out their hands to fill their own pockets but ask for help or why laws are written but not followed or enforced and you are then worse than an illegal immigrant. I do not do this being Disabled well yet I guess I am still to new to it even though in 1988 I fell and broke my neck and spent 5 yrs recovering and then in 2000 I fell and got RSD and here I am. Been to the other side 3 times now and back and have no pictures to show of my trip LOL. I love animals but now I cannot keep up with as many as I would like to not to mention since I no longer can work money is very very tight here. I
seem to be rattling a few chains though as I got a letter yesterday in the mail from the Texas Workers Compensation Commission Committee Chairman due to a letter I emailed to Vice President Dick Cheney about my being both the Employer and now the Injured Worker. I may be small but as long as I can get on the Internet thanks to AOL I shall yell to the highest mountain on how broken the system is. Why they impose rules and then never force others to abide by them is beyond me. However, when it came to me being a victim of this I got mad and angry and I plan to let all the politicians know about it. What was even funnier is the day before yesterday I got a call from one of my state representatives himself about this same email as I sent it to God and everybody literally that I could get an email address on. This email seems to have really rattled a few cages and there seems to be concern. We shall see as Work Comp had until 7/20 to rule on my Appeal so it will be in here
anyday now. Thursday we had our conference call conversation with the Arbitrator and the atty. who was covering for the one who is handling the case for the Mfg. of our Manufactured Home. I got very upset in this call as so much was never explained to me before and I was told many times we did not need an Atty. Then they faxed me a response they claimed to have tried to mail to us Certified but we never ever got it or any notice for it. What made me mad more was the fact they said they were barring the law of Deceptive Trade Practice Act(DTPA) on the house which is triple damages as we by law had to give them 60 days advance notice before we made the demand for Arbitration. Before we actually made the Demand for Arbitration we never were informed of this yet I told them many times we were seeking. So even though we set this for Arbitration we are going to get an Atty. and get what is called an Abatement (stay) to temp. stop this until our Atty. Can intervene and we can
then replace the ability to go after DTPA in this proceeding. There was so much legal language used in this conversation it was completely over my head. Here they force you to sign an Arbitration Agreement now days on a lot of things including houses, cars and even medical care. Arbitration sucks as it removes your ability to sue. We custom ordered this Manufactured home to the selling prive of over $127,000.00. Not your everyday Mfg. house by any means. They wrecked it prior to it being delivered and this caused major structural damage. It was not supposed to take over 21 business days before we could move in and it would be over 4 mos. This Atty. is trying to say there in fact are no damages unless we caused them as he claimed we accepted the house and moved into it. We had no choice as we tried to send it back and they kept on throwing stuff at us including money. Then one day that person no longer worked for that Co. and all we agreed to was out the window.
However, I saved everything including a tape recorded meeting and letters on letterhead plus we took a ton of pictures. What we found not since then is damages are in fact still there they only covered them so we could not see them. So when the cabinet came falling off the wall we had no idea until it fell the wall was all torn up inside still. The ceramic floor the factory left all the tile spacers in. They said they had removed all the grout and the spacers and regrouted the floors. No way the grout started coming up and guess what the spacers are all still in there. I have long pieces of the grout and it is several different colors and textures to show all they did was smear more grout on top of what was there and they never ever took any of the grout out ever so the already broken grout lines re-broke and then came out and then we saw the spacers. The roof they left exposed nail heads in and came out to repair and instead of removing the shingles in question they
removed a few then caulked the rest and left 8 bundles of shingles under the house unused. There is about $2000 worth of trim up under the front door they never used either. Anyway the hall bath ceiling started mildewing and molding as the roof was oozing. We have pictures of it back then and we now have new pictures showing the damages are in fact still there. So how they perceive us doing this is beyond me. Hopefully I can find a reasonable Atty fast. There is a lot of money on the table in this matter so getting an Atty for this should not be all that hard. I spoke to my oldest daughter on Thurs. also it was her 30th birthday. She was all giggly as she is soon to be done with her college and will graduate this Dec with an RN Surgical degree. She scrubbed in on a kidney transplant on her birthday and was very excited in telling me all about it. Today she is in Labor and Delivery and said there are 4 C-sections on the schedule and 2 are multiple births one being
twins and one being triplets. Of course she said there can always be more added as the day comes. She is now doing full time clinical rotation in the OR's so is only able to work part time. Her part time job is as a nurse in a very busy Pediatric clinic. She does not like it said too many abused kids for her. She likes the kids it is the parents she has problems with. She told me my Dad's health is very grave and he will be most likely admitted to the hospital next week on his visit for labs and more. He just turned 83 last week and is in very poor health renal failure, congestive heart failure, Atrial fibrillation, enlarged heart, Diabetes, Neuropathy in his legs and now refuses to eat and is down to 90 lbs and is 6 ft. 2 in. She did also fill me in some on my youngest daughter who seems to be rambling around lost these days while school is out and she works as an assistant to a college professor so no work either during the summer. She is off visiting friends I
hear being carefree and crazy. Just wish she would speak to me again. Kids are fickle as you most likely know and us parents never know anything or so they feel. Well, I am off back to bed again not feeling well and it was lightening and woke me up. Take care.

Debbie

Dear Jennifer,
It maybe the battery if the lead is still in place. You could ask your
surgeon and the rep if they could go in and test the batter which
would me that you would need to go under for that peiod of time to
test the battery. That is just my suggestion.
I had problems with the ANS system that was implanted than I switched
over to the medtronics with the battery. My medtronices has been
working really good for me so far. Which I am glad that it is I would
recommend you talking to your doctor about all of this and see what he
thinks.
I wish you the best of luck let me know if there is anything else that
I can help you out with I am sorry that you are going through a hard
time I do understand. Your in my prayers!!!!
Take care
Holly group moderator

Hi Sheree,

I guess I won't be trying stain glass as I have lost a lot of the fine motor skills in right hand. I'm trying to teach myself to cross stitch left handed and that is not easy and even doing it with right hand now is slow going. I will look into the other things that you suggested. I have a friend that has made tables out of cut glass and cement and they are beautiful.

We have 9 grandchildren 4 boys and 5 girls. They range in age from 1yr to 16yrs. We only have 2 daughters and only one of the grandchildren is a step granddaughter. LOL

For the RSD I have had nerve blocks and medications. I can't have a spinal cord stimulator as my whole neck is fused and trouble with my whole spine.

I will try to call you tomorrow thank you for your number.

Hugs Pat CA

Hi there,
I have a question to anyone who can answer!! I received my spinal cord
stimulator on June 9th, 2004. It was working great in both legs. Now, I
can barely feel it in my left leg. I want to turn it up higher to get more
stimulation but it is at the absolute highest level. I have had the
medtronics rep reprogram it with his controller with NO luck. Has this
happened to anyone else? The rep said it should NEVER be this high on
anyone. My battery may last six months instead of years. I took an xray to
see if the lead has fallen off.....it does not look like it has. My doctor
is suppose to call me back and advise but comparing it to the old xray, it
looks the same. I am sooooooooo bummed as I was getting great relief. I
know the potential of these implants and I want the full effect. I have
some stimulation so I get some relief but of course we want it ALL!!
Thanks,
Jennifer

Chris I will take of that for you. Our prayers and thoughts are with you. I
have heard that these type of operations are just wonderful after you are
healed.
--- "chris edison" <chrisedison@...
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/christybritain/index
http://www.geocities.com/britainchristianacademy/indexofstudies.html

Dear New Stimulator Friends,
I hope that you will comfortable about posting when you are ready too.
Mike and I can help you with links and information that you can read
about the stimulator if you are thinking about getting one or if you
have one and have questions.
This group is a great group I have learned a great deal from every
member here. I appreicate the support that each of you have given me
at one point or another. We are all here for each other and I hope
that everyone knows that too. That I care about your health and
happiness leaving with pain isn't easy. Thanks to technology we dont
have to suffer any more.
Please feel free to email me or post at anytime even the members that
have been here for a while. I am excited that our group is growing. I
consider all of you as family cause this is a support group where
everyone can relate in one way or another. I hope that everyone is
hanging in there and staying postive. If your having a hard day find
something to smile about or wtach a show on tv or a movie that will
make you laugh its the best medicnie around. Also smile cause I care
about you all.
take care
Holly group moderator

Well, how's everyone doing? Low pain levels I hope.
Sheree, welcome home from your vacation! I'm hoping that you will have
all sorts of stories to tell us about the trip.
Lynn, Are you okay? I know the loss of your dad is very hard to deal
with but, like Lynda said, we are all here for you. Please let us know
if there is anything at all that we can do to help you.
Jan, if you are checking your messages at all, I hope that you are
having a great time.
Sherry, I hate to say this, but you really need to do something about
your daughter. Have her committed or something. You and Dennis are
neither one able to care for her and the stress she is causing makes it
that much worse for you. She needs to be in a hospital or half-way
house or group home. Someplace where she can get the supervision and
care she needs and you can get the rest and relief that you need.
Dori, you are very quiet today, I hope that everything is good at your
house.
Margo, how is the hand doing. I wish you would post and let us know you
are okay.
Lynda, we will talk.
Love to all, Betty

Hi mary lou
I make little aromatherapy 'dream pillows' they go under your pillow and are
supposed to help you sleep.
The aromatherapy 'recipes' are on my Fibromyalgia page.
I am out of the pillows now, but I will probably make another batch fairly soon.
Let me know if yuou are interested. There is no charge..it is just a little
gift from me to you.
--- "MLB" <scorpiog@...
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/christybritain/index
http://www.geocities.com/britainchristianacademy/indexofstudies.html

In a message dated 06/14/2000 20:26:51 Mountain Daylight Time,
chrisedison@... writes:
<<
Hi All,
I'm going on No Mail because I am having a total knee
replacement done in the morning.
I would like prayers for quick healing.
God Bless,
chris
May God Bless you with a great knee. Prayers be with you for this surgery.
hugs,
Dorothy

Dear Stimulator friends,
Hi Sorry I haven't posted anything for a while my mom just had hip and
leg surgery. Her leg went short because of the hip brake so the doctor
had to relength it they used the bone bank so that they could graph it
together. She just got home last night and is bed ridden for two to
three months. So I am doing the best I can to help her with her needs
as well as take care of my own. I am pleased to say that I have
contiued to have good success with my stimulator and am grateful for it.
I will do my best to help you all with questions you might have with
getting a stimulator or if you just need someone to vent too. I do
care about each and everyone of you. I consider all of you my friends.
I hope your all getting the care that you need by your doctors. Please
let me or Mike know if there is anything we can do for you.
take care
Holly group Moderator

TY Betty and Karen for the heads up on the fentenal patches recently
put out by the FDA. I think I may be the only one in the group on
them.?? Is anyone else in the group on the patches? My hubby is
frieking out. But not worry, I am being very, very careful, using
exactly as ordered, being very careful not to overheat and following
all instructions. Thanks again. Love & Huggs, Lynda

Could the List Mom please put me on No Mail. I'm having Knee
replacement surgery in the morning.
Thank You,
chris

Hi Everyone, Welcome home Sheree, hope your trip was womderful!!! I am
so excited to hear all about it. Debbie and Sherry I hope things have
calm down to a dull roar at your houses. Pat, next time the group goes
on a trip, I think we'll start at your house, sounds like a gr8 place
to lounge, lol. Sandy, you are my hero, I just don't know how you do it
all by yourself, with the kids, Jeff who knows where, and working. How
are you doing all the things you are doing right now? I thing you are
one amazing woman and I just wanted you to know that. Lynn, how are you
doing hon? I'm sure your feeling depressed, but you know we're all here
for you right. Have you recovered from your car trip? I know that was
very stressful for you. Were u and your Dad close? Debbie, Keep holding
on. I know you are another strong woman and will survive this mess
somehow. Things will get better for you too hon. Just hang in there.
Karen, I am anxious to get to know you better. Dori, I am so happy you
have joined our group. I have really missed you so much. It's just gr8
to have you with us where you belong. Betty, it is hotter then haddes
in PHX, today I heard it was 115. That is outrageous. How is Jim? My
Gosh no wonder he's cranky, geese. I am doing well. Doc upped the
patches to 75meq. I am starting to function again. Love & huggs to all.
Lynda

Hi All,
I'm going on No Mail because I am having a total knee
replacement done in the morning.
I would like prayers for quick healing.
God Bless,
chris

Wow, Christy this just gave me chills. Thank the Lord that he does use us in
this way. This is so awesome that you could help this individual turn his
life around and go to Jesus. I do think that God uses this medium to help us
talk to others. I share so many things on other lists and have been really
raked over the coals for it sometimes, but if you can help one person then it
is worth it. I am trying to learn not to take it personally, but sometimes
it is hard. I was on one list that I sent something inspirational, I guess I
sent several things in a row and I got this nasty email back from a pagan,
saying that she was going to send nasty things to all the address that I had
sent these things too. After emailing her back and forth, and telling her
that I wasn't trying to convert anyone, just sending wonderful things to
think about and get inspired with. She suddenly started emailing me Christan
things that other people sent to her or that she found on the web. I thought
that was the neatest thing. I doubt that she ever asked Jesus into her life,
but it must have been somewhat thought provoking for her.
God Bless you and may he still use you in his cause.
Dorothy

Hi Shree,

I have always wanted to go to Alaska and will make it one day. It sounds like you had a wonderful time. I'm so behind on mail, I have been sick and reading mail backwards. I do that a lot. LOL

I have always wanted to learn how to do stain glass too. Is it very hard or messy? I like to go camping of course now days its in our motorhome instead of a tent. I like cross-stitching, fishing, reading, the outdoors.

When I first got RSD I felt so all alone until I found an online support group. I also have fibro, osteoarthritis of spine, acid reflex and mitral valve prolapse.

Hugs Pat CA

ROFLOL...now isnt that one the truth!!

Love ya Lynda...thanks for the laugh,needed it!

Brad
Hello! I'm not sure if we ever met. I'm Jaci. I'm 23 I have a SCS
and two PNS (peripheral nerve stimulators) The best way to describe
the stimulator when its on is it feels like a tens unit (if you have
had one of them before) or if you have gone to a chiropractor or
physical therapy and you had the treatment done where they put the pads
on you and it provides electrical stimulation. Those I would say are
probably the closest thing to the feeling. If you haven't had either
one of those let me know I have another comparison but its not as good.
I find that once I have had my stimulator on for a while I get used to
it and I don't feel it the majority of the time. I will feel it if I
move in a certain position sometimes or if I am doing certain things.
The stimulator doesn't limit my mobility. (once I was healed) As far
as side affects its not like a medicine where it makes you sick but if
you move a certain way you might get an increase in the sensation
almost like a jolt. Ok I don't know if these are really side affects
but once you have a stimulator these are things that you can't have or
do - MRI's, you can't have diathermy -ultrasounds involving heat, and
or without heat depending on your doctor and the location of the
ultrasound in reference to your stimulator. Also when you go through
medal detectors you may get a little jolt, ( don't let that scare you
it really doesn't hurt and if you have the stimulator turned down to
zero you won't feel it) they recommend that you try and avoid them when
you can and if you can't turn it down and off. I've gone through them
before. They will give you a card saying you have the implant. If you
already knew all that stuff sorry but I figured it couldn't hurt to
make sure. If you have any other questions let me know. If I think of
anything else I will let you know. I am kind of tired right now so I
might wake up tomorrow and realize I forgot something.
Good Luck.
Jaci

Yesterday I had some funny kinda of odd things happen, and then last night I had
something..well, strange and wonderful happen! I thought I would share them
with you.
First, our phone line and our computer/phone line were crossing.....so we had
the phone guy here. He had to go under the house, which always kicks up mold
spores, which I am VERY allergic to. So, I had to leave. Fortunately, I was
feeling halfway decent, so I went shopping. I had to buy the kids some things
for our trip to Kansas next month, and some odds and ends. (They grow so fast!)
Well, Emily needed some 'unmentionables' and being the modest young lady she is,
she didn't want her brothers to see them. So, she asked them to turn around
while she put them under something in the cart. Dear Ryan, being the loud,
crass and not so tactful 8 year old that he is...very loudly and very clearly
asks "oh, did you find your over-the-shoulder-boulder-holder"? Poor Emily was
mortified!!!! I had a talk with Ryan, and he realized that wasn't a very nice
way to say it... I'm sure he didn't know better. He has said much worse than
that since he has been here, but not usually so loud or so publicly!
Ah......brothers.
Here's the weird experience......kind of a long story, but it is worth it I
think! I am sorta looking around for a new chatroom for us, and a message

What kind of side affects are there to the stimulator, and what does
it feel like when it is working. does it affect movement of your
body.?
Thanks
Brad

HELLO/GREETINGS
THANK YOU DOROTHY FOR LETTING EVVERYONE KNOW OF MY SITUATION WITH MY EYES ETC. I DIDN;T GET BUT 4RESPONSES. I GUESS EVERYONE OVERLOOKS MY EMAIL POSTS WHETHER ITS GOOD OR BAD OR NEEDED HELP. I AM NOT SURE WHAT IS UP WITH THAT/I DON;T THINK I HAVE EVER DONE ANYTHING REPULSIVE TO ANYONE HERE.SORRY TO ANYONE WHO THINKS I HAVE.
I AM BACK TO THE STEAM BATH.I DIDN;T WANT TO COME BACK. INFACT THE BUS LEFT ME IN VICTORIA. I ALMOST MISSED THE SHIP 2 SEATTLE.SO WHAT! I WOULD HAVE STAYED IN THAT AREA. IT WAS A BEAUTY AFTER ALL I SAW IN ALASKA. 35 O FOR THE LOW IN WINTER AND75-80 FOR THE HIGHT IN THE SUMMER. LONG SPRINGS AND FALLS. I LOVE IT.
ALASKA WAS ONE OF THE MOST INTERESTING AND SENSATIONALLY THE MOST BEAUTIFUL OF THE US OF A. VANCOUVER CANADA WAS NICE AS WELL. I WISH I HAD ALL OF UR ADDYS I COULD HAVE SENT U POST CARDS. I MISSED EACH AND EVERYONE OF YINS. WELCOME ALSO TO THE NEW MEMBERS. I URGE ANYONE THAT CAN TRAVEL TO GO ON A CRUISE THERE. IT WAS HANDICAPPED ACCESIBLE IN MOST PLACES. THE SHIP WAS AS WELL. I WAS ON A NAVY SHIP/ BUT NOTHING LIKE THIS SHIP LOL.IF ANYONE LIKES COOL WEATHER IN THE SUMMER NOTHING REALLY BEATS IT BUT ALASKA. POLAR BEARS ARE DYING BECAUSE OF THE HEAT AND NO ICE TO TRAVEL ON. IT WAS SAD TO HEAR. ONCE I FIND MY SCANNER I WILL SEND DOROTHY FLICKS TO POST AS WHEN I POST ANYTHING IT TOO LARGE. IF ANYONE WANTS DETAILS,LET ME KNOW.I NORMALLY DON;T TRAVEL WELL , BECAUSE OF THE BAROMETRIC PRESSURE. MY FEET ARE SWELLED FROM THE EDEMA TO THE SIZE OF LARGE BALLOONS. MY BROTHER SAW IT IN PA WHEN I WENT TO VISIT AND HE WANTED TO GET A PIN AND POP THEM.OHH THAT WOULD HAVE HURT.
DOROTHY , U R RIGHT IT MAY BE ARTHRITIS. MY IN LAWS LIVE OUTSIDE OF TAMPA FOR THE WINTERS IN PA. WE MAY GO THERE THIS WINTER. MAYBE. WHERE R YOU AGAIN??
I JUST ADORE THE WAY U ALSO LOOK AT BDAYS.AND AGE..
YES , UR RIGHT /MY GEM WAS A LARGE UNEXPECTED TREASURE CHEST THAT I ENCOUNTERED ACTUALLY BY MISTAKE WHEN WE MET. IT IS A REAL FUNLIKE LOVE STORY , ONE OF THE BETTER ONES MOST OF MY FRIENDS HAVE EVER HEARD. I REALLY HIT THE JACK POT. HE GOES THE EXTRA MILES FOR SO MANY THINGS .HE SUPPORTS ME COMPLEATLY AS WELL. WE DON;T HAVE A CLOSE FAMILY UNIT. MY FAMILY IS SMALL AND HIS FAMILY IS LARGE,BUT BRAZEN , AND ABRASIVE AT TIMES.WE DON;T HAVE ANY CHILDREN.
MY FAMILY IS MADE UP OF FRIENDS WHO HAVE MS, RSD, FIBRO,LUPUS,RA, IBS,AND A HOST OF MANYOTHER THINGS.
I KEEP BUSY WITH STAINED GLASS/ANIMALS/READING/WRITING/COOKING/FISHING/SWIMMIMG AND TRAVELING AS IIT IS IN MY BLOOD.
LET ME KNOW HOW THINGS R FOR EVERYONE,THANKS 4 THE SUPPORT AND BEING HERE FOR ME TO CONVERSE WITH. I ENJOY READING AND WRITING WHEN I CAN. THIS GROUP CANNOT UNDERSTAND HOW HAPPY AND CONTENT I FEEL JUST KNOWING U ARE ALL OUT THERE.
MANY FOND LOVING BLESSINGS,
SHEREE
you don't have a life until u live it.its difficult to have love until you give it.

Welcome Lori!
We are glad to have you here with us!
--- Lori Sampedro <MrsSampedro@...
src="http://adimg.egroups.com/img/4925/1/_/_/_/961020384/Snail_email.gif"
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/christybritain/index
http://www.geocities.com/britainchristianacademy/indexofstudies.html

Dear Brad,
Welcome to the group I hope that here you will find helpful
information and support. I have bennfited from everyone in this group
and have valued what everyone has said about getting a stimulator or
having one.
I have degrative disk disease in my low back and neck. I think that
the stimulator could benift you a great deal. I would talk to your
doctor to see if he would recommed one for you. I am sorry that you
are suffering so much I do understand.
I have had tarlov cyst decompression lamictomey low back and also
teatherend spinal cord realse surgery they were seven months apart. I
have nerve damage due to us not to have known it was there until the
cyst was removed. I still have some smaller cysts in the scarm that
they cant get to due to location into nerve roots.
I started having pain at twenty due to a job injury and progressed
from there. I have had revisions for a different brad of stimulator
called ANS the mechine didnt work for me that well so it was changed
to Medtronic.
Total of back surgeries I have had with this last one is seven I am 28
years old but I have been doing my best and now I am pain free thanks
to my neurosurgeon that took over my case for pain management.
Please let Mike or I know if we can help you in any way that is what
we are here for and are willing to help.
I do recommed you to make sure that your insurance will cover this and
that the brand that you use is under your policy.
take care
Holly group Moderator

Subject: Why it's better to be the boss

[INLINE]

Here, I will give you guys the list I gave my dr.
Somethings work for some people and somethings don't.
I haven't tried guaf. teatment or ptosin or lidocaine injections.
CURRENT MEDICATIONS
PROZAC 40MG AT NIGHT
ESTRACE 2 MG PER DAY
ROBAXIN UP TO 3 TIMES A DAY/ONCE A DAY
NORTRIPTILYNE DOESN'T WORK AS WELL AS ELAVIL
ELAVIL 25MG STOPPED DUE TO WEIGHT GAIN
CELEBREX SOMETIMES
SONATA MAKES ME HALLUCINATE DO NOT TAKE
AMBIEN PUTS ME TO SLEEP FINE, DON'T STAY ASLEEP, WAKE UP GROGGY
ULTRAM TAKE SOMETIMES, HELPS SOME
PERCOCET DON'T TAKE VERY OFTEN, HELPS SOME WHEN I DO
RELEFEN DO NOT TAKE, MAKES ME SICK
VOLTAREN DO NOT TAKE, DOES NOT WORK
PYRIDIUM AS NEEDED FOR BLADDER IRRITATION/SPASTIC BLADDER
VICODIN TAKE HALF WHEN NEEDED, MAKES ME SICK
IMITREX AS NEEDED FOR MIGRAINES
XANAX AS NEEDED FOR ANXIETY
TYLENOL 3 ONLY MEDICATION THAT WORKS FOR CERTAIN JAW, HEADACHE AND
FACE PAIN
MALIC ACID TAKE WHEN I REMEMBER
5HTP DID NOT WORK
RHEUMATISM PLASTERS DOES NOT DO MUCH, BUT HELPS IN SPECIFIC SPOTS
ALEVE SOMETIMES, DOESN'T HELP MUCH
EXCEDRINPM SOMETIMES
I TAKE ONLY THE MINIMUM AMOUNT OF MEDICATION TO TAKE THE EDGE OFF SO I CAN
FUNCTION.
OTHER TREATMENTS I HAVE TRIED
VALERIAN ROOT HERB AND TEA FORMS SMELLS BAD, DIDN'T HELP ANY
CHAMOMILE HERB AND TEA FORMS DIDN'T HELP ANY
ESSENTIAL OILS: LAVENDAR, CLARY SAGE, WILD MAJORAM, PEPPERMINT, LEMON
ST JOHNS WORT DIDN'T DO A THING
PHYSICAL THERAPY ( ELECTRIC STIMULATION, ROM EXERCISES, ULTRASOUND, HEAT AND
COLD THERAPY, WATER THERAPY) MOST FELT LIKE TORTURE...NO BENEFITS EXCEPT FOR
WATER THERAPY, WHICH FELT GOOD AND RELAXED MY MUSCLES AND ALLOWED ME TO DO
STRETCHING AND ROM)
CHIROPRACTIC OUCH! HURT FOR DAYS AFTERWARD, NO APPARANT BENEFITS
MASSAGE BAD IDEA!!!!
TORIDOL INJECTIONS LAST RESORT.....I HATE NEEDLES AND ER VISITS
PHENERGEN INJECTIONS GIVEN ONLY WITH TORIDOL (OR IMITRIX) INJECTIONS FOR NAUSEA
HEATING PAD
COLD PACKS
PAIN LEVEL CHART
0 NO PAIN
1 SLIGHT PAIN, EASILY IGNORED
2 LITTLE MORE PAIN NOT EASILY IGNORED
3 TAKE OTC MEDICATION RELIEVES PAIN COMPLETELY
4 PAIN CAN NOT BE IGNORED OTC DOES NOT RELEIVE COMPLETELY
5 UP THE ROBAXIN TAKE OTC
6 ROBAXIN, CELEBREX
7 ROBAXIN, CELEBREX, ULTRAM
8 ROBAXIN, CELEBREX, ULTRAM 1/2 OF VICODIN
9 ROBAXIN, CELEBREX, ULTRRAM 1/2 VICODIN AND CRY
10 ALMOST UNCONSCIOUS/INCOHERENT
I AM USUALLY BETWEEN A 5 AND A 8, RARELY A 4 NEVER BELOW. I NEED SOMETHING FOR
WHEN I AM AN 8 + (8 IS WHEN I WOULD SEEK TORIDOL FROM EMERGENCY ROOM)
--- "Karen Savoie" <Niblet_@...
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/christybritain/index
http://www.geocities.com/britainchristianacademy/indexofstudies.html

Hello Ladies,
I am new to this list, and thought I would introduce myself. My name is
Lori Sampedro. I am married to John, and we have three
daughters...Elizabeth 13, Tiffany 12, and Allison 9. We live in Salem,
Ohio. I also suffer from severe migraines, and on and off depression.
But the Lord is always there to see me through each. I am looking
forward to knowing you all. God Bless.
Lori S.

Hi Brad,
I have had three back surgeries and have lived with chronic back and leg
pain these past couple years. They wanted to refuse my back as the last
surgery was not a complete success. I had no desire to have another 11 hour
surgery with a year and a half rehab. I just wanted to be able to deal with
my horrible pain at 34 years old. The nuero-surgeon had suggested the
spinal cord stimulator so I did my research on it. I finally had the
surgery and it has completely taken away all of my leg pain. They did not
place the leads high enough in the thoracic region otherwise I could of had
relief in my back too. I say it is totally worth it. Read the story on
Jerry Lewis and what he has suffered with for years & years of his life and
how he feels now. It is a great success story.
Best of luck to you.
Jennifer

I am still waiting on my Appeal to come in this week. The deadline for them to have ruled on it is this Thursday, July 21st. I am sitting on pins and needles anticipating it's arrival and praying it will be good news. In the mean time I got a call this morning from my Ortho. Dr. office telling me they made a mistake and the MRI they had told me was approved in fact was denied. Now they wait for the written denial to see why it was denied. This is crazy as the Ins. Carrier is now denying everything. Once the Appeal comes in maybe that will change. If not then I will have 40 days from the date it was written to Appeal it in District Court but I will have to have an Attorney and so far none have responded back to me on this. The system is bad broken all over the US and I fear it will only get worse with newly signed laws that will soon go into effect. We did get the Certified from the Land Co. on the notice of them placing the Land up for sale on Aug. 2nd in a
Trustee's sale. What they do not know or realize is they have failed to provide us the 2004 Int. Stmt. and that is $250/day each day past 1/31/05, they altered our Contract to a Federal Judge and they committed Bad Faith and Fraud not to mention violated the Texas Deceptive Trade Practice Act which is triple damages. Problem here is we must get current to get an Atty. or they must make a move on us. So here we sit waiting and wondering what our fate will be soon. I have fought this for over 2 yrs. now and have been able to keep us put so far but now time is fast running out and we need a miracle so we do not become homeless. This is part of the reason we have not gone on to find a way to repair the well. Why repair if we are going to be booted off the land? I can say this the Land Co. will wish they never ever tangled with us as I have absolutely nothing to lose here and time on my hands and I will take them down to the fullest extent of the law if they do make a
move on us before we can move on them. I am talking about to the tune of well over $1million plus the land paid for and all Atty. fee's. They would be better off if they did not move on us and allowed us the time to get the Appeal in and the house Arbitration otherwise it will cost them dearly before all is said and done. My daily frustrations are getting up there rather fast again and I find it very hard to sleep these days not knowing my fate. I had prayed for rain today but so far nothing, as I need a shower bad. Since we had to repair the A/C we have less than $9 between us to make it another 10 days so with the cost of gas and all we have no other options anymore. I tried calling churches until I am blue in the face and nothing there, not even a shower. I have been told over and over by many to call the local area churches. I have and they have absolutely nothing at all to offer and it makes me sick when I see the hypocrite side of them. I have been told that
God will never put more on my plate than I can handle obesity is a major factor in the US and God needs to slow up on his servings as my plate has overflowed numerous times. Then I am told that God will take care of me, how is this when I am living in a car with no A/C with my Husband and 3 dogs? I think God is highly over rated and I am starting to see a pattern with God and he does discriminate and has his favorites. It does not matter all of the good you have ever done to help out perfect strangers in the past or the money you used to have that you donated to various causes in the end God will not see you through mere fact as I see it. It also does not seem to matter how much you went to Church or not as God has his mind made up long ago and you are either in or you are out in his book no in between or redemption's as others will tell you happen. Am I supposed to fall completely on my face and beg for help and forgiveness before I am able to find my path out? If
this is the course then I am not going to play God's game sorry.

Debbie

Oh, Debbie, ROFLMAO, those were just too funny!!! Thanks for the laugh. Love ya, Lynda

I have been reading the posts. I have degenerative disc diseasd,
spinal stenosis, clasp knife syndrone, narrow spinal canal, and a
bulging disc. I get alot of pain in my back and legs my docs have
told me basically there isnt anything they can do for me. I have
lived with back and leg pain all my life, got worse about 5 years
ago. They damaged my back when i was born they think!. I was
wondering if this is the kinda thing that this device is for?
Brad
In ohio

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What kind of pillow? :)
Mary Lou TX
Won't you please check out my new E-Business at
http://mdhealthline.com/sgx/assoc/4806

--- Hi Jennifer,
I understand the pain from the buttock I have the same problem,
however I can tell you that over time the pain won't be as tense there
for you. I am unable to lay on that side because its there however I
feel that its well worth it. You most likely have some inflamation
there what with swelling that is normal too. I have used ice packs on
it and that helps. I dont have the stimulator on when I do it. I would
advise you to call your doctor if your still having pain. How long
were you in the hospital? I was in for four days though they had to
use a drug to wake me up cause I wasnt coming out of it. I think that
all doctors should keep you in longer than a day cause its back
surgery and hurts. My incision was big, that is interesting that they
cut through your verterbra, I am skinny also and my neurosurgeon didnt
do that. I am sorry that your in so much pain. Resting is the best
thing to do I was down for a month with this last one, though I still
did walk and do some things. Please let me know if there is anything
that the group or I can do for you. This was the fith cut into it and
it was well worth it. That may sound crazy but living like I have in
the past isn't the way I would want to live. No one should live that
way either.
I hope that all of you feel that you can come and chat and aske for
help from Mike or I if you have questions we can direct you to the
information that is needed about the stimulators. Remember that you
can always call your person that programs you about questions they are
the next best source besides your doctor.
I am sorry that I havent been on I have had testing for csf headache
that was related to a revision of the paddle that I had done in
dec.2002. Just went back to my doctor and found out that neuclear
medicnce had done the testing wrong so I have to go back in and get it
done. Than have a regular Cat Scan of my head for my surgeon. I am
thankful for my surgoen that is helping me with it. Just so you know
he didnt do that surgery it was my pain doctor. That I no longer have
for pain management due to my insurance not beening happy with him.
I am so thankful for all of you writting in it helps me to hear how
all of you are doing. Well I will check in to see how everyone is
doing. Keep smiling and staying postive it heals your mind and body.
hugs to all
take care
Holly group moderator

Well It has been awhile since I posted I started this group longtime

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This is a riot!! Make sure you scroll down to the Map after you read the joke!

An American is having breakfast one morning (coffee, croissants, bread, butter and jam) when a Frenchman, chewing bubble-gum, sits down next to him. The
American ignores the Frenchman who, nevertheless, starts a conversation.

Frenchman: "You American folk eat the whole bread??"

American (in a bad mood): "Of course."

Frenchman: (after blowing a huge bubble) "We don't. In France, we only eat what's inside. The crusts we collect in a container, recycle it, transform them into croissants and sell them to the states." The Frenchman has a smirk on his face.

The American listens in silence.

The Frenchman persists: "Do you eat jelly with the bread??"

American: "Of Course."

Frenchman: (cracking his bubble-gum between his teeth and chuckling).

"We don't. In France we eat fresh fruit for breakfast, then we put all the peels, seeds, and leftovers in containers, recycle them, transform them into jam and sell the jam to the states."

After a moment of silence, The American then asks: "Do you have sex in France?"

Frenchman: "Why of course we do", he says with a big smirk.

American: "And what do you do with the condoms once you've used them?"

Frenchman: "We throw them away, of course."

American: "We don't. In America, we put them in a container, recycle them, melt them down into bubble-gum and sell them to France."
[INLINE]

Sheila!
I have missed chatting with you....I haven't been on-line a whole lot (in
comparison) the past several days. I have a pillow all ready to go for you. I
hope to make it to the post office tomorrow. I will add you to my prayers. I
know how scarey it is when they tell you that...that was the first test they
gave me. FMS symptoms and MS overlap some, but if it is MS, the sooner they can
detect it the better. Are you scheduled to have a MRI done?
Jayne.....
I am sending you a a box for Shayna and Hunter. Please pass it along to them.
I have read that Hunter is very ill..is he doing better now? They are both on
my prayer list, as is Curtis and Jennifer. How fun for her to be going with
Dad! What an adventure! She will cherish these times forever! BTW, Emily's
email has been down I guess....we saw two messages from Jennifer, but when we
clicked on them to read them, nothing was there. She will try again today. And,
your little prize for the right answers will go out in a seperate envelope.
Karen,
I'm an onionhead, I admit it! You sent me your address, and I deleted the whole
email before I wrote it down. And of course, I emptied my trash. May I please
have it again? I think I will actually put it in my address folder..that would
be wise don't you think? I haven't had much chance to go cruisin' for chatrooms
and message boards....but the chat room you have, I have questions....would you
please beep me if yu see me online? thanks!
--- "Jason & Sheila McFarland" <flyingeagle@...
href="http://click.egroups.com/1/5104/1/_/_/_/960897764/"
href="http://adimg.egroups.com/img/5104/1/_/_/_/960897764/sig_email_3.gif"
//adimg.egroups.com/img/5104/1/_/_/_/960897764/sig_email_3.gif</a
href="http://www.geocities.com/christybritain/index"
href="http://www.geocities.com/britainchristianacademy/indexofstudies.html"
href="http://click.egroups.com/1/4355/1/_/_/_/960919861/"
src="http://adimg.egroups.com/img/5100/1/_/_/_/960950886/specialoffer468x60a3.gi\
f"
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/christybritain/index
http://www.geocities.com/britainchristianacademy/indexofstudies.html

Hi Holly and everyone,
My name is Jennifer and I am in my second week of recovery since my spinal
cord stimulator. I had a real tough time after the surgery. They sent me
home that afternoon. The surgeon had to cut two thoracic vertebrates to
implant this devise. The also put in a pretty large battery pack into my
right buttock area. This is the most painful. I am not that big of a
person and there is no room for this battery. I cannot sit on or near it
without a lot of pain. The incision does not really want to close as there
is no room for this battery. Does your body ever get used to it being
inside of you? I feel like a have something huge stuck in my pants pocket
that I cannot get out!! When does the surgery pain go away?
I can tell that this stimulator is going to help my leg pain which I am so
thankful for. They did not place the leads high enough to stimulate my back
which is frustrating but I will take what I get. I am blessed to have my
leg pain relief.
Thanks,
Jennifer

Well Ladies,
I guess I had better sign off, we are in the middle of a bad thunderstorm and they are predicting golf ball sized hail! We need the rain but could do with out the hail! We have gotten quite a bit of rain but the lakes are still very low. Talk to you all tomorrow.
Karnation

~ ~ ~ ~
"May the Lord be as welcome in your world as you are in His."

"The price of hating other human beings is loving ones self less."

Visit us:
http://www.geocities.com/the_skinners_tx
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~

If you would like to be removed from our address book please email donot_mail_me@...

Hi Sherry

I'm so sorry to hear about your daughter and will add her to my prayer list. I know it has to be hard to see what she does to herself, let alone your granddaughter and the added stress on you.

Hugs Pat CA

Honesty Pays Off
The game was played in Wellington, Florida. In it, a seven-year-old first
baseman, Tanner Munsey, fielded a ground ball and tried to tag a
runner going from first to second base.
The umpire, Laura Benson, called the runner out, but young Tanner
immediately ran to her side and said, "Ma'am, I didn't tag the runner."
Umpire Benson reversed herself, sent the runner to second base, and
Tanner's coach gave him the game ball for his honesty.
Two weeks later, Laura Benson was again the umpire and Tanner was playing
shortstop when a similar play occurred. This time Benson ruled that Tanner
had missed the tag on a runner going to third base, and she called the
runner safe. Tanner looked at Benson and without saying a word, tossed the
ball to the catcher and returned to his position.
Benson sensed something was wrong. "Did you tag the runner?" She asked
Tanner.
His reply: "Yes."
Benson then called the runner out. The opposing coaches protested until
she explained what had happened two weeks earlier. "If a kid is that
honest," she said, "I have to give it to him. This game is supposed to be
for kids."
Author Unknown
from Sports Illustrated
As it appeared in WITandWISDOM(tm), www.witandwisdom.org

~ ~ ~ ~
"May the Lord be as welcome in your world as you are in His."

"The price of hating other human beings is loving ones self less."

Visit us:
http://www.geocities.com/the_skinners_tx
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~

If you would like to be removed from our address book please email donot_mail_me@...

Gr8 idea Betty, I will be home after lunch. Love & huggs to all. I will check in.

Hi All,
I am doing great with the stimulator I love my medtronic stimulator it
has been helping me so much. I am still in my second month of
recovery. Please let me know if I can help any of you out.
take care
Holly group moderator

Hey Everybody,
I think that those of us who can should meet in the chat room this
afternoon or tomorrow and just chat for a while. Jim has PT at 11 but
then I'll be home after that. What do you think?
Betty

Life's Echoes
A son and his father were walking on the mountains.
Suddenly, the son falls hurts himself and screams: "AAAhhhhhhhhhhh!!!"
To his surprise, he hears the voice repeating, somewhere in the mountain: "AAAhhhhhhhhhhh!!!"
Curious, he yells: "Who are you?"
He receives the answer: "Who are you?"

Angered at the response, he screams: "Coward!"
He receives the answer:"Coward!"

He looks to his father and asks: "What's going on?"

The father smiles and says: "My son, pay attention."

And then he screams to the mountain: "I admire you!"
The voice answers: "I admire you!"

Again the man screams: "You are a champion!"
The voice answers: "You are a champion!"
The boy is surprised, but does not understand.
Then the father explains: "People call this Echo, but really this is Life. It gives you back everything you say or do. Our life is simply a reflection of our actions.

If you want more love in the world, create more love in your heart.
If you want more competence in your team, improve your competence.

This relationship applies to everything, in all aspects of life, Life will give you back everything you have given to it.

*author unknown
~ ~ ~ ~
"May the Lord be as welcome in your world as you are in His."

"The price of hating other human beings is loving ones self less."

Visit us:
http://www.geocities.com/the_skinners_tx
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~

If you would like to be removed from our address book please email donot_mail_me@...

Hello Dori,
OH Yeah!!! We took her to her first shrink at the age of 10 years
old for telling her teacher she smoked pot and the kids. Her
teacher was so upset that when she called our house she hung up on
me the first time and then called back as she was so upset with our
daughter.
After all of the testing with all of us the shrink handed me a card
that had a name of a teenage shrink on it and I asked her well are
we to take her here when she is a teenager and she said to me NO
this is for you and your husband to go to so she doesn't drive you
both crazy!!!
I swear that is what we were told. We have used tough love for
years and years and I have went to a shrink for management control
of her to and we have taken her back many times over the years too.
She is what she is. The only reason she isn't in prison now is
because she has been living with us for the last 3 years and has
been doing her house arrest which has been over for the last 2 years
now and she is still on probation and has been to NA classes and
other drug classes that I went to with her ever week. Plus she
doesn't have a car or a licenses yet. That will soon end as she has
gotten SSI because of her being so Bi-Polar. They gave her back pay
and she is going to buy a car and get her license back soon with the
money she has gotten. We can only control so much as she is an
adult even though she doesn't act like it for the most part. She
went to her shrink just last Thur. and he put her on more medicine
but it just makes her sleep more. I have told him in the past to
lighten her meds when she sleeps all the time and slurrs her words
they are too much for her to take. Plus me having to take care of
Lexie who is 3 years old just 3 weeks ago.
It is a no win situation for us and we know it. After 35 years we
know. If and when she gets a car it will just be a matter of time
before she will get herself into trouble again. This Sat. she had
the one girlfriend pick her up and she again went to the bar with-in
walking distance. At least this time she didn't come home with a
hang over.
I still use the tough love but she only reacts to it when she wants
something from me and never does anything around the house unless I
tell her hse has to do it. Never voleenters to do anything.
Well that is enough about her. it is too depressing to talk about
most of the time. I just keep praying for her!!!
Hope you had a good weekend. it has been raining here off and on
since July 9th and we haven't has a sunny day since. YUCK!!!
Well I'm going to start painting our house soon and it will take me
forever but it has needed done for ever too so a little at a time I
guess. Hell the problem is that by the time I get a room ready to
paint I'll be fried moving things and cleaning out closets to paint
them too and masking or taping things off is the hard part not the
actuall painting part. I would nerver ask my daughter to help me
with painting either never. That would be a disaster!!! I am going
to tell her she will be cooking and doing other things since I'll be
doing that. So today I might go and buy some paint and get the
process in motion.
Soft Hugs
Sherry

Found this on CNN news wanted to let you know in case any one was
using them.
http://www.cnn.com/2005/HEALTH/07/15/fentanyl.warning.ap/index.html
Karen

Hi Claudia,
My name is Jim. I had a scs implanted in 1999. This was the best thing I have
ever done for my pain. I went thru about 6 years of treatment at the pain
clinic. Mostly I went thru about 3000 percocets, 3000 vicodins, and various
others. Mainly all I was was a zombie! I have rib pain that stretches from the
middle of my back all the way to my chest. I went to the ER a bunch of times
thinking I was having a heart attack! I had several nerve blocks, a radio
frequency which set my pain off 10 fold. I went to a neurologist who said he
couldn't do any thing for me so he sent me to a NS! This was the last stop. I
too was nervous about the implant. but I was at the point that I would try
anything. I remember just before the surgery after they gave me my RELAXING shot
the Dr. came up and said " where do you think we should place the implant" I
panicked here because I thought hey your the doc, haven't you thought that out
already. anyway it went under my armpit and everything worked out
great. This thing is amazing the way it works. My pain is definitely not gone
but I sure can manage it. I now lead a very normal life. I work, play catch with
my son and even wrestle with him. If I start getting my pain,which can be
excruciating I stop , turn on my stimulator and let modern technology take over.
I swear by this thing, I even convinced my brother who's had several back
surgeries to get one. The Dr. says it has to be a first with 2 people in the
same family with one.
Sorry about going on and on, I just wanted to assure you that there are people
out here that have been where you are and things worked out. I still take some
narcotics on occasion but very rarely. One thing, Iv';e been on the nuerontin
for about 7 years now. All of a sudden the price went sky high. I said no way
I'm paying that. Big mistake. 3 weeks after stopping I had a major attack. So I
guess it does its job. I went back on it.
Anyway good luck on whatever you decide to do. If you have any questions we're
here for you
Jim

Karen,
Thanks!
Karnation
~ ~ ~ ~
"May the Lord be as welcome in your world as you are in His."
"The price of hating other human beings is loving ones self less."
Visit us:
http://www.geocities.com/the_skinners_tx
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~
If you would like to be removed from our address book please email
donot_mail_me@...

Melanie

Have you been to your doctor?? You could have Interstitial Cystitis, which is not an infection; or Cystitis which is an infection. Both are treatable

Even if the majority agrees with an idiotic idea, it is still an idiotic idea.
Mary J

INTERNET RADIO INTERVIEW ON RSDS/CRPS
FEATURING AMERICAN RSDHope Founders; Keith Orsini and Lynne Orsini (known also
as Mom O).
Also interviewed is Petra K (Keith's better half)
COMING UP ON THIS WEDNESDAY, JULY 2OTH, AT 2 PM CST, OR 1 PM EST.
IT WILL BE AVAILABLE ON THE INTERNET LIVE BY TURNING TO www.healthylife.net
Just hit the LISTEN LIVE button to access the Show!
Can't be there for the Live Show? No worries! It will be available for two
months through the "DEFINITELY DANA" ARCHIVES, and after that we will have it
available through our website.
Your computer might even allow you to record the show straight off the internet
onto a CD for easier listening later.
We will have a transcript available on the American RSDHope Website as well!
WHAT WILL BE COVERED IN THE INTERVIEW?
First up is Keith Orsini. He is the Executive Director of American RSDHope, one
of the three Co-Founders of American RSDHope and also is a 30+ year survivor of
RSD
Keith will touch on the following subjects;
What is Reflex Sympathetic Dystrophy, (CRPS)?
Why did we choose a dragon to represent RSD on our Web Site?
How did my journey with RSD begin and what path has it taken me on?
How did American RSDHope begin?
What will patients and loved ones find on the website that will help them
today?
And a few more.
In between questions, Dana read some of the Poems from the Poetry section of
our website. Is yours one of them?
Next up is Lynne Orsini, known to most in the RSD Community as Mom O. who along
with Bob Orsini, (known to most as Dad O, and whom we lost one year ago
tomorrow, July 15th), founded what was to become American RSDHope in 1995.
Lynne, Mom, will talk about the affect of RSD, and most Chronic Pain diseases
actually, on the Parents.
Some of the questions posed to her were;
What are some of the Emotional stages that parents of RSD patients go
through?
Your Organization is named RSDHope; do you have special memories that have
given you hope?
What advice would you give parents on dealing with this disease?
What would be on your Wish List for developments for RSD for the next few
years?
Lastly, Dana interviewed Petra K., Keith's better half.

WhoooHoooo!

Just to make sure that you are aware........

I can smell it .... the weekend is getting closer !!
Can you smell Friday ?

I told ya its nearly Friday ! ! !

Weekends don't count unless you spend them doing something completely pointless. ....ENJOY!

Keep going, it is nearly the weekend!!!

Friday's coming!
Put your hands in da air and wave 'em like you just don't care cause....
It's almost Friday BABY!!!!!

Jim
I am so glad to hear that you reached someone and a new stimulator is
on the way. That is fantastic news. Did it come and it works?
Jaci

--- Hi Claudia,
Welcome to the group I hope that you will find the support you need
here and make new friends. My name is Holly I am the Moderator of the
group. You asked if its worth going through yes it is at least to me I
dont have to take pain medications with the stimulator. I had a
replacement with a medtronic system which is working great. I am
taking medications for recovery but that is all. I am glad that you
have been looking into the stimulator on the internet and talking to
the doctor. You may even want to talk to the companies that have the
stimulators and ask them questions too. I feel the more educated you
become with this the better off you are. If you have any more
questions feel free to write the group or me even Mike that is the
owner of the group.
I wish you the best of success with the stimulator and that you will
feel comfortable with it when it's time for you to recive one.
take care
Holly Moderator

Hi Everyone,
I am still in the recovery process with my surgery among other things
my Mother went into a coma/stroke due to medications that interacted
with one another. It caused a neurological disease that is rare and
fatel she could have it strike her at any time and would need to be
rushed to the hospital to be treated fast so that she would not die. I
spent most of my time last week at the hosptial with her and also
subing for her she is a teacher. Its been crazy so I am sorry about
not writting you all back.
The first week of June I will be going to get more testing done for
the csf headache that I have had for almost two years. My surgeon and
I hope and pray that something will show this time so I dont have to
go through all the other tests to find the location. Please forgive me
for not replying to your emails I promise I will do better.
take care
Holly Stimulator Group Moderator

[INLINE]
I think they call that multitasking, right?...

Hi What you need to look into getting is a Pad lead it is size 6'' by 8'' inches
it is a pad that covers a very large are of stimulation. When I got my perment
Stim 3 years ago I had it reaajusted 6 times. Good luck join group below
Michael M NACPS List Owner, website http://www.nacps.us<http://www.nacps.us/
Please visit our Great Message board
http://b47.ezboard.com/bnacps24956<http://b47.ezboard.com/bnacps24956
have a NACPS Newspaper that will keep all Informed on great things happening,
Please join here

In a message dated 6/14/00 2:31:00 AM Pacific Daylight Time,
ThankYouJesusforThornsOnMyRoses@egroups.com writes:
<< I welcome any insight the Lord gives you.
Ok thanks, I just got a journal from a secret sister on another list and
thought I would use it for my Bible study. If I feel called to post I will :
)
Melanie

Hi All!
I am getting prepared to become "one" of you guys. The doctors are still in the
"prep" stages of getting ready to do the spinal cord implant.
I have to tell you guys.......I'm very nervous and scared! I'm reading sooooo
many pros and cons. Lucking into to this site is being very helpful.
This is my fears.......in January I had a sympathectomy thinking my pain and the
use of my left arm/hand would return. That DID NOT happen. In fact, I think it
may have made things worse! So, now, it's the stimulator. I've been on
Oxycontin since Octo 2003 and the neurologist just placed me on Vioxx and
Neurontin along with the Oxycontin last Friday. I have noticed improvement in
my pain and symptoms. Which my neurologist stated if that happened.......the
stimulator is coming down the road.
Okay guys, I watched the video tape, I've done the internet research. This is
the first "real" deal site that I was impressed with to try and get first hand,
personal fed back!
Is this stimulator worth what all you have to go through.......trial, implant,
side effects (leads breaking away, etc)????????
Appreciate any imput you can give me!!
Thanks,
Claudia

Hi Jaci,
Thank you so much for remembering I had my trial on Monday. My main problem
is that I got so sick from the anesthesia. That is all I have been doing is
getting sick with a horrible migraine. I feel better today so I am going to
try this thing out. The stimulation is very hard to get used to. I think
it is helping with my back and leg pain(mostly leg pain) but I am not
totally positive since I have been so sick and just laying in bed. Today
will be the test. I am going to run a couple errands and see how I feel. I
get the trial out tomorrow(Thursday) so I really need to find out today. I
am bleeding a lot from the incisions but still think that is from getting
sick too. The incisions hurt a lot but I guess that is to be expected?
Besides getting so sick, is all this normal? Will I just get used to this
weird feeling in my legs(the stimulation) when the permanent one is
implanted? Does it just become your way of life? It is just real odd for
me right now but I am thankful I am not hurting as much.
How long have you had yours?
Jennifer

Hi Debbie,

I'm so sorry to hear of your problems with your home and daughter. I know it has to be frustrating with the home and heartbreaking concerning your daughter. My thoughts and prayers are with you.

Hugs Pat CA

Wanted to post this question to anyone out there. Is it common to
have trouble getting your SCS adjusted just right? Mine was totally
messed up from the start, so met with my Medtronic rep during that
first week. Found that my "wires were crossed", so she got it all
straightened out and I felt pretty good. After a few weeks, my pain
from the surgery had lessened and wasn't able to turn down the
stimulation in the left leg. So at my doctor appt., I asked him to
just turn down the parameters a little to give me a little more
control. He messed it all up, got the "wires crossed" again and
lost stimulation in my right leg altogether. But I didn't realize
it until I had walked back to the parking garage and there was no
way he'd see me again that day. So put up with it for a week, then
called the rep again. They sent a different gal and through a mix
up at the local hospital we met at, we ended up reprogramming in the
car! Thought she had it about right, but wasn't able to test it out
until I went shopping later that day. Anyway, it's still messed up
and I have little coverage in my right leg. Don't want to seem like
a pest, but my right leg is begging for relief. Really makes you
appreciate how well these things work. I've had my implant for
eight weeks now, but only have had really good pain control for
about three of those. Anyone else have so much trouble? Am I not
being assertive enough when I meet with these people? Also, has
anyone actually had relief from their back pain with the stimulator?
My neurosurgeon said he was happy that I got the relief in my legs
and never really thought I'd have success for the back. I was under
the impression we were going for wider coverage. I'm thankful for
what I've got, but my back is really bringing me down. Considering
all I've had done, I guess I shouldn't be surprised. Second fusion
was done 6 months ago and is not healed at the top level (of 4
levels) and have developed arachnoiditis to top things off. Anyone
have more than two leads? Don't even know if that's possible. Oh
well, been at the computer too long, back is protesting big time.
Sorry this posting is so long, but new to this group and got carried
away, I'm not always this "windy"...........looking forward
to "hearing" from anyone...Thanks, DianeM

Hi Betty

Where do you live? I live in Apple Valley CA......its desert and a dry heat but still hot. If you lived close I would say come on over and enjoy.

Hugs Pat CA

Hi all,
I caled Medtronic on tuesday. Customer servive rep named Gail. I explained how I
have been goung around and around with Medtronic. She was so nice! She said this
is totally unacceptable. She said give me your # and I'll find out whats going
on and I'll calle you back before the days out. I'm thinking "wow" a human that
actual cares. Well she called back within a couple of hours and said " it's all
set. Fed ex will be there thursday morn by 10. No charge" If I could have
reached thru the phone I would have given her a very big hug! 2 weeks ago a rep
told me that the replacement cost is $985 if insurance doesnt cover it. And with
my luck, insurance probably wont cover it! But this is the best news I could
possibly get,
It is though right now 11:00 am and it's not here yet. But I'm sure its on the
way!
Hope everyone is doin ok!
Jim

Here ya go, dear one:
http://www.geocities.com/christybritain/fibromyalgia.html
~Karen

LOL those are so cute...thank you

Hugs Pat CA

Sherry,

So sorry to hear about your problems with your daughter. I know some of how that feels as when our youngest lived back at home for over 2 yrs and left a yr. ago now she was worthless as well. At least she did not have any kids to be tended to. Since she moved out and in with my Mom she no longer speaks to me in fact it has been since she left July 8, 2004, since she has spoken to us. I asked my oldest daughter to ask her what she was going to do with all of her stuff (furniture, clothes and more) and the answer was for me to do whatever or burn it all. I cannot burn perfectly good furniture. Ashley, has a wonderful bedroom suite and great mattress and this thing cost like $8500 new, so no way am I about to burn it. Then she has a leather couch and chair and all her dishes plus boxes of clothes. I tell you some days I wonder why I ever had children to start with. Ashley is now 25 and Kimberly will turn 30 this coming Thursday the 31st. Kim told me she has also now
given up on Ashley as she says she just shrugs stuff off all the time and is more interested in partying with her friends and getting together with her friends than anything else in life. That was how she was when she was here. I know Ashley has endured some tragic life events but she refuses to speak to anyone about them which is not a good thing. I know something happened between her and one or more of her past boyfriends but I know nothing more and neither does her sister. When they are as stubborn as Ashley is there is pretty much nothing you can do when they are the age they are. I know the day my Dad or Mom gets into serious health problems I will hear from her especially when my Dad passes away which can be anyday. We did get the A/C fixed but not the well and it has been a hard 3 weeks with no water. I have large containers and jugs and go and get like 100 gallons at a time from a nearby neighbor and we collect rain water for the toilets. However, this sucks.
We have been taking showers outside in the rain and it is cold water to say the least. We are looking at about $2000 to fix the well. We got a Certified to go pick up from the Land Co. as they filed to repo the Land on Aug. 2, 2005. However, I got a copy of the papers without having to pick up the Certified. They have another thing coming if they think this will fly since they have altered the Contract to the Federal Judge and failed to provide us a 2004 yr. end interest statement. The interest stmt. alone is $250/day every day past 1/31/2005 plus Attorney fee's. The reason we have not been able to go after them is every Attorney we spoke to said we would have to either get current or lose the land and then we can go after them. My Appeal should be in here this week late and if it is overturned then we can get current and go after them and them we can figure out from there about the well but it will not be for a while still on the well. Thursday we also have our 1st
telephone conference call with the Arbitrator, the house Mfg. the American Arbitration Assoc. and us. This should be a very interesting phone call. We will set the date for Arbitration and also for document exchange and we will also discuss why we demanded Arbitration. I am pretty sure this will go our way no problem as we have taken pictures all along and it shows all the damage and now that the damages they claimed to have repaired in fact were never repaired only covered up. It took things to break to find out we had been lied to yet again. I have in my possession also an audio tape recording of our 1st meeting with the Sales General Mgr. and the Trim Out drew who was going to make all the repairs and it pretty much says it as to how it was agreed to and now it is very obvious they never did 1/2 of what was agreed to on that tape. I got everyone's permission to tape that meeting so I could have a recording of what we agreed to and not have to depend on notes. What
they failed to know is I was going to use that tape against them. Our contract binds us to Arbitration therefore we cannot outright sue them. Everything is going to Arbitration these days even Dr's so you cannot sue them for medical malpractice. I will not sign a health care Arbitration no way and they cannot force you to do so by law. Well, I must go for now as we have been offline for 3 days due to the modem failed and the phone man just left here from fixing it.

Debbie

Jennifer
I'm not sure if you are able to check your email but I wanted to see
how you were doing and how the trial/ surgery went. Let me how things
went when you get a chance and if you have any questions let me know.
Jaci

Hi Dori

Its great to see you here too. Thank you so much for the prayers. It has been a difficult few months.

I hope that this will be the end of the custody case. I see not only my daughter but also my Grandkids torn apart and its heartbreaking.

I hope that you are doing well.

Hugs Pat CA

[INLINE]

A Woman's Thoughts On Life

1. your secrets are safe with me, an all my friends.

2. I don't repeat gossip, so listen carefully

3. If I can't be skinny, let all my friends be fat.

4. My idea of cleaning the house is sweeping the floor with a glance.

5. I cleaned my house yesterday, sure wish you could have seen it.

6. This isn't clutter, these are my antiques!

7. Children have a talent for finding your last nerve!

8. Discover Wildlife! Have Kids!

9. "Genuine Antique Person," Been there, done that, can't remember.

10. Our policy is to always blame the computer.

11. I'm not aging, I just need re-potting.

12. Take my advice, I'm not using it!

13. Okay! I love you! Now can we eat?

14. You know you are getting old when you stop to think and forget to start again.

15. Mom, I'll always love you, but I'll never forgive you for clean my face with spit on a hanky.

16. I love homemade gifts...umm, which one of the kids would you like?

17. I have a million dollar figure--but it's all loose change!

18. By the time you find greener pastures, you can't climb the fence!

19. This house is protected by killer dust bunnies.

20. Every time I get the urge to exercise, I lie down till the feeling
passes.

Jim
I just wanted to see if you ever heard from medtronics about the
remote. You don't need you battery changed in the immediate future do
you? I got a second remote when I had my battery changed. Hope
everything works out. Let me know what happens.
Jaci

Hi all.
I haven't written in awhile.
I'm in a pickle. I lost my remote. Tried to get ahold of medtronics rep. To no
avail. got ahold of medtronic. They told be to call their business services. I
did and she said her assistant would call me. That was 1 week ago. As of right
now Iv'e been really lucky, havent had much pain. Nothin more than a 5 or 6. But
I know my lucks not gonna last forever, I'm goona call again tom.
Hope everyone is doin good!
Jim

[INLINE]
You can't hide from God.
He knows everything.
[INLINE]
Evidence of God's unconditional Love.
[INLINE]
After the baptism.

[INLINE]
Is that you God?
[INLINE]
The true lap dog.
[INLINE]
The Devil made me do it. :o)
Now....have a Great Day and send this
smile on to someone that has made you
smile in your life ---- I just did. :o)

I welcome any insight the Lord gives you.
I would love to hear what the Lord says to any of you through the verses given.
The bible is so dynamic ....it speaks differently to each us at different times.
I always find the subject so timely myself. I pray before I choose the next
topic of study, because sometimes I feel that the Lord has something special and
very specific to say to a particular individual. Of course, I have no idea who
it is...but, I have found it is best just to listen and follow the Lord's
guidance. Sometimes he even gives me a word of knowledge or a prayer need for
someone.
The questions are just kinda for your personal home use...I get them out of a
book, I don't make them up or anything. I usually post a little tidbit that the
Lord gives me.....yesterday was a very strange for me, and by the time I got
around to posting it, (cause my 'puter or ISP was down) I just couldn't hear
much of anything from the Lord. When I post later today, perhaps He will give
me extra to say...who knows!
--- Dizzy94@...
src="http://adimg.egroups.com/img/5322/1/_/_/_/960897867/cars2.gif"
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/christybritain/index
http://www.geocities.com/britainchristianacademy/indexofstudies.html

Holly
I glad things FINALLY worked out for you. You have a paddle lead in
now right, where they do a lamenectomy and then put the leads directly
on the nerves? (done by medtronics -of course) Good luck with school!
Jaci

This came in blank to me. Anyone else?

Dori

--- Dear Jennifer the trial will make you a little sore but not much
during the trial period you will be able to tell if the stimulation
will help or not. If you have had electrical stimulation therapy and
physical therapy that is basicly what you will feel at the trail time.
Your doctor will put you under for that time yet they way you up in
part of it.
That will happen also with the surgery its called a wake up test. You
dont remember it at all. With the surgerical implant you will have
pain at the sights where the doctor cuts which is normal and your back
feels week. It like going through a regular back surgery yet you will
have the stimulator and some pain medications to take after you come
out. Depending on how you are doing with recovery you could stay in
the hospital up to one or two days. Some people take longer like me I
have been in for my surgical stuff from four to seven days due to my
body has a harder time. I have epilepsy so that makes me stay in
longer with the medications that are given also my body doesnt handle
surgery well.
I would also recommend that you talk to your rep that is going to be
in the OR before you go in also your doctor should be willing to help
you with any questions that you may have. I didnt know much about it
until the day of when I had the trial done. In which I should have
been educated by my doctor and the ANS company. IF you have any more
questions feel free to write me. I hope that some of this helps. You
will have to walk and regain your strength like you would after any
back surgery. Recovery from the surgery I think depends upon the
person because everyone is different. I wish you the best I will be
praying for you.
take care
Holly Group Moderator

Hi Pat,

I am so tickled that you are here with us.

I am so sorry to hear of all the deaths that you have had to deal with over the past few months. I went through 3 in a couple months several years back and I thought that was bad.

I was hoping you had good news to report about Shannon. Seems like this problem is really stressful for you. Being a stepparent myself, I know how hard getting all the people involved to think of the best interest of the children. Hopefully, this will be the end of all the turmoil at the next court date.

I will be praying for you and your family members.

Love

Dori

Hi there,
I am a bran new member. I am to receive my spinal cord stimulator on Monday
the 17th of May. I have had three back surgeries. The last surgery was due
to a car accident breaking the fusion I already had. I found out two weeks
ago that my back is still not fused on L4 & L5. I deal with so much pain
all day. I am 34 years old and need to live a half way normal life. I have
had five epideral and injections, several accupuncture sessions, lots of
medicine with no luck at all. I still try to work out twice a week with a
trainer to stay strong but live in a lot of pain. They finally agreed that
a spinal cord stimulator will hopefully help the chronic back and leg pain I
endure everyday. I am real excited and anxious about this surgery.
What can I expect to feel after Monday's surgery(the trial week)?
Any help, I would totally appreciate.
Thank you,
Jennifer

I am wondering do we post on these and answer the questions or do we use it
for our own study here at home?
Melanie

Dear Group,
I am excited that we are growing in numbers. I feel that the more we
have it will help each and everyone of us at one time or another.
Those you of you that just had your impant I hope that your recovery
has been good and successful. I do understand the pain that comes with
getting it done but its worth it.
As for me I had my surgery on April 28th the brand that was used is
Medtronic it has been a success so far and I know it will be for the
rest of my life. The doctor told my parents that the battery should
last up to five years before it has to be replaced due to the testing
they did in the OR. For some of you that dont know my history I had a
tarlov cyst decompressed in 99 in the low back and than seven months
later I had to get a teathered cord realse done on the low back due to
the spinal cord being teathered and how my syptoms were severe.
My surgeon than advised me to go to a pain specialist I was in denial
about getting help for a year and a half. I than called my surgeon and
told me to go to a pain specailist. I went through medications and
injections nothing seemed to work. So I went back to him for a second
opinion, he than told me that I had nerve damage. He than recommended
a spinal cord stimulator he told me that he didnt do them that I would
have to go back to my pain doc and have him do it.
I than went through the trail with success it took my pain from 9-10
to 0-1 on my worst day. This took place in fall of 2002 so I got an
ANS implant it worked great until four to six weeks out one of the
leads moved. So than in dec my pain doc did a revision however with
that I got a spinal headache. He than reffered me to a nerosurgeon to
look at me he ran tests we couldnt find the location of the leak. He
wasnt happy with my pain doc cause he didnt test for location before
he did two blood ptaches. Right now for that I am on an anti nausa
medication and we will be doing testing again for it.
Back to the stimulator after the csf leak check with that surgeon my
pain doc asked him to do a paddle lead with the same unit inside me.
It wasnt successful so than two months latter we did another revision
of the paddle connection and no success. Please do not get discouraged
about my history it had to play a part of what my doctor the pain doc
wanted done. With all the revisions however I did learn and grow
through each trial of life with this.
My neurosurgeon told me he had success all the time with the
stimulator of the Medtronic kind that he put in people. In which I can
aggree very well with since my testing in or and out come with
surgery was a success. I know that with my religious beliefs took a
great part in this I am sure for others you can understand too.
I promise you all I will try to come on as much as possible to help
you with whatever questions you might have. I am in my second week of
recovery and my back gives me a hard time setting at the computer but
I do check every other day at least it depends on how I am feeling.
For those of you that dont know my age I am 28 and have had a total of
seven back surgeries now that includes all the stimulator ones.
I pray that all of you are doing well with things please let me know
if you need me for anything I am here for you. Oh one more than I am
getting things in order for me to go back into Medical Assiting School
once I finish I want to work with back patients in a doctors office or
children with cancer in a clinic.
I hope you all have a great day keep staying postive about life that
is important.
Love ya all
Holly Moderator

Dear Jody, Just read your posting and decided to join this group. I
had my implant Mar 26 and I was very surprised at the post-op pain.
I guess I expected it to be so minor as compared to what I've been
through in the past. So don't suffer through it, take your meds and
rest! I felt good enough to drive in about a week,but couldn't wald
around much for about two weeks. But it was sooooo worth it!!
Really has helped my leg pain. I have so much hardware in my back I
doubt anything will help it, but having the burning and throbbing
gone in my legs has been such a blessing. I hope you get the same
relief. One bit of advice, if you need adjustments in your
programming, try the company rep first. Mine had me just about
where I wanted, went to the doctor and he messed it all up. Now
waiting to get with my rep again, because he lost stimulation in my
right front leg, been burning for a week! I have a Medtronic,
interested to know more about your system.....hang in there and good

In a message dated 6/13/00 3:24:57 AM Pacific Daylight Time,
ThankYouJesusforThornsOnMyRoses@egroups.com writes:
<< Every 15 minutes I have to RUN to the potty, just to go a little bit. At
least when my IBS kicks in and I have to RUN to the potty, I feel like I
accomplish something! Gross topic......but all you FMSers can relate
probably......if you don't have the EXACT opposite problem.
Wow I have that to and I didnt realize that was from the fibro! I need to do
more study I guess : ) I do know what you mean, I usually have the opposite
problem and so I feel blessed (is that weird LOL) when I have those "go all
day" days.
You know I was telling dh (the kind of person who can honestly say he has
never even had heartburn he is so healthy) that if he spent one day, even
what I classify a good day, in my body he would freak at the level of pain we
a