WOW!
I can't believe it! Theres actually a group for us Stimulator
people. I've had mine since March of 99 & I love it. It is a virtual
life saver. I have chest, rib, and back pain, and for the 8 years
prior to finding my nuerosurgeon I didn't know if I was going to
live or die. I made countless trips to the E.R., made my rounds with
several different kinds of drs, and was pretty much just miserable
the whole time.Now I find a web group! Fantastic.
Jim
hi. hope you are doing good. why did you need to drove to new youk by you self? hope evrthink woke out good. hope you ahve a good night. hope you have a pain free night too. talk to you laster.
anna.
Lynn Scoville <lynnscoville1940@...
I didn't let any one know, but I drove to New York by my self. Yah,
yah, but it's too late for any flack from any one, I'm home! The
trip,
itself, was uneventful, but long and emotionally and physically
tireing.
On the heels of the memorial service, I had our younger daughter to
worry about. She is the one who lives in Mobile, AL. She didn't
think
she could evacuate, as she had waited too long and she was telling me
about their "preperations". My older grandson had a sleeping bag
next
to his bed and he was to take it into his bathroom and get in the
bathtub and up with it. My daughter was to take our middle grandson
and cover both of them with his mattress.Needless to say I was
frantic! As it turned out the did evacuate, as far as Baton Rouge,
LA.
and were able to get the last available motel room. Once again the
hurricain hit just east of them and so they were spared any major
damage, but masses of rain.
Well, needless to say, I am tired and sore. will post more when I can.
Peace and Love to all.
Lynn
okay, it is not completely finished..nor may it ever be! I just keep coming up
with pages I wanna do!
And, there are a few typos I have found and not fixed yet....but, without
further ado...........
http://www.geocities.com/christybritain/
is now available for viewing!
please bookmark the main index page,as there is a lot to see, and I will be
making changes and additions
often!
free crochet patterns are in the 'The Arts......and Crafts section..still
working on it, but there are a few there already.
Links to pages that aren't done, should not work.....
that's the plan anyway!
enjoy!
this was and (is an ongoing) labor of love.I hope you enjoy it as much as I do
working it!
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/britainchristianacademy/indexofstudies.html
my HOME PAGES URL coming soon!
I didn't let any one know, but I drove to New York by my self. Yah,
yah, but it's too late for any flack from any one, I'm home! The
trip,
itself, was uneventful, but long and emotionally and physically
tireing.
On the heels of the memorial service, I had our younger daughter to
worry about. She is the one who lives in Mobile, AL. She didn't
think
she could evacuate, as she had waited too long and she was telling me
about their "preperations". My older grandson had a sleeping bag
next
to his bed and he was to take it into his bathroom and get in the
bathtub and up with it. My daughter was to take our middle grandson
and cover both of them with his mattress.Needless to say I was
frantic! As it turned out the did evacuate, as far as Baton Rouge,
LA.
and were able to get the last available motel room. Once again the
hurricain hit just east of them and so they were spared any major
damage, but masses of rain.
Well, needless to say, I am tired and sore. will post more when I can.
Peace and Love to all.
Lynn
Maybe you should contact your doctor get a appt to have stimulator
adjusted. Mine does same thing but mine is at t-12 so I cannot get
stimtulation at all unless I am lying down when I bend itdecreases when
I lay all the way down straight stim is real strong. I started ths
group I also run North American Chronic pain society! below link we
have 300 members with chronic pain please join
Mike-President of North American Chronic Pain Society! Our Mission is to
help people in pain find the Doctors that will treat them! If you need a
Pain Management Doctor to manage your Chronic Pain then join us we also
have a great Friendly support group a place to share learn and laugh. We
Hi All,
If any of you are in the path of hurricane Dennis, please stay safe and
get out of the way if they tell you to.
Thank You Dori and Debbie for the information you posted. It will
certainly come in handy for one or more of us at some point in time.
Okay, we have had some great suggestions for a new name so now we need
to decide. Everybody pick one name and post it and then we will get
down to business. For myself, I sort of like RSDheart,hope and help.
Have a great day with low pain. Karen it was good to see you post. Let
us know how things are going with you, hubby and school when it starts.
We miss you when you are gone.
Betty
hi everyone
my hubby is going to a new job tomorrow that is a swing shift........so, my
morning chat time has to be done away with...gotta spend time with hubby you
know....
but, that leaves my evenings and nights WIDE open!!!!!
What's a good time? anybody have any suggestions?
thanks!
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/britainchristianacademy/indexofstudies.html
my HOME PAGES URL coming soon!
To anyone who has a SCS:
I had my SCS from ANS implanted 9/9/03 @ N. KC Hosp. Now that the
scar tissue is developing to secure the electrodes, I don't notice
the sensations as intense when I turn on my programmer; but then if I
move just right; stretch or bend, etc.; it then feels like someone
has turned it on high! Then I cannot get ahold of the magnet or
programmer fast enough to turn it down. Has anyone else experienced
this? Lisa in NE KS
Hello I am the owner of Stimulator! I had my Stimulator Lowered the
leads they where moved down to t-12 Now I feel Stimulation always down
my feet. Now I dont get any back relief but my left leg and foot it
toally covered! They have wide leads to cover more area! Group I also
open a Awsome pain group please join below we have 280 members very
okay all, put on your thinking caps!
this is for a prize! (all winners (50% correct or more!)get a prize! (it's
mailed to you!) As with life, this is an open book test!
Deadline for entries is Sat.
and here we go...........
They Did It First...
1. What king had the first birthday party in the Bible?
2. Where was the first beauty contest in the bible, and who won?
3. Who was the first Christian martyr?
4. What is the first dream mentioned in the bible?
5. What is the first war mentioned in the bible?
6. Who was the first drunk?
7. Where was the first piggy bank?
8. Who was the first person to fall asleep during a sermon?
9. What is the first commandment in the bible?
10. What is the first purchase of land in the bible?
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/britainchristianacademy/indexofstudies.html
my HOME PAGES URL coming soon!
In comment to this wonderful listing of the numerous Pharmaceutical Manufactures here is a little more I have learned recently on obtaining free medications. If your Dr. does not have the forms for the specific drug company then call them at tone of the numbers listed here. Many Dr's do have these forms already and they will have to not only be filled out by your Dr. but signed as well as a written RX accompanying the form. You may fax these forms to speed things up and then snail mail the original to the drug company. Some drug companies will set you up with a local Pharmacy to pick your meds up at and others will mail your meds to you but not to a P. O. Box and a lot of mailed meds will require someone to be there to sign for the meds when they arrive by mail. There is also a company that you can get your medical supplies and medscations from if you are a workers compensation claim. Here is their website: Welcome to PMSI Online. They are also associated wtih this
website that is a mail order Pharmacy for others who have Insurance:
Welcome to PharMerica. If you happen to not be able to fall into one of these categories or are unable to qualify for the drug companies assistance programs try one of the places I will list at the bottom of this message. Hope some of my inp[ut also helps. Thanks so much Dori for typing up these long emails for all to get this much valuable info.
Debbie
Medication Assistance Programs:
DURAGESIC® CII (fentanyl transdermal system) - Welcome
Free and Low Cost Prescription Drugs
NeedyMeds.com: The Place to Learn About Pharmaceutical Manufacturer's Drug Ass
Ever Wonder what those numer codes are on your Dr. bill or papers? Well they are ICD-9 codes and here is a place you can go and look them up at.
Medical Codes (ICD-9, etc.)Pain Scale
ICD-9-CM International Coding Standard
Other Interesting Links
mymedications.com
RSD/CRPS Info
Difficult to Manage Pain Of Reflex Sympathetic Dystrophy
Reflex Sympathetic Dystrophy: Clearing Up The Misconceptions
RSD Puzzle List
Invisible Disabilities: Reflex Sympathetic Dystrophy (RSD)
Intravenous regional sympathetic blockade (IRSB) for reflex sympathetic dystrop
Welcome to the Centerwatch Clinical Trials Listing Service!
The National Chronic Pain Outreach Association
RxList Patient FAQ's
American Pain Society
BrainTalk Communities - Neurology Support Groups - powered by Infopop
Not Addicts
Drug Information - Drugs.com
rxmedications.com
myMedpages
RxHope.com
Advanced Neuromodulation Systems for chronic pain treatment
Medtronic, Inc. - When Life Depends on Medical Technology
Social Security Online
Free Movies For The Disabled!
AAPM - Patient Bill-of-Rights
Guide To Visiting a New Doctor. What to take with you, questions to ask. About
Living With Rsd & Chronic Pain
Clinical Pharmacology - world-class drug information
Links For Fun
SEI UN IDIOTA!
Dolphin Stress Test
The Reflex Tester
Happy Monday Morning everyone!
This week's (tentative) plan for bible study...tentative 'cause I'm in a FMS
flare right now, but I will do what I can!
Mark 15:1-20
Mark 15:21-39
1 Corinthians 15:1-19
1 Corinthians 15:20-34
1 Corinthians 15:35-58
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/britainchristianacademy/indexofstudies.html
my HOME PAGES URL coming soon!
this is for Thurs. and Friday.
Acts5:12-42 Suffering for Christ
In 2 Timothy Paul warns us that everyone who wants to live a Godly life in
Christ Jesus will be persecuted.
Sometimes it won't be very obvious, but it will be there.
In Acts 4: 12-16, how would summarize the day-to-day activities in the temple
area?
Why do you think the Sadducees were jealous of the apostles?
How and why does the Lord mock the power of the assembly of the Sanhedrin?
When might your obedience to God conflict with the authority of man?
What aspects of the gospel offend people in our culture?
In what ways can our obedience to God be costly today?
How has it been costly for you?
Dear Father, we thank you for the opportunity to suffer for Christ. Hanging on
the cross, all He had to do was forsake us, and his torure would have ended.
Yet, when we think of suffering, it is not of physical torture that we endure,
it is only the trite, inconvenient, and somewhat discomforting aspects.
Harassment on the job,
being 'different', not fitting in, being mocked, spiritual warfare, end of
relationships with worldly friends, strife between family members,being called
'fanatics'. Where is the suffering? It is not when compared to what Jesus
endured, and we are thankful for each and every opportunity to be set aside as a
follower of Christ Jesus. Lord, you called us to live in the world, but not be
part of...Lord I ask your guidance in this. Show me how..... Lord, more
importantly, show me how to show my children how...already they are 'different'
and 'don't fit in', Lord I ask that you give them the peace of knowing that they
are living their lives for you, and only in walking with you will they find true
contentment. Lord, I ask that you show me how to be an example to them in this
and all things. We thank you, we love you Father, we give you all the glory.
Amen.
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/britainchristianacademy/indexofstudies.html
my HOME PAGES URL coming soon!
"I Believe"
I believe that we don't have to change friends if we understand that friends change.
I believe that no matter how good a friend is, they're going to hurt you every once in a while and you must forgive them for that.
I believe that true friendship continues to grow even over the longest distances. The same goes for true love.
I believe that you can do something in an instant that will give you heartache for life.
I believe that it's taking me a long time to become the person I want to be.
I believe that you should always leave loved ones with loving words. It may be the last time you see them.
I believe that we are responsible for what we do, no matter how we feel.
I believe that either you control your attitude or it controls you.
I believe that regardless of how hot and steamy a relationship is at first, the passion fades and there had better be something else to take it's place.
I believe that heroes are the people who do what has to be done when it needs to be done, regardless of the consequences.
I believe that money is a lousy way of keeping score.
I believe that my best friend and I can do anything or nothing and have the best time.
I believe that sometimes the people you expect to kick you when you're down, will be the ones to help you get back up.
I believe that sometimes when I'm angry I have the right to be angry, but that doesn't give me the right to be cruel.
I believe that just because someone doesn't love you the way you want him or her to doesn't mean they don't love you with all he or she has.
I believe that maturity has more to do with what types of experiences you've had and what you've learned from them and less to do with how many birthdays you've celebrated.
I believe that it isn't always enough to be forgiven by others. Sometimes you have to learn to forgive yourself.
I believe that no matter how bad your heart is broken the world doesn't stop for your grief.
I believe that just because two people argue, it doesn't mean they don't love each other. And just because they don't argue, it doesn't mean they do.
I believe that you shouldn't be eager to find out a secret. It could change your life forever.
I believe that two people can look at the exact same thing and see something totally different.
I believe that your life can be changed, in a matter of hours, by people who don't even know you.
I believe that even when you think you have no more to give, when a friend cries out to you, you will find the strength to help.
I believe that credentials on the wall do not make you a decent human being.
I believe that the people you care about most in life are taken from you too soon.
Richard, My doctor had me wait a couple weeks after the trial implant was
taken out to then be able to tell how much it really HAD helped while it was
on. There is some carryover when it's off but I'm not sure how long. I
actually didn't get that much help from the one wire trial but they finally
decided (as in the doctor and workman's comp) I needed to have one put in
with the two wire implant with conductor pads and a laminotomy so the wires
are right next to my spinal cord. It helped some but not as much as I had
wished for. I'm still on Hydrocodone tablets and Duragesic patches (50 mg)
thanks for sending this Jayne, it is soooo good
Dorothy
http://home.wirefire.com/debieb/disabled.htm
I have a hereditary, small fiber neuropathy. The primary symptom is
pain but I do have other symptoms. I have not had success with other
treatments so far. I have just started a stimulator trial. They were
hoping to be able to direct the current to my feet but this was not
able to happen.
Right after the procedure I noticed that the pain in my feet was less
and assumed that it was due to the drugs during the procedure and the
pain meds given after (my back was very, very sore due to the
unanticipated length of the trial procedure while they kept trying to
hit my feet).
However, the drugs have obviously worn off and now the next day I
still have some improvement in my feet. My doc thinks that either the
procedure itself caused the improvement, which she says has happened
in the past with some of her patients, or that the stimulator may be
working. The curious thing, at least to me, is that I have notice no
immediate difference in pain level in my feet with the stimulator on
or with the stimulator off. My doc says that it is possible that the
stimulator is helping over time and that I might not have an immediate
reaction to it being off or on.
I would appreciate any input whether this has been true for you. I had
just assumed that the pain would be better right away when it is on
and be worse when I turn it off. I turned it off completely last night
and my feet still felt better this AM. Could one get that much
carryover right away?
BTW, my doc wants to take it out on Monday so I need to make a
decision by then.
I hope I didn't prattle on too much here but thanks in advance for any
feedback.
Richard
"Don't Quit"
When things go wrong, as they sometimes will,
When the road you're trudging seems all up hill,
When the funds are low, and the debts are high,
And you want to smile, but you have to sigh,
When care is pressing you down a bit,
Rest if you must, but don't you quit.
Life is queer with its twists and turns,
As everyone of us sometimes learns,
And many a failure turns about,
when he might have won had he stuck it out.
Don't give up though the pace seems slow.
You may succeed with another blow
Success is failure turned inside out,
The silver tint of the clouds no doubt,
And you never can tell how close you are,
It may be near when it seems so far,
So stick to the fight when you're hardest hit,
It's when things seem worse,
that you must not quit.
Author:- Kristone
"If Tomorrow Starts Without Me"
I've dreamed many dreams that never came true,
If tomorrow starts without me,
And I'm not there to see,
If the sun should rise and find your eyes
All filled with tears for me;
I wish so much you wouldn't cry
The way you did today,
While thinking of the many things,
We didn't get to say.
I know how much you love me,
As much as I love you,
And each time that you think of me,
I know you'll miss me too;
But when tomorrow starts without me,
Please try to understand,
That an angel came and called my name,
And took me by the hand,
And said my place was ready,
In heaven far above,
And that I'd have to leave behind
All those I dearly love.
But as I turned to walk away,
A tear fell from my eye
For all my life, I'd always thought,
I didn't want to die.
I had so much to live for,
So much left yet to do,
It seemed almost impossible,
That I was leaving you.
I thought of all the yesterdays,
The good ones and the bad,
The thought of all the love we shared,
And all the fun we had.
If I could relive yesterday,
Just even for a while,
I'd say good-bye and kiss you
And maybe see you smile.
But then I fully realized,
That this could never be,
For emptiness and memories,
Would take the place of me.
And when I thought of worldly things,
I might miss come tomorrow,
I thought of you, and when I did,
My heart was filled with sorrow.
But when I walked through heaven's gates,
I felt so much at home.
When God looked down and smiled at me,
From His great golden throne,
He said, "This is eternity,
And all I've promised you."
Today your life on earth is past,
But here life starts anew.
I promise no tomorrow,
But today will always last,
And since each day's the same way
There's no longing for the past.
You have been so faithful,
So trusting and so true.
Though there were times
You did some things
You knew you shouldn't do.
But you have been forgiven
And now at last you're free.
So won't you come and take my hand
And share my life with me?
So when tomorrow starts without me,
Don't think we're far apart,
For every time you think of me,
I'm right here, in your heart.
Author "David M Romano"
Al your not can you see thisem,ail
We help Chronic Pain Patients Find the Doctors that will Treat them with
the Proper Medicine! North American Chronic Pain Society! Join us!
Not receiving emails
Al Paille
Richmond, RI
To find disability organizations or agencies in your area, click on your
home state: Alabama Alaska Arizona Arkansas California
Colorado Connecticut Delaware District of Columbia Florida
Georgia Hawaii Idaho Illinois Indiana
Iowa Kansas Kentucky Louisiana Maine
Maryland Massachusetts Michigan Minnesota Mississippi
Missouri Montana Nebraska Nevada New Hampshire
New Jersey New Mexico New York North Carolina North Dakota
Ohio Oklahoma Oregon Pennsylvania Rhode Island
South Carolina South Dakota Tennessee Texas Utah
Vermont Virginia Washington West Virginia Wisconsin
Wyoming
http://www.disabilityresources.org/index.html
Christy
Pray that I can find a grant or some way to get a van that has a wheelchair
lift to it.
Pray for my mom, her health isn't good.
Love in Christ,
Jayne
Chris
August 26, 1993--Mary Jaynes with family in tow, (Mom, Dad, husband, sons) goes to Our Lady of Bellefonte Hospital in Greenup, KY. We were
set to arrive at 6 a.m. to register. By 7:30 She is in surgery where Dr. Love is performing a total bilateral knee joint replacement.
Fast forward to May 17, 2000. It has been almost 7 years and the surgery is still having its desired effect. I am still walking with both feet on the ground and with no cane or other assistance. AND I AM PAIN-FREE!!!!! At least my knees are. I still have the fibro and arthritis in my spine to contend with.
On June 15, go into surgery singing because the end result will be worth it. If the dr thinks you need both knees done; GO FOR IT BY ALL MEANS!!!!!
I will keep you in my prayers that you will have as easy a time with your surgery as I had with mine
Mary J
Even if the majority agrees with an idiotic idea, it is still an idiotic idea.
How much do we actually know about our friends? This is a fun questionnaire to get to know them better. Read through the comments below about your friend and then make sure you read the instructions at the bottom. Have fun!!!!!!!!
1. Name as it appears on birth certificate: Sandra Lynn
2. Nicknames: Sandy,Bronx <few more I wont mention...LOL
3. Birthplace: Long Island,Ny
4. Favorite food: Cheeseburgers
5. Ever been to Africa: No<??
6. Ever been toilet papering yes
7. Love someone so much it hurts? most definately
8. Been in a car accident Yes
9. Croutons or bacon bits Neither
10. Favorite day of week Whatever day I am off of work.....
11. Favorite restaurant IHOP
12. Favorite sport to watch NASCAR!!!!
13. Favorite ice cream Strawberry
14. Disney or Warner Bros. Disney
15. Favorite fast food restaurant McDonalds
16. What color is your bedroom carpet Beige
17. How many times did you fail your
driving test zilch
18. Before this one whom did you get
your last e-mail from HT
19. Which store would you choose to
max out your credit card Walmart
20. What do you do when you are bored ? play on computer,listen to music or sleep<oh yeah,chat on phone...
21. What time is bedtime depends on work schedule
22. Who will respond to this e-mail the
quickest I dont know
23. Who is the person you sent this to
who is least likely to respond No idea
24. Favorite TV shows (only 2) Cops
25. Last person(s) you went to dinner with Friends from work
26. Ford or Chevy CHEVY
27. What are you listening to right now Toby Keith
28. What is your favorite color Purple
29. Ocean or river Ocean
30 How many tattoos do you have NONE
Directions: Now here's what you're supposed to do and please do not spoil the fun. Copy this entire e-mail (not forward it) and paste it onto a new e-mail that you will send to whomever. Change all of the answers so that they apply to you. Then send this to a whole bunch of people you know INCLUDING the person who sent it to you. The theory is that you will learn a lot of little known facts about those who know you. Remember to send it back to the person who sent it to you. Looking forward to reading your response(s).
Free Medication Programs for Low-Income
Pain Patients
Percocet: Patient Assistance prog.
b800-474-2762
Percodan & Percocet by Dupont
800-474-2762
Morphine Sulfate by Astra USA
800-262-0460
MS Contin Purdue Frederick Co.
800-633-4741
Tylox by Ortho-McNeil Pharma.
800-797-7737
Roxane Laboratories Inc. Free
800-274-8651
3M Pharmaceuticals
(800) 328-0255
Products include: Most drug products
sold by 3M
Allergan, Inc.
Allergan Patient Assistance Program
c/o Judy McGee, Physician Services
Representative
2525 Dupont Drive,
Irvine, CA 92713
Products include: Betagen, Botox, Pilagan,
Epifrin
Alza Pharmaceuticals
(415) 962-4243
Products include: Testoderm, Ocusert,
Progestasert
Amgen
(800) 272-9376
Products include:
Epogen, Neupogen Astra USA, Inc.
(800) 488-FAIR (488-3247)
Products include:
Foscavir injection
Baxter Healthcare Corporation
(800) 423-2090
Products include:
A Patient Assistance Program is being
developed for Gammagard S/D and should
be ready in about 3-4 months.
Bayer Corporation
(800) 998-9180
Products include:
Mycelex and several other products
Berlex Laboratories
(800) 473-5832,
(800) 888-4112
Products include:
Betapace, Betaseron for SC injection,
Fludara, Quinaglute Dura-Tabs
Boehringer Ingelheim Pharmaceuticals, Inc.
(800) 556-8317
Products include:
All products covered except controlled
substances
Boots Pharmaceuticals, Inc.
Boots Cares Program
300 Tri-State International Center
Suite 200
Lincolnshire, IL 60069-4415
Attn: Sandy Bauco
Products include:
Synthroid tablets
Bristol Myers Oncology
(800) 272-4878
Products include:
Bicnu, Blenoxane, Ceenu, Cytoxan, Hydrea,
Ifex/Mesna, Lysodren, Megace,
Mutamycin, Paraplatin, Platinol, Rubex,
Taxol, Vepesid
Ciba-Geigy Corporation
(800) 257-3273,
(800) CHIRON-8 (245-7668)
Products include:
Aredia, Cytadren, Actigall, Anafranil,
Anturane, Apresazide, Apresoline,
Brethaire, Brethine, Cataflam, Desferal,
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Habitrol, Ismelin, Lamprene, Lioresal,
Lopressor, Lopressor/HCT Lotensin,
Lotensin/HCT, Ludiomil, PBZ, Regitine,
Rimactane, Ser-Ap-Es, Slow-K,
Tegretol, TEN-K, Tofranil, Tofranil-PM,
Transderm-Scop, Transdermal-Nitro,
Voltaren
Connaught Laboratories, Inc.
(717) 839-4617
Products include:
TheraCys BCG live intravesical
Convatec - A Bristol-Myers Squibb Company
200 Headquarters Park Drive
Skillman, NJ 08558
P.O. Box 5254
Princeton, NJ 08543-5254
(800) 422-8811,
(908) 281-2815
Convatec is a manufacturer of ostomy, wound care
and incontinence products.
DuPont Merck Pharmaceutical Company
Products include:
All non-controlled prescription products
Eli Lilly and Company
(800) 545-6962
Products include:
Most all Lilly prescription products and insulins.
Fisons Pharmaceuticals
Gastrocon Patient Assistance Program
P.O. Box 1766
Rochester, NY 14603-1766
Products include:
Gastrocrom capsules
Fujisawa
(800) 477-6472
Products include:
Prograf
(708) 317-8636
Products include:
NebuPent
Genentech, Inc.
(800) 879-4747
Products include:
Actimmune, Activase, Protropin, Nutrpoin
Glaxo Wellcome
(800) 745-2967
Customer Service (800)334-0032
Patient Assistance (800) 722-9294
Reimbursement Line (800) 423-6869
Products include:
Aleran, Blenoxane, Imruan, Leukeran, Myleran, Navelbine,
Purinethol,
Thioguanine, Zofran, Zovirax, and allother Glaxo Wellcome
products
Hoechst-Marion-Roussel, Inc.
(800) 362-7466
Customer Information Line
(800) 552-3656
Products Include:
Carafate, Altace, A/T/S, Claforan, Diabeta, Lasix, Lorpox,
Topicort,
Trental, and other prescription products (except Rifadin,
Rifamate, Rifater,
Tenuate)
Immunex
(800) 466-8639,
(206) 587-0430
Products include:
Leukine, Novantrone, Thioplex, and all other currently marketed
Immunex
prescription products
Janssen
(800) 544-2987
Products include:
Duragesic, Ergamisol, Hismanal, Imodium, Nizoral tablets,
Propulsid,
Sporanox capsules, Vermox Knoll Pharmaceutical Company
(800) 524-2474
Products include:
Isoptin, Rythmol, Santyl
Lederle Oncology
(800) LED-CARE (533-2273)
Products include:
Mitoxantrone, Leucovorin, Methotrexate, Thiotepa,
and all other oral
pharmaceutical products (except controlled drugs)
Liposome Company, Inc.
Financial Assistance Program: (800) 335-5476
Reimbursememt: (800) 345-2252
Executive Offices: (609) 452-7060
Products include:
Abelcet
McNeil Pharmaceutical
(800) 682-6532
Products include:
Prescription products prescribed according to
approved labeled indications
and dosage regimens
Merck Human Health Division
(800) NSC-MERCK (672-6372)
Products include:
Many Merck products
Miles Inc. Pharmaceutical Division
(800) 998-9180
Products include:
All Miles, Inc. prescription medications used as
recommended in prescribing
information
Nabi (formerly known as Univax)
(800) 789-2099
Products include:
WinRho SD
Ortho Biotech
(800) 553-3851
Products include:
Leustatin, Procrit
Parke-Davis
(800) 755-0120
Products include:
Most Parke-Davis medications, including Accupril, Cognex,
Cilatin, Lopid,
Neurotin, Nitrostar, Sublingual, Procan SR, Zarontin
Pfizer, Inc.
(800) 646-4455
Products include:
Diflucan, and all other Pfizer products
Pharmacia & Upjohn
(800) 366-5570
Products include:
Adriamycin, EMCYT, Fragmin, Idamycin, Zinecard, Adrucil,
Azulfidine,
Dipentum, Folex PFS, Meosar, Vincasar, Mycotubin
Proctor & Gamble Pharmaceuticals, Inc.
(800) 448-4878
Products include:
Asocial, Tantrum capsules, Didronel, Entex, Macrodantin,
Macrobid
Purdue Frederick
(203) 853-0123, ext. 4800
Products include:
Alferon N, MS Contin, OxyContin
Rhone-Poulenc Rorer, Inc.
(610) 454-8298
Products include:
All products are eligible, with some limitations on supply
Roche Laboratories
(800) 443-6676,
(800) 285-4484
Products include:
Matulane, Roferon-A, and all other Roche product line
Roxane
(800) 274-8651
Customer Service (800) 348-0120
Medical Information (800) 327-4865
Products include:
Marinol, Oramorph, Roxanol, Roxicodane, Torecan
Sandoz
(800) 447-6673,
(203) 746-8958
The second number is to NORD, Inc., the parent
company of Sandoz.
Products include:
Clorazil, DynaCirc, Eldepryl, Lescol, Sandimmune,
Sandoglobulin, Sandostatin
Sanofi Winthrop Pharmaceuticals
(800) 446-6267
Products include:
Aralen, Breonesin, Bronkometer, Danocrine, Drisdol,
Hytaketol, Isuprel,
Mytelase, NegGram, pHisoHex, Primaquine, Plaquenil,
Trancopal
Schering Oncology
(800) 521-7157
Products include:
Intron-A, Eulexin, and all other products
Searle
(800) 542-2526
Products include:
antihypertensives -
Aldactazide, Aldactone, Calan SR, Kerlone;
antihypertensives/anti-anginal/antiarrhythmics -
Calan;
antiarrhythmics
Norpace, Norpace CR;
prevention of NSAID-induced gastric ulcers
Cytotec;
quinolone anti-infective
Maxaquin
Sequus Pharmaceuticals, Inc.
(800) 375-1658,
(415) 323-9011
Products include:
Doxil
Serono Laboratories, Inc.
(617) 982-9000
Products include:
Metrodin (FSH)
Smithkline Beecham Pharmaceuticals
Access to Care Program
1 Franklin Plaza FP 1320
P.O. Box 7929
Philadelphia, PA 19101-7929
(800) 546-0420
Products include:
Amoxil, Augmentin, Bactroban, Compazine, Dyazide,
Famvir, Kytril, Relafen,
Riduara, Tagamet, and most other Smithkline Beecham
prescription products
Solvay Pharmaceuticals, Inc.
901 Sawyer Road
Marietta, GA 30062
Attn: Patient Assistance Program
(800) 788-9277,
(770) 578-551
Products include:
All medications distributed by Solvay
Syntex Laboratories, Inc.
(800) 822-8255,
(202) 508-6568
Products include:
All Syntax products
Tap
(800) 453-8438
Products include:
Lupron
Wyeth-Ayerst Laboratories
(703) 706-5933
Products include:
Norplant and other various products
Zeneca
(800) 424-372;
(800) 767-4424
Products include:
Arimidex, Casodex, Nolvadex, Zoladex
Hi Debbie,
Well I am glad you were able to fix your ac.
Gives you an idea of how our ancestors lived without the water, electricity and air, etc. huh?
Hang in there and know that your father inlaw and you are in my prayers.
RSD friends
Dori
Are you a Chronic Pain Suffer? There is a Group that can help you get
Proper Medical Treatment! Called North America Chronic Pain Society!
Our Mission is to Bridge the Gap between Patient and Physican, It is
time to Stand up be Notice to many people in North America Suffer
Needlessly with Uncontrolable pain. Lets Work Together to Help others!
I am sorry that Christy is not well. I went to the chat room and she was
missed. I will try again on Thursday.
In God's Love,
chris
How much do we actually know about our friends? This is a fun questionnaire to get to know them better. Read through the comments below about your friend and then make sure you read the instructions at the bottom. Have fun!!!!!!!!
1. Name as it appears on birth certificate:Dori Anne Donna
2. Nicknames: Dori or Dirty Anne
3. Birthplace: Watertown,SD
4. Favorite food? Prime Rib or Chicken Alfredo
5. Ever been to Africa? No but would love to go.
6. Ever been toilet papering? No
7. Love someone so much it hurts? Oh yes
8. Been in a car accident ? Yes a few
9. Croutons or bacon bits? both
10. Favorite day of week? I don't have one
11. Favorite restaurant Olive Garden
12. Favorite sport to watch? None
13. Favorite ice cream? Boudreaux Chocolate Cherry
14. Disney or Warner Bros.? Both
15. Favorite fast food restaurant? Subway
16. What color is your bedroom carpet? Light Beige
17. How many times did you fail your driving test? 0
18. Before this one whom did you get your last e-mail from? Don't know
19. Which store would you choose to max out your credit card? Menard's or Slumberland
20. What do you do when you are bored? I am seldom bored but usually sleep, clean, watch TV, go visiting relatives
21. What time is bedtime? Varies depending on the day I have had.
22. Who will respond to this e-mail the quickest? Don't know
23. Who is the person you sent this to who is least likely to respond? No idea
24. Favorite TV shows (only 2) Don't have a favorite but enjoy the animal planet channel and court TV
25. Last person(s) you went to dinner with? Mom and boyfriend
26. Ford or Chevy? Ford
27. What are you listening to right now? No music or TV just the sound of my fan
28. What is your favorite color? Blue
29. Ocean or river? Ocean
30 How many tattoos do you have? 0
Directions: Now here's what you're supposed to do and please do not spoil the fun. Copy this entire e-mail (not forward it) and paste it onto a new e-mail that you will send to whomever. Change all of the answers so that they apply to you. Then send this to a whole bunch of people you know INCLUDING the person who sent it to you. The theory is that you will learn a lot of little known facts about those who know you. Remember to send it back to the person who sent it to you. Looking forward to reading your response(s).
Thank you for sharing.
chris
<A HREF="http://ordinarywoman.com/oweg.html"
Hi there! I'm Shanin. I have upperbody RSD/CRPS in both arms and
back of nexk. I had a SCS installed May 27, 2003 for the RSD pain.
It defintaly works, but still with some narcodics. I am wondering, I
leave it on all the time, how long does the battery last, with it on
all the time?
Shanin
Mary,
I have a spinal cord stimulator for pain. Most of my pain is in my legs! I have
Just a quick line to let you all know we managed to get the A/C repaired to the tune of $275.00. Now I have to figure out how the heck to pay for the elec. and phone bill after spending this on the A/C. We have yet to get the well fixed and so far it is not looking all that good on that. I have been driving over to a neighbors and filling up huge volumes of water in containers. On Thursday it rained 2 times really good so we headed outside and took a shower in the rain LOL. Hey it worked and we felt so much better afterwards. This no water is the pits though. We just happened to have a 300 gallon cattle water trough and it was full of rain water so it is being used to flush toilets and non essential stuff that does not require quality water. So far it looks like it is not the capacitors or relay switches and this could mean a huge expense to get this fixed. I mean like in the several thousands $$ such as pulling the one there that is 320 ft. feet deep and
re-drilling a new well completely. To pull the well pump you must pull the well. To pull the well you need a special truck to pull the long sections of pipe. Anyway we are camping in the house. I have learned so much here with no water for a week and no A/C for almost 2 weeks. We will have our Arbitration 3 way phone call to figure out when and where it will take place and about doing a document exchange on the 21st. I got my response to the Atty. on my Work Comp Appeal faxed off a few days ago and hopefully that will come in very soon. In the mean time we are watching the Gulf and Hurricane Dennis. My Father in Law is in Fl and he is worried about this one. So please pray this thing goes elsewhere or fizzles out one which I seriously doubtit will. The Gulf waters are way warm for this early in the Tropical season and this is the earliest Hurricane of this size ever. This will not be good for anywhere it goes in at. Have a good week end and hope all are pain free
as much as can be.
Debbie
HI. I FIND YOUR INFO ABOUT ADJUSTING THE STEM VERY INTERESTING. IF YOU
COULD GET ME UP TO SPEED ABOUT WHAT PAINFUL CONDITION YOU HAVE... IT
WOULD BE VERY HELPFUL TO ME.
ARE YOU ALL SPINAL CORD INJURYS? AND THEREFORE CENTRAL PAIN SYNDROME
SUFFERERS? OR WHAT?
THANKS SO MUCH. WHAT I LEARN HERE I WILL TAKE BACK TO MY GROUP
MEMBERS.
Thank You
Mary Simpson
www.centralpain.org
PLEASE FORGIVE MY ALL CAPITAL TYPING. I TYPE ONE HANDED [ONE
FINGERED] AND IT'S SO MUCH EASIER AND FASTER FOR ME TO USE ALL CAPS.
THANK YOU FOR BEING TOLER
my mom (cristine)(iam her daughter) will not be in chat because she does not
feel well.
agape,
emily
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/britainchristianacademy/indexofstudies.html
my HOME PAGES URL coming soon!
How much do we actually know about our friends? This is a fun questionnaire to get to know them better. Read through the comments below about your friend and then make sure you read the instructions at the bottom. Have fun!!!!!!!!
1. Name as it appears on birth certificate: Debora
2. Nicknames: Deb or Mom
3. Birthplace: Houston, Texas
4. Favorite food? Chicken
5. Ever been to Africa: No
6. Ever been toilet papering? yes
7. Love someone so much it hurts? Oh yes
8. Been in a car accident ? Yes a few
9. Croutons or bacon bits? both
10. Favorite day of week? Tuesday
11. Favorite restaurant Steak n Ale
12. Favorite sport to watch? Basketball
13. Favorite ice cream? Vanilla
14. Disney or Warner Bros.? Disney
15. Favorite fast food restaurant? Subway
16. What color is your bedroom carpet? Blue
17. How many times did you fail your driving test? 0
18. Before this one whom did you get your last e-mail from? Betty
19. Which store would you choose to max out your credit card? J C Penny
20. What do you do when you are bored? read, computer, TV/movies
21. What time is bedtime? When I fall asleep LOL about 3 AM
22. Who will respond to this e-mail the quickest? have no idea
23. Who is the person you sent this to who is least likely to respond? No idea
24. Favorite TV shows (only 2) Critical Hour and Survivor
25. Last person(s) you went to dinner with? Husband
26. Ford or Chevy? Dodge ROFLOL
27. What are you listening to right now? Moody Blues
28. What is your favorite color? Blue
29. Ocean or river? Ocean
30 How many tattoos do you have? 0
Directions: Now here's what you're supposed to do and please do not spoil the fun. Copy this entire e-mail (not forward it) and paste it onto a new e-mail that you will send to whomever. Change all of the answers so that they apply to you. Then send this to a whole bunch of people you know INCLUDING the person who sent it to you. The theory is that you will learn a lot of little known facts about those who know you. Remember to send it back to the person who sent it to you. Looking forward to reading your response(s).
John,
I had the same problem, at first. They need lots of adjusting until the
Medtronic rep gets the pain covered more adequately. Also, you will get more
used to that tingly feeling. I hardly notice mine at all anymore! (except for
when the battery goes out and I again realize how much pain I was having without
it!)
Lucie
This is a wonderful site --- very beautiful poety and music that matches the
mood. Very soothing and well worth a visit. Enjoy.
Barbara Horton
horton@...
Killen, AL
http://members.aol.com/mempenny4/ginny.html
hi. i am doing ok i think my srm is not dooing good. but eveythink ele is. it ok i am not haveing
go night at all too. i do think it is form the rsd. good for you for start school next moth. want are you going for? hope you have a good day. hope you have a pain free day too. talk to you laster.
anna.
Karen <wennerK@...
Hi hope everyone is doing good with low pain...I am doing ok been
having some bad nights but guess that is supected with having this
RSD...but been getting though them...got a hubby that supports me 100%
with this he does things for me when i am hurting so bad...man am i
glad he likes to clean house and cook other wise we would be both be
in one world of hurt...start school next month so it will be heckted
for me getting on and posting but will make sure I try and do it just
to makes sure you know how I am doing.
Karen
Hi hope everyone is doing good with low pain...I am doing ok been
having some bad nights but guess that is supected with having this
RSD...but been getting though them...got a hubby that supports me 100%
with this he does things for me when i am hurting so bad...man am i
glad he likes to clean house and cook other wise we would be both be
in one world of hurt...start school next month so it will be heckted
for me getting on and posting but will make sure I try and do it just
to makes sure you know how I am doing.
Karen
I'm cross-posting, please do not hit 'reply all'.
The Lord has shown me that this Friday is to be a day of prayer and fasting for
me.....to pray for specific needs for others. I have set up a special folder
for this purpose, please make sure the subject line says 'day of prayer and
fasting'. You need not tell me details, God knows them! But, the more info I
have, the more specifically I can prayer for your needs. So, fill up
folder....there's no limit to how many prayer reequests you can have! And of
course, this is confidential......
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/britainchristianacademy/indexofstudies.html
my HOME PAGES URL coming soon!
Hi John.
I had that problem in the first month after mine was implanted.
I met with the Medtronic's rep 4 times in the first month to have it
re-adjusted.
Make an appointment with your rep as soon as possible, they CAN help.
Mine has not moved for over 3 months now!
I had mine implanted May 27, 2003.
Hope this helps!
Shanin
The implant must be moving because I cannot get the level of the
programmer at a good setting. If I move just a little bit, just
breathing sometimes, it changes. I cannot tell if it will increase
or decrease. If the electrical stimulation increases it usually
makes me jump out of my skin (such as an getting jolted my an short
circuit from a electric wire.)
I have had to turn it off several times due to this problem. Last
night it wouldn't let me get to sleep, not that I sleep that much
anyway. This morning, same thing, it is driving me crazy.
Yesterday, before it started acting up, I went for a walk with my
wife for the first time in a year. I could adjust it to cover this
pain as it increased. I have notice there are times when it
actually made the pain worse too. Weird.
I am going to call the nurse tech from Medtronic to see what she
has to say. Any suggestion from any of you would be helpful.
Thanks. John
Sandy, I am so sorry you had to work over the holiday. We live in Texas not all that far up from Houston. We too watch all the Tropical weather. I see we have a new Hurricane to keep up with, Dennis. I hope we both are spared from this one as it looks bad and is still so far away.
All, update: The A/C well let's say we rigged it temporary for a day anyway. My husband is always coming up with some idea that looks strange but hey it works. We have this huge Commercial high velocity fan. We unbolted it from the stand and placed it blowing up to remove the hot air from the A/C fan motor and coils. So far works like a charm. This tells us the A/C is definitely the fan motor. I called the A/C man to come out on Wednesday and we talked and he never showed up. I was going to be able to give him 2 post dated checks to get this thing fixed. Now my husband has decided he no showed and knew we were sweltering so he plans to go buy the fan himself tomorrow wholesale from the Mfg. This will save us over $100 doing it ourselves. Only way we get away with this is we still have a Federal, ID number even for us personally for business purposes in case we need it. One a good note an ex neighbor showed up at 8am Wednesday morning with his tractor and him and my
husband both spent all day mowing here. He left it here and will come back late tomorrow afternoon to pick it up. Poor Mike and his back will never be the same. The Dr. office called Wednesday about him and it is my Ortho Dr. Well, seems he knows the situation here and knows we need him to fill out some papers for him to appeal his no medical coverage being paid for by his Ins. Co. So he is going to see Mike for free on the 20th and we will get all of the mess going for him soon. His Ins. Co. decided he no longer needs any further medical treatment. His Ins. Co. is the worst. His Adjuster flat refuses to talk to me anymore as I crawled her legally several times and threatened her with a lawsuit. Looks like her lack of care for him and not paying after they have approved for treatments and even approved in writing then decided not to pay, her bubble is about to burst on this. My new inside person that my Senator got to help me with my case has given me an arm full of
ammo to go after the Ins. Co. Our Dr. knows I am well versed as the Employer already and we always have long conversations about Work Comp when I go in. I was given some very beneficial information that will benefit the Dr. for his not being paid not just for us any others who were approved for treatment in writing and then not paid for the services rendered. This was music to his ears and will help him tremendously be able to collect thousands of dollars owed to him or his practice for MRI's and stuff. There was a recent meeting in the State Capitol and the Texas Workers Comp. Commissioner attended and so did my lady who is helping me. The Commissioner said that if there are any unpaid medical bills to Dr. for services that were approved in writing to call him directly or another man and I was given the direct phone numbers for this to be addressed. Needless to say my Dr. was happy to learn I found this out as it was not made known to the medical profession. In fact
it was not made known to anyone that did not attend this meeting. He seems to be so amazed at the information I have been able to learn about and fill him in on. So we inform each other and it makes a very workable Dr. patient relationship. I guess not too many have the direct phone numbers for their Dr's or their nurses let alone the pager, cell and home phone numbers. I take my relationship with my Dr's who I have been fortunate enough to gain this info. very seriously. Now if I could just get my Pain Mgmt. Dr. to be like this I will have it made. Anyway he is going to see Mike on the 20th and fill out papers for him and get him lined out again. I am waiting on an appeal for medical necessity which is in the works already. I faxed this same info. to Mike's Pain Mgmt. Dr. who is owed over $20,000.00 for procedures they got approved and did and were never paid so his Dr. stopped seeing him. Now his bad back is all messed up from stopped treatment. He broke his back in
6 places in 1983 and healed well from that. He was in an Ultra Light Airplane crash. Then one day in 1998 while on one of our jobs his back snapped so loudly while doing something the guy standing next to him heard it as he crumpled to the ground and had to be taken to the ER via ambulance. His back was spasing so badly it was going around into his diaphragm and caused him to be unable to breathe well. He has 5 Thoracic disc herniations all inoperable and 2 Lumbar herniations and a whole host of other problems as well. I never have had a problem in his understanding my pain as he has his own pain as well. I have decided though that women can deal much better with pain than men ever could. On the well we are thinking it may be a relay or a capacitor. We have a call into a friend who runs large community water wells for rural cities to see if he can maybe shed some light on this or possibly have the truck to pull the well with. I have been busy on the phone for days
now trying to get information or help. I may have gotten some small help with the Elec. bill, but will not know until Friday. It is funny how when you call one person asking all of a sudden 1/2 the County knows and soon people are arriving like the man with his tractor. He also came loaded down with fresh green beans, red potatoes and yard eggs thanks to his wife. They are the ones we got the meat from. Maybe my black cloud is starting to break up and hopefully good will start soon. I find out tomorrow when we have our 1st 3 way phone conversation with the appointed Arbitrator and the Mfg. of the house their Atty. and us and we will set up all of this to take place soon. All we need is 1 thing to go our way and that will help tremendously. Please keep those prayers coming and be sure to add to that a pray Hurricane Dennis goes elsewhere. Betty, I got the word back on for you and Jim and when I get the info. tomorrow I will send it to you. Can you please email me
your phone number and I can call you with it when I get it so you can get right on the matter. (((((HUGS))))) to all. Music is beneficial to your mental and physical health and makes you feel good inside. Always listening to music here and singing and it does make you feel better it does me. "Dream girl you are my best friend".
Debbie
Hi Sherry,
Just a short note to let you know that my prayers are with you and for your mother and stepfatherinlaw.
RSD friends
Dori
HI TO EVERYONE HERE. I AM MarySimpson FROM CENTRAL PAIN SYNDROME ALLIANCE. WE
ARE IN THE MIDDLE OF A DISCUSSION ABOUT THIS METHOD OF PAIN REDUCTION AND I
HAPPENED ONTO YOUR GROUP. I AM WONDERING WHAT YOU SEE AS THE PROS AND CONS FOR
YOU
ANYTHING I LEARN FROM YOU ALL I WILL SHARE WITH MY CPSA[CENTRAL PAIN] GROUP.
ESP THOSE THINKING OF TRYING IT OUT.
THANKS TO ALL WHO RESPOND. GIVE ME AS MUCH DETAILS AS YOU CAN. OK?
Love, Light, Rainbows
and Blessings
Mary Simpson
Greetings everyone.
Please stop my mail for a couple of weeks, for we are going to Gatineau, Canada,
for two weeks.
Unfortunately I had a bad fell last Sunday, fell down a flight of stairs, 5
stairs, second fall this year on the same stairs I just had an MRI done for the
first fall, and have not seen the results yet. I guess those pictures are void
now. I'll propbably need to be worked up again. I am hurting pretty bad, landed
on my arm and turned it backwards with all my weight on it landed between the
stairs, don't know how I didn't break it, but I lucked out I guess. The back,
legs, and feet are hurting pretty bad, and I'm tired because I haven't been able
to sleep much because of the pain keeping me up. My pain meds were just at the
point where I was comfortable and now it doesn't seem to be working much, and I
won't be seeing the doc for a while because I am still going for that psysco
evaluation, and can't see him until I finish that. it has been a difficult
week, just before our planned trip, but Linda is doing the driving and I will
just lay back in the Van. Nothing will stand in the way of our plans.
We love you all, and will let you know when we return, If you try to write back
we will be gone about 5PM EST, on Wednesday afternoon.
Al & Linda Paille
Richmond, RI
Please stop all e-mail until end of October. Gone on vacation!!!!
Thanks,@aol.com
Welcome Chris!
We are so glad you joined us!
The basic idea is an on line bible study, that I post to the list M-F, and then
I am (usually) in chat at
10:00AM pacific time (MugNMuffin), and 4:30 Pm pacific time(Teatime).... on
Mondays, I post the scriptures for the week, but I do post a bible study
(almost) everyday.
Today, I was not in chat because I am very very sick today....much pain, much
nausea, new nighttime meds gave me a 'hangover' and I have excrucitaing pain in
my neck, jaw, face and head today. My head feels like it about 3 sizes to big
for my neck to hold up! So I will post a bible study later, and hope to be at
Teatime today....and just a reminder, feel free to 'beep' me on AIM anytime!
--- "chris edison" <chrisedison@...
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/britainchristianacademy/indexofstudies.html
my HOME PAGES URL coming soon!
Hello Cliff Nice to meet you. I can tell you I have a SCS I had it
almost 2 years now and I have Neropathic pain in left leg The Stimulator
has Reduce my pain by 50 percent. Instead of getting that real Bad
Burning type pain I now get a Dull pain. Some get 100 percent with
it. I will tell you this It cannot hurt to get the Trial And see what
happens. Most who have the Stimulator do have good results there a few
that it just doesnt work. It should reduce your Neuopathic pain. I
hope I was helpful.
Are you a Chronic Pain Suffer? There is a Group that can help you get
Proper Medical Treatment! Called North America Chronic Pain Society!
Our Mission is to Bridge the Gap between Patient and Physican, It is
time to Stand up be Notice to many people in North America Suffer
Needlessly with Uncontrolable pain. Lets Work Together to Help others!
HI I AM NEWLY DIAGNOSED WITH DIABETIC NEUROPATHY,ON MEDS THAT SOFAR
HAVE STOPPED THE STABBING PAIN BUT NOT THE CONTINUSE BURNING IN MY
FEET.MY NEURO HAS SUGGESTED THE SCS FOR THIS PAIN. WAS WONDERING
FROM SOME OF YOU WHO THIS INPLANTED WHAT IT'S LIKE AND IF YOU COULD
BACK TO WORK AFTER.
I wanted to apologize for not posting i awhile I been very tied up! I will be
posting a couple new Article on the SCS soon. I want to welcome every new member
Betty
Quick check in from here too,needless to say coz I am low man on totem pole I had to work holiday weekend,so we didnt get to do too much.I am whooped literally and heading back in now but I have tomorrow off so I can catch up on sleep and stuff.
We have had some serious weather issues w/ flooding,and it is expected now to get worse w/ remnants of Cindy coming thru,we have laready had almost 7 to 8 inches rain in last 3 to 4 days.I live on mountain so I wont flood too much,but its been really hard to get home or leave here at times,I was also informed needed to watch for mudslides now too....fun fun...LOL-seems NC is just one WET state,never seen so many floods in my life till I moved here...and they said Seattle was bad!! Pain levels are high due to storm but got my meds and patches so hopefully I can get thru this one a bit better then usual....
anyhow...hope everyone is well and hopefully if I dont float away will be here to chat tomorrow...
luv to all
Sandy
Well, the holiday is over and I hope we all survived it without too
much trouble and had a great time. Sherry, you and your whole family
are in my prayers with a special prayer for your father-in-law.
Lynn, my prayers are with you and your family as well. The next few
days are going to be very hard for you and I only wish I could help
you get through it. Please tell Harry to drive safely and let us know
when you can how you are doing.
Anna, my goodness girl! You belong to 36 groups? How do you keep
track of them all? I think my fingers would get worn out trying to
keep up with all that mail.
Debbie, I sure hope that you have found some sort of help with the
A/C and the well. It's just too hot to not have either of those. You
are also in my prayers.
Lynda I will be looking for you online so we can talk.
Sandy, try not to work too hard and just watch for me so that we can
also talk sometime.
Dori, do I still have the right phone number for you or has it
changed?
Everyone have a lovely day doing whatever you need to but as little
as possible.
Love to All,
Betty
Lucie Yes I had my leg cramping up with my Stimulator before ater
Medtronics rep adjusted it I was ok.
Are you a Chronic Pain Suffer? There is a Group that can help you get
Proper Medical Treatment! Called North America Chronic Pain Society!
Our Mission is to Bridge the Gap between Patient and Physican, It is
time to Stand up be Notice to many people in North America Suffer
Needlessly with Uncontrolable pain. Lets Work Together to Help others!
Hi Chris: What part of Mass are you from? I also live in Mass. Wonder if
we are neighbors.
It is hard living with a disease wondering if we are being punished for
something.Which we are not. I have an incurable liver disease and am
not sure what the future holds but I do know WHO holds the future.
I know what depression is. I would love to correspond with you and maybe
get to cheer you up some.
Anyway I will keep you in my prayers and do pray I will hear from you.
Love in Christ
Shirley <
hi. i hope you step father-in-law is doing better. i hope he can have the surly and they can get it all out and he will not have no more choter. hope you are feeling good. have a good day. hope you have a pain free day too. talk to you laster.
anna
sherryleeallen1 <sherryleeallen1@...
Hello everyone,
Well I see my one message that I posted so that is a good thing. More
bad family news. We were just told by my mother-in-law that our step
father-in-law has colon cancer. They found 4 small tumors in his
colon and one large mass. They will be doing further testing to see
if it is seems to be contained only to his colon and he is to have
surgery very soon to remove probably his whole colon and so he will
have to have a colostomy I'm sure.
Unfortunately for him he was very late in getting checked out as he
has had blood in his stool for about 4 months now and has just went to
see about it in the last couple of weeks as he has been so very tired
and weak but that is because he is an anemic from all of the blood
loss over the last few months.
Men I swear!!! They say they don't like going to Dr.s, well who does.
Most of his side of the family has died from heart problems and he has
had heart attacks in the past too and he has a very enlarged heart too.
He has already lost 2 younger brothers and a sister to heart attacks
plus just a few months back he lost his son to a heart attack.
I think he thinks he doesn't have long to live anyway so he has been
spending money like there is no tomorrow. Not good for my mother-in-
law who is one of the sweetest and kindest persons I know.
Well all of that is a story in its own but I thought none the less I
would ask the group for there prayers for Richard and his family.
Thank You to all
Soft Hugs
Sherry
SPONSORED LINKS
Rsd Pain Disease
I had my first stimulator implanted in January of 1999 and have had
several upgrades since then!
Last weekend, I had to turn it off because it was causing my legs to
cramp in rhythm with the "beat" of the stim! (if that makes any
sense!)
This is the 3rd time that has happened so it isn't a regular
occurance.
I am meeting with the Medtronic rep this AM, so wondered if anyone
else has had this problem and what can be done about it?
thanking you in advance,
Lucie
Great to hear Leo. Group I do want to apoligize for lacking in posting.
I started a Chronic pain group general topics.
Hi everyone I just wanted to let everyone know that I'm regaining some strength
back in my legs and i can now stand and walk a little too thanks for all the
support and i hope everyone is has a good week I can't wait till this weekend to
see my new granddaughter she is already 3 weeks old but I've been to weak to
travel
Hugs and Prayers Leo
Good Morning!
My name is chris and I joined your group today. I am 44,and
married to a wonderful man, (Scott), for 11 years. This is a second
marriage for both of us, so we have 7 children. There are 6 boys
(ages 15-23) and 1 girl (24). We live in Massachusetts.
I have Degenerative Joint Disease and Depression. I will be
having a total knee replacement June 15th.
I enjoy crocheting and counted cross stitch. I enjoy trying new
crafts when ever I am able.
There are many times throughout my life when I questioned why
God has put me through terrible trials. Yet, in my heart I know
there is a reason. Many times I have been able to help or understand
someone else because of the experiences the Lord has given me. I
often have thought the road I was traveling was too hard, yet I
always got through. Psalm 27 is one of my favorite sources of
strength, how ironic it was also a bible study here.
I look forward to getting to know each of you.
God Bless,
chris
hi. think you about the teen group but i i do want to go in it. i am in like 36 rsd group aright. soo yet. but think you. i go on the rsdhope wed page all the time. soo i know about that too. but think you. i hope you have a good day. hope you have a pain free day too. talk to you laster.
anna
sherryleeallen1 <sherryleeallen1@...
Goodmorning Anna,
I haven't read all of the posts and so some one has probably told you
of the great teen group on the main RSD web site!!! Just incase you
missed that or wasn't told as of yet they have one of the best RSD
site that I have ever seen as they have something for everyone and has
the most info out there that I know of anyway.
Have you visited the site yet??? If not it is www.rsdhope.org and it
is just a absolutely fabulous web site for all things associated with
RSD/CRPS.
Thats great news about the new school with the elevator for you to
use!!!
My mom does not appear to be sick or anything from her kidney problems
as of yet and hopefully she will improve with the med change if that
is the major cause of it. Hopefully anyway!!!
Well I wish you a good day.
soft hugs
Sherry
Goodmorning Anna,
I haven't read all of the posts and so some one has probably told you
of the great teen group on the main RSD web site!!! Just incase you
missed that or wasn't told as of yet they have one of the best RSD
site that I have ever seen as they have something for everyone and has
the most info out there that I know of anyway.
Have you visited the site yet??? If not it is www.rsdhope.org and it
is just a absolutely fabulous web site for all things associated with
RSD/CRPS.
Thats great news about the new school with the elevator for you to
use!!!
My mom does not appear to be sick or anything from her kidney problems
as of yet and hopefully she will improve with the med change if that
is the major cause of it. Hopefully anyway!!!
Well I wish you a good day.
soft hugs
Sherry
Dear Jayne,
Your sense of hope and optimism encouraged my heart at the late hour of
1:30am. Praise the Lord for your good news, I rejoice with you!! I am also
so sorry for your bad news...sometimes there are no words other than to say
you are in my prayers. I remember when I tried to convince myself that I did
not have lupus and fibromyalgia despite living with it everday for 8 years.
At the time my rhuematologist told me to "get over it and get on with your
life." Although I knew in my heart he was right, hearing the words out loud
and spoken so plainly crushed me. BUT, we have an awesome and mighty God
who can do anything!!! So, I wait on the Lord and know someday Iwewill be
healed...maybe not in my life time or yours here on earth...but SOMEDAY!!!
Take care, In His Love, Diane
Christy, for me that chat does not work well. I am sorry about that. I wish
I could join you in the chat, but I just have too much email, and many other
things to do that I can't spend the time in a chat mode. I do hope that
others would be able to join you there and I will try when I can.
God Bless you,
Dorothy in Colorado
Hello everyone,
Well I see my one message that I posted so that is a good thing. More
bad family news. We were just told by my mother-in-law that our step
father-in-law has colon cancer. They found 4 small tumors in his
colon and one large mass. They will be doing further testing to see
if it is seems to be contained only to his colon and he is to have
surgery very soon to remove probably his whole colon and so he will
have to have a colostomy I'm sure.
Unfortunately for him he was very late in getting checked out as he
has had blood in his stool for about 4 months now and has just went to
see about it in the last couple of weeks as he has been so very tired
and weak but that is because he is an anemic from all of the blood
loss over the last few months.
Men I swear!!! They say they don't like going to Dr.s, well who does.
Most of his side of the family has died from heart problems and he has
had heart attacks in the past too and he has a very enlarged heart too.
He has already lost 2 younger brothers and a sister to heart attacks
plus just a few months back he lost his son to a heart attack.
I think he thinks he doesn't have long to live anyway so he has been
spending money like there is no tomorrow. Not good for my mother-in-
law who is one of the sweetest and kindest persons I know.
Well all of that is a story in its own but I thought none the less I
would ask the group for there prayers for Richard and his family.
Thank You to all
Soft Hugs
Sherry
Thank Christy for sending these at the beginning of the week. I think that
it will help.
Dorothy
This is a Vurus, do not open the attachment!
Al & Linda Paille
Richmond, RI
HI Debbie,
Well I was wondering if you got my private addy with all of my moms
info in it??? I posted a message to the group too and I don't see it
here but I saw the other one I posted so maybe I did something wrong.
Oh well I'll keep at it. I hope you get an answer for some assistance
soon as that is just too hot to be without AIR in the HOt Texas
weather.
Mom has an appt. with her internists on Fri morning and so I assume
they will run some more blood work at that time to she were she is at
and if any of the numbers has changed.
Well I'll TTYL
Soft Hugs
Sherry
Hi everyone
well.......chat is not going so well......
maybe it is the times I am there...but I don't know what to change it to, if
nobody tells me!!!! :-)
I wasn't there this AM 'cause of my appt., and this afternoon I poked my head in
a few times for Teatime, but no one came by to visit.
Nest week, my hubby starts working swing shift.....so, I'll be more available in
the evenings.......PLEASE PLEASE PLEASE let me know if there is a beter time for
you to get together if you are interested in joining me in chat.....and you can
beep me anytime just about!!
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/britainchristianacademy/indexofstudies.html
my HOME PAGES URL coming soon!
I went to see my nuro today. I've had some new things arise with my MS.
My Dr. is going to push Medicare to get me an electric wheelchair. Yeah, then momma can run away from home. LOL
Now for the sad news. he told me today that I would never walk again. I already knew this, but it hurt to have him say it out loud today.
But a miracle could always happen and I could walk again.
Love in Christ,
Jayne
Leo Yes this is normal I had problems with my knees also to be Honest I
still have spoaradic knee pain. I still have hard time from going to a
sit down to a getting up postion. It always takes me time to get up to
adjust. Leo Weigh the pros and the cons give yourself aleast 3 months
to heal by 3 months you should know have a better Idea of what the
Stimulator will andwill not do. Mike
Tuesday
Hebrews 12:1-6
Weds
Hebrews 12:7-13
Thurs.
Acts 5:12-33
Fri
Acts 12:34-42
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/britainchristianacademy/indexofstudies.html
my HOME PAGES URL coming soon!
Hi everyone I'm still recovering from the surgical procedure but I have a
question to ask I've had sporadic periods where I could not walk at all because
when I put weight on my legs my knees just fold up under me they won't stay
straight and I end up on my knees well since my second surgery I have had
continuous weakness in that area and I haven;t been able to stand yet I was
wondering if anyone else experienced more weakness after the stimulator implant
I have a lot less pain so it's doing it's job but I guess I'm hoping the
weakness is temporary
Hugs and Prayers Leo
Why everyone so quiet? I hope everyone doing ok? I like to ask a
Favor If you have great Stimulator website that others can benifit
please send them, Also I would love some ideas on how to get this
group to grow. Mike
Lessons from a Dandelion
The world is coming alive again. Isn't spring grand?
I was walking my dog the other day and I noticed a yard full of
dandelions. What a wonderful sight. Even the name is fun. Dandy lions. I
always picture a big, friendly lion with a silly grin on his face. I love
dandelions. I know some people consider them weeds, but I don't. I think
dandelions are wonderful flowers with a lesson for all of us to learn.
Do you remember feeling a special attraction to dandelions when you were a
child?
I remember bringing fistfuls of dandelions to my mother. It didn't matter
that the stems were sticky. It didn't matter that both my parents cursed
the existence of these flowers when they crept into the lawn. I thought
they were beautiful.
Beautiful and plentiful! At least once a week my father would chop off all
the heads with the lawn mower, and those he missed my brothers, sister and
I would pick. We'd pop the blossoms off the stem with a snap of our
fingers. Even so, it seemed like the supply of dandelions never ran low.
For the flowers that escaped the honor of being delivered to my mother,
the trauma of experiencing my father's lawn mower, or the horror of
suffering through a childhood game, there was a whole other level of
existence.
I don't recall ever seeing a dandelion in transition. Perhaps I never paid
enough attention to the process. Perhaps I knew it would steal the magic
of the transformation if I watched it scientifically. It just seemed like
one day there would be a bright, yellow blossom and the next, there would
be a soft, round puff of nose tickling seeds. I wondered if, like a
snowflake, no too dandelion puffs were alike.
These puffs were a marvel. Sometimes we'd use furious movement to quickly
disperse the seeds into the wind. Other times we'd blow softly to see how
strongly they grasped their core. And when they could hold on no longer,
they gently drifted off to spread their joy elsewhere. One way would leave
me squealing in delight, the other would leave me watching in wonder.
And now, as yellow dots appear in the greenness of my lawn, I think of all
the lessons we can learn from this so-called weed.
Imagine having the staying power of a dandelion. Imagine stretching your
roots so deep and straight that no amount of tugging on your stem would
tear you completely from the source that gives you life. Imagine if you
came back to face the world with a bright, sunshiny face even after
someone had run you over with a lawnmower, or snapped your head off while
singing a silly song. Imagine if your foliage, the things you've
accomplished in this world, were a nutritious source of vitamins that
helped others grow strong. Imagine if you could spread love, encouragement
and compassion as freely and fully as this flower spreads seeds of itself.
The lawns at my parents' home are now beautiful green blankets. The only
patches of color come from well-placed, well-controlled flower beds.
Chemicals have finally managed to destroy what human persistence couldn't.
But I hope that we can be different. I hope that we can stretch our roots
deep enough so that the strongest poisons of anger, fear, hate, envy and
criticism can't reach our souls. I hope that the next time you see a
dandelion, you'll stop and think about the lessons it can teach you. I
hope you'll see a flower in a world that sees weeds.
~ ~ ~ ~
"May the Lord be as welcome in your world as you are in His."
Visit us:
http://www.geocities.com/the_skinners_tx
Do you enjoy email stationary? Join us
http://www.onelist.com/group/Stationary_sharing
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~
contact us via:
AOL-IM KarnationTx
ICQ- 2103997
Thank you so MUCH for this warning!! I use nutrasweet all the time and have
been in a serious flare for 6 weeks now!!! I will definitely stop usung it
now. PTL!!!!
Betty,
How about "All in the same boat and still afloat"? lol
[INLINE] , [INLINE] [INLINE] ,& [INLINE] [INLINE] ,
Lynn
From: "Betty" <bjorg@...
hi everyone!
I won't be in Teatime on Monday, I have a doctor's appt. I really hope this dr.
is as compassionate and as helpful as I've heard! I have a good feeling!
Also, please note that I changed my user name on AIM, to crochetin4Christ.Please
change your buddy list if I'm on it! I don't want to miss any messages!
I will post the scriptures for this week's bible studies tomorrow afternoon, in
a seperate post from tomorrow's bible study.....so, if you want to be surprised
each day, ignore the post with weekly bible studies in the title!
I hope everyone had a nice Mother's Day, it was a very special mother's day for
me, as it is my first with 3 kids, instead of 1.......and the boys have really
attached to me as 'mom', they even both wrote I love you in their handmade
cards......made me cry...sniff, sniff....
talk to ya'll soon!
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/britainchristianacademy/indexofstudies.html
my HOME PAGES URL coming soon!
Hi All,
*** There is an attachment in this mail. ***
==
agape,
Christy
Proverbs 31:13 She seeketh wool and flax and worketh willingly with her hands.
My favorite bible verse:
1 Corinthians 1:18 For the message of the cross is foolishness to those who
are perishing, but to us are saved it is the power of God.
AIM user name: crochetin4Christ
http://www.geocities.com/britainchristianacademy/indexofstudies.html
my HOME PAGES URL coming soon!
Mary J
Even if the majority agrees with an idiotic idea, it is still an idiotic
idea.
When you post a message keep in mind it takes time before it posted,
This group ia a Moderated group it protects us from getting spam and non
related stuff, So when you post a message it will show up on group
just takes time.
Spinal Cord Stimulator! What is it? What does it do? Does it help? Who
Qualify's. Medtronics Spinal Cord Stimulator has Reduced my Nerve pain
Mother's Lifetime Recipe
2 heaping cups of patience
1 heartful of love
2 handsful of generosity
dash of laughter
1 headful of understanding
Sprinkle generously with kindness.
Add plenty of faith and mix well.
Spread over a period of a lifetime.
And serve everybody you meet.
~ ~ ~ ~
Visit us:
http://www.geocities.com/the_skinners_tx
Do you enjoy email stationary? Join us
http://www.onelist.com/group/Stationary_sharing
Are you the Mom of a Teen? Check us out at
http://www.geocities.com/Wellesley/Gazebo/2811
~ ~ ~ ~
contact us via:
AOL-IM KarnationTx
ICQ- 2103997
Lynda, Look at the address! It isn't our group! I was afraid there would
be problems like this but it isn't us Sweetie.
Betty
I received an email today saying I was removed from the group for
unacceptable behavior, which is not true, so someone is playing games
with me and I don't appreciate it. I have enough problems without this
bs. It was signed group management. I do not accept this. I have been
nothing but good to every person in this group, and I hate head games.
So, whoever it is who is trying to be funny or whatever, it's not
funny. If you don't want me in the group, fine. I'm gone.